My husband has mobility issues

Posted by cmdw2600 @cmdw2600, Feb 21, 2023

My husband (age 72) was diagnosed with Parkinson’s about 6 years ago. I feel his progression is slow even though he would say otherwise. He is still driving and playing golf-although poorly. He does go to the gym, but he is weak and feels that he cannot improve in this area. He is of a healthy weight, maybe a bit too thin, and we have a healthy diet. He currently takes Sinemet, and a drug that is not as well known called Gocoveri. This drug seems to control what he referred to as “bobble head”. His hand tremors are pretty well controlled with the Sinemet.

My question is this: does anyone have tips for getting out of bed, getting off the sofa, getting out of the car? I’d like him to get some kind of physical therapy for these situations but am not certain how to proceed. He does not use a walker, cane or Nordic sticks.

Anything that has worked for anyone out there?

Thank you! Cindy

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Profile picture for katrii @katrii

Hi. Getting up is indeed a challenge! We found, on Amazon a hand-held device where if I stand sideways, feet apart I can be easily balanced and strongly, securely help my husband up. We have one in 2 rooms. We also bought a slide-under the mattress bed rail for getting out of bed. The chair thing would help with the car, also.

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I just bought the bed rail for my husband. So far, so good. It helps him sit up and lean back more easily. He hurt his back in a fall a couple of months ago, so that just adds to the fun. 🙄

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Profile picture for barcon47 @barcon47

Not sure where you live but I live in Australia and I have a Dawson bed stick to help me getting in and out of bed.

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Thanks for this information. I think the Dawson bed stick might solve our problem. I have been straining my back muscles, as the caregiver, pulling my husband out of bed. I’m an Australian living in Maine.

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Profile picture for Idied2x @1died2x

I know the frustrations. I can't open a water bottle so my wife does. I can't do lots of things. I try to concentrate on what I CAN do and quit looking at who I was and concentrate on who I am. I am 78 years old and I can walk so I do. I watch my diet. I study things that interest me and I walk again. Getting old is not fun. Getting old with PD is less fun. NOT DEAD YET. Be greatful to be alive. Its tough being old with PD - do you have another choice? Watch the movies you never had a chance to watch when busy. Do it while walking on a treadmill. I know I am mean and unsympathetic. Just enjoy what you have because you will still have it happy or sad. Be happy.

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Thank you for your positive post,much appreciated. I am 76 years old & have a relationship with Jesus Christ and this is what helps to keep me fighting & NOT giving up.
I go for walks & do exercises that I found on youtube. It is very important to stay positive
& enjoy the time that we have left on this earth knowing that someday it all ends & we will be in a better place lf we have a relationship with Jesus. Take care my friend & keep on keeping on. God Bless You!!

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Profile picture for cmdw2600 @cmdw2600

Yes, my husband does have physical manifestations of PD as well as the soft voice. He has been doing some PT but does not feel it has helped yet. The voice issue is very frustrating for both of us. I am 70 and my hearing is not what it used to be. I am constantly saying “what!?” which is annoying to him as he has to repeat almost everything. I will suggest therapy for this also.
Thank you! Cindy

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My spouse is going for speech therapy next week. If I am able to observe I will share. He also has PT as well. Hopefully all goes well for him.

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Profile picture for sillyblone @sillyblone

My spouse is going for speech therapy next week. If I am able to observe I will share. He also has PT as well. Hopefully all goes well for him.

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Hello @sillyblone,

I'm pleased to hear that your husband will begin speech therapy next week. That can be tremendously helpful. I look forward to hearing about his experience. If you request to be in the room, that should be no problem. It is important for you to observe the process so that you can follow up with the speech exercises at home.

One of the most helpful exercises that I still practice is reading out loud, which includes pausing at punctuation and breathing at appropriate times.

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I am all for helping him or practicing it. I am not sure how receptive he will be. My son was a premie. As he aged he could not articulate at all. I worked with him for 9 years. He talks normally and he was able to get in front of others and speak. They called it "Piggy exercises". The school system tried to say he was low functioning. I knew different. Yes, he had trouble communicating. I was not going to let them lable my child regardless of what they thought. He and I will always remember these times with love and understanding " Don't give up".💞

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I bought, on Amazon, a support brace/railing that fits under the mattress. He can use this to help get out of bed. The width is 18”.

There are great lift recliners at Lazy Boy. Very fashionable.

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