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Mucous Membrane Pemphigoid

Autoimmune Diseases | Last Active: 6 days ago | Replies (28)

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@emmalouise

Thank you for the information. Mucous Membrane Pemphigoid is a little different than Bullous Pemphigoid. I have it in the mouth and being treated with Clobetasol Gel in mouth trays. I may have to take an oral steroid, which I don't want to do if possible. I was wondering if there were any natural ways to cope with MMP. I recently read about concerns of taking probiotics if you have autoimmunity disorder. I have been taking probiotics for years and now decided to stop and see if that makes a difference.

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Replies to "Thank you for the information. Mucous Membrane Pemphigoid is a little different than Bullous Pemphigoid. I..."

Hello Emma Louise, I hope you are doing well in managing your MMP! My wife has just been diagnosed with Mucous Membrane Pemphigoid. So I am very interested in the disease and any more recent treatments you have found for controlling/managing this situation. Thanks, Terry Claar, Newark, Delaware.

I also have MMP in my mouth, nose and eyes. I cannot take any of the top 3 immunosuppressants: azathioprine, mycophenolate , Methotrexate. I have allergies to yellow dye and yellow compound. Mycophenolate raised my BP to 212/98. Are you taking an immunosuppressant? If so, what color is it?