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Myelin Oligodendrocyte Glycoprotein (MOG)Autoimmune Diseases | Last Active: Oct 30, 2022 | Replies (5)
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Replies to "Hello, my 22 year old daughter was diagnosed with MOGAD a couple months ago. We are..."
Look at the MOGProject website. They also have a great FB page. If you need help finding it let me know. Hugs to you and your daughter!
Hello @lisabethy, Welcome to Connect. Unfortunately the member who started this discussion, @kwitty131, is no longer following Connect and probably did not see your post. I know it has to be difficult dealing with such a rare disease. You may have already seen the information posted on the National Organization for Rare Diseases which lists the standard therapies and other treatments but I thought I would share the site just in case.
— MOG Antibody Disease: https://rarediseases.org/rare-diseases/mog-antibody-disease/
Have your daughters doctors offered any suggestions on which treatments might be the most effective?