Mitochondrial disease

Posted by Tanialeo @leotania, Aug 23, 2017

I cant find a group for rare diseases or genetic conditions. So im gonna guess its this one. I live in the UK and get test and anserws here are extremely slow , im hoping to go to US as ive heard this clinic/hospital is one of the best. Does anyone thing it is worth it.

Interested in more discussions like this? Go to the Brain & Nervous System Support Group.

Welcome, Tania.
Mayo Clinic is a centre of excellence and ranked number 1 in the US in many disease areas. Here is more information about our Mitochondrial Disease Clinic http://www.mayoclinic.org/departments-centers/clinical-genomics/overview/specialty-groups/mitochondrial-disease-clinic as well as the Mitochondrial Disease Biobank established at Mayo Clinic in 2009 http://www.mayo.edu/research/centers-programs/mitochondrial-disease-biobank/overview

Tania, we look forward to getting to know you. If you're comfortable, would you mind telling us a bit more about your health journey?

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What is mitochondrial disease. I think at one point in time my nuerologist thought I have that. But I'm not sure if I do or not have it.

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