Mitral valve prolapse

Please contact his office to send your test results, especially latest echo, to the great and caring cardiac surgeon, Dr. Byron Boulton; set up a consult visit. He is director of the WakeMed Structural Heart Program at WakeMed in Raleigh, NC. Phone (919) 231-6333. He repaired my mitral valve, serious regurgitation problem, and did an ablation to cure my AFIB. That was over two years ago and I am as fine as wine, off all meds too. I am an 80 year-old male, just a kid.

https://www.mayoclinic.org/diseases-conditions/mitral-valve-disease/symptoms-causes/syc-20355107
Hello @nanthitha, it looks like you are new here, welcome to Mayo Connect.
I posted a Mayo Clinic article for you to read that you may find interesting.
I have always found learning as much as you can about a condition you have is helpful. Sometimes though, we can may ourselves fearful and stressed if we overthink things. Anxiety can cause physical symptoms like you describe as well as a heart condition. It's stressful to fear you have something and nobody seems to be listening. It sounds like your second opinion is trying to work with you.
There is no one who knows you better than you!
I was diagnosed with a mitral valve prolapse when I was 22 years old. It caused a few little issues along the way like rhythm disorders such as PVCs and tachycardia. I also had to pre-med with an antibiotic before teeth cleanings. Fast forward many years, and I learned I did not have a mitral valve problem at all...it was due to hypertrophic obstructive cardiomyopathy, or HCOM. I'm not suggesting you have this at all! I am saying listen to your body, and if you still feel, even after being reassured, there is something wrong, a third opinion is not unreasonable. I think any of us gets a little nervous when we think there is something wrong with our heart. It's an important part of us!
Aside from what you are experiencing, are you active? Do you exercise regularly and eat healthy? Do you have a favorite hobby or pastime that you enjoy?

Hi,

Thank you for your valuable reply. I appreciate your recommendation and will contact the doctor you mentioned to discuss my condition further.

Hi,

Thank you so much for taking the time to review my medical report and providing your insightful comments. Your expertise and thoughtful feedback have been incredibly helpful in understanding my condition better. To be frank, I'm not very actively involved in exercise or physical activities, but I try to eat healthy foods and avoid unhealthy ones as much as possible. My favorite pastime is spending time with my loved ones.

It would be a positive thing to have confirmation of the diagnosis, but if you’re still feeling very limited and having symptoms, can you talk to your doctor about it, because there are medications for mitral valve prolapse, if that’s what it is.

But also from some of the symptoms you’re mentioning, I’m wondering if you think you may have other symptoms of POTS (Postural Orthostatic Tachycardia Syndrome) or hypermobility, such has Ehlers Danlos Syndrome? The most common form is hEDS (the Hypermobility type). POTS and EDS frequently occur together.

And mitral valve prolapse occurs so commonly with hEDS that it’s part of the diagnostic criteria.

You're most welcome. I'm only one of many who are grateful to him.

The main issue with mitral valve prolapse, aside from making the heart less effective as a pump, and which can bring on a sense of malaise (which in turn might make you anxious, more sensitive to each little twitch or twinge is that it greatly raises the risk of atrial fibrillation due to the stretching of both the muscles trying to pump more blood, but also more fibrosis around the valve as it is pushed more and more up and down away from its deteriorating seat (which is what the prolapse means). The fibrillation...IF....you have it, may be paroxysmal in nature, meaning early stages, and it comes and goes on its own. But if you have palpitations, they might only be PACs (premature atrial contractions) which do come with a thump when the heart skips a beat and then corrects with a strong contraction. Some people feel fibrillation, some don't, some know when they're in flutter, some haven't a clue until their physician detects it.

Everybody has some regurgitation. Everybody. Some quite a bit more than others, and this is where we look for pathology. Could be a virus, could be just genetics and early wear 'n tear... I believe the doctor waiving your tricuspid is correct based on what you have related to us, but I don't believe you understand all that your biscupid valve has to say, or his/her interpretation of the results of any diagnostics. I think you should make an inquiry and ask that person to explain why he/she thinks it isn't a matter for concern.

Have you ever has your doctor ever suggested to do a tilt table test on you are to do a halter monitor on you like a z patch you can wear it like a big sticker you can wear it for 2 weeks and look at your heart rate while you're resting and going through about your daily activity or records every be in every heart rate and you do in the best thing about that you don't need to push a button that catches every heartbeat. You might want to buy a automatic blood pressure in Cape part of your blood pressure rate well will your sitting and standing too. And see what your blood pressure is and you might want to see if your blood pressure is low while you're getting symptoms if it is lower while you're getting symptoms just keep it track of your blood pressure. I'm in my 30s I've had thos MPV prolapse and it's regurgitation now and my other three valves are now regurgitation they still say it is a normal but now it's into a moderate in my ejection fraction is now a 50 to 55 into my cardiologist is now saying it's still normal I wouldn't worry about it too much. You could try to work compressive stockings to your compressive sleeves. There's something call ed biofeedback. Try to look it up or try to find somebody that does that that might help you too to help your breathing and your heart did they say that you have a PFO or ASD that in your heart.

Sorry have you ever thought about going to your primary doctor and asking her to send you to a GI doctor to do a scope on you a upper scope on you to see if you have a hiatal hernia you might have a hiatal hernia you might have something called acid reflux with adapt can cause you to feel like you have pretty after you eat or before you eat might have a head of honey you might want to consider going to a GI doctor might not want to eat spicy foods and you might want to do small meals throughout the day. And you might want to see if you might need to start some like anti-acid medicines for GI problems. Or you could have something called gas grill Priuses you could have something with your GI stuff you might want to check with your primary doctor and go to a GI doctor best of luck. 💞💞🙏🙏

I had a mitral valve repair in 2021. All went well but now I am feeling that swishing noise again. Has anyone had this after surgery? It is constant. I dread seeing doc again.