MOG

Posted by kwitty131 @kwitty131, Mon, Jun 17 10:50am

I am 31year old female and I was diagnosed with MS in 2013. I was misdiagnosed . My new diagnoses is MOG a rare autoimmune disorder. Since this is such a new disease I am hoping that my doctors will be in communication with Mayo clinic. Anyone else diagnosed with MOG

Hello @kwitty131, welcome to Connect. I'm glad you are reaching out and trying to learn as much as you can about your condition. I had not heard about myelin oligodendrocyte glycoprotein (MOG) but was able to find information on why it's often misdiagnosed for MS. Here's an article from Mayo Clinic:

Mayo researchers correlate specific antibody with relapse of neurological disorder
https://newsnetwork.mayoclinic.org/discussion/mayo-researchers-correlate-specific-antibody-with-relapse-of-neurological-disorder/

I also found a patient related story that may be helpful on the Myelitis.org website.

Rare but not Defeated – My MOG Story
https://myelitis.org/rare-but-not-defeated-my-mog-story/

@kwitty131 have you talked to your doctors about possible treatments or getting a referral to Mayo Clinic?

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