MGUS diet: Any tips on food to enjoy or prevent progression?

Posted by sstillwell @sstillwell, Aug 13, 2021

Hello-any tips on foods to avoid and foods to enjoy that help prevent progression of MGUS? I’ve read avoid radish, cherries, processed, fried. Focus more on fruits. Anyone adhered to special diet and have not had MGUS progress for years? Thank you, Susan

Interested in more discussions like this? Go to the Blood Cancers & Disorders Support Group.

Thank you! Sensible meals.

I can’t give up shrimp. Otherwise pretty similar to the way I cook. I love to cook and try new recipes. I am trying

REPLY

My friend, who is a true Southern cook (reformed), introduced me to smoked turkey legs as a protein for soups and beans. It doesn’t have the high sodium content that you get with ham, but the smoked turkey gives you a lot of flavor. I also add fresh spinach to anything and everything. I’m not a fan of a lot of the green, leafy vegetables, so I think that this is enriching my C, A, K and E intake. I have to do gluten free due to celiac and wish I got extra points that resulted in weight loss for the foods I give up.
Fruit. Green veggies. I’m trying to eat more of this and give up sugar. I avoid aspartame.

I have cut back significantly on Chardonnay which lately gives me a dull headache so it’s lost it’s appeal significantly anyway. Retirement helped significantly in my need to consume liquid fortification. Whew!
I did read this …has some interesting information.

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6211667/
REPLY
@pmm

My friend, who is a true Southern cook (reformed), introduced me to smoked turkey legs as a protein for soups and beans. It doesn’t have the high sodium content that you get with ham, but the smoked turkey gives you a lot of flavor. I also add fresh spinach to anything and everything. I’m not a fan of a lot of the green, leafy vegetables, so I think that this is enriching my C, A, K and E intake. I have to do gluten free due to celiac and wish I got extra points that resulted in weight loss for the foods I give up.
Fruit. Green veggies. I’m trying to eat more of this and give up sugar. I avoid aspartame.

I have cut back significantly on Chardonnay which lately gives me a dull headache so it’s lost it’s appeal significantly anyway. Retirement helped significantly in my need to consume liquid fortification. Whew!
I did read this …has some interesting information.

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6211667/

Jump to this post

@pmm Interesting study! Fresh fruit and wheat bread! I have been told with my kidney disease, to limit wheat bread, but I eat little of it anyway. No white bread except sourdough, which gives me a great taste. Since last September I have lost and kept off 12 pounds. which was already after a 20 pound weight loss. Once in a great while I have an ounce of wine, sipping it slowly. For fresh fruit, my go to is an apple. Recently due to low potassium levels, I was allowed to add bananas and oranges back to my diet, in addition to taking a potassium supplement. For me, it is a big project balancing my myeloma with my kidney issues, and getting the correct amounts of everything.

A couple of month's ago I bought a package of smoked turkey necks at the store, and really liked the taste of them in a soup! I will look for smoked turkey legs next time. Thanks for that idea.
Ginger

REPLY

You’re welcome! Bon appétit!

REPLY

Along with the MGus, I have Trigeminal Neuralgia. I have to take Pregabalin which has already put 10 lbs on me. This I definitely did not need. When you are as inactive, as I am, it is not how much you eat, it is how little you move. I probably eat less than I have in my whole life, and weigh more. I have been told, if the scale goes up any higher, I will probably have to find another medication (not easy). Any suggestions would be greatly appreciated.
Gina 5009

REPLY
@gina5009

Along with the MGus, I have Trigeminal Neuralgia. I have to take Pregabalin which has already put 10 lbs on me. This I definitely did not need. When you are as inactive, as I am, it is not how much you eat, it is how little you move. I probably eat less than I have in my whole life, and weigh more. I have been told, if the scale goes up any higher, I will probably have to find another medication (not easy). Any suggestions would be greatly appreciated.
Gina 5009

Jump to this post

@gina5009 Can you do seated chair exercises to help you move around? There are several youtube video series out there to follow along with. Or perhaps a floor or table set up where you can pedal your arms or legs and burn some calories? Stretching using towels or elastic bands?

Watching our diets is crucial in any health issue, and just when we want to eat something to make us "feel good" the other side of our brain is telling us it shouldn't be done, right?! [been there, done that!] Hoping this might help you in this time of stress for you.
Ginger

REPLY
@dazlin

I was diagnosed with MGUS also. I get bloodwork every 6 months. I also had a bone marrow test done. It's been about 3 years, no progression of disease. I was concerned for a while, now, I don't worry at all. I eat anything I want and I love my red wine too. I'm thankful for my great Dr's at Mayo clinic, and for monitoring me. I hope you can feel some comfort and thankfulness for the early detection, and being monitored. Try not to worry.

Jump to this post

Which Mayo Clinic do you goto? I was diagnosed recently and trying to decide where I go.

REPLY
@sal99

Which Mayo Clinic do you goto? I was diagnosed recently and trying to decide where I go.

Jump to this post

I go to Jacksonville, Florida. Very pleased with the care there.

REPLY
@gingerw

@gina5009 Can you do seated chair exercises to help you move around? There are several youtube video series out there to follow along with. Or perhaps a floor or table set up where you can pedal your arms or legs and burn some calories? Stretching using towels or elastic bands?

Watching our diets is crucial in any health issue, and just when we want to eat something to make us "feel good" the other side of our brain is telling us it shouldn't be done, right?! [been there, done that!] Hoping this might help you in this time of stress for you.
Ginger

Jump to this post

Thank you for your kind thoughts. I do have a seated bike, and electrics foot pedal machine. Fortunately, my appetite has behaved, but the pregabalin's side affect is weight gain. I am completely ambulatory (no wheel chair), but I seldom leave the house, because I get pretty short of breath. I did not mention, I had a heart valve replacement 1 1/2 years ago. I guess, the weight thing, is just another "Wish", I just have to learn to live with. Old ladies recreation (COMPLAINING). Once again, thank you for your kind thoughts.
Gina5009

REPLY
@sstillwell

You are welcome mRed. Great that you have sat in on conferences to gather as much info as possible. My onc/hem doctor has great credentials for treatment if i progress, hoping not to. Interesting how many of us with MGUS have thyroid issues, blood clotting and kidney. I’ve read MGUS diagnosis increases our chances of developing blood clots by 22 percent. Interesting with Covid articles out - I find a lot of correlation between recommendations for diet and supplements for Covid to be similar to MGUS. Perhaps because of the focus on the similarities in targeting the spiked protein? Also wanted to share with MGUS group to Google PCrowd study. Interesting information.

Jump to this post

I have had MGUS for many years, I also have had blood clots. Currently on 10mg Eloquis a day and got another DVT. I'm so? IDK. I'm 67 years old and had 1st blood clot pregnant at 25! Does anyone else have this issue? The oncologist who keeps monitoring MGUS numbers at DHMC didn't know this!?

REPLY
Please sign in or register to post a reply.