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MGUS diet: Any tips on food to enjoy or prevent progression?

Posted by sstillwell @sstillwell, Aug 13, 2021

Hello-any tips on foods to avoid and foods to enjoy that help prevent progression of MGUS? I’ve read avoid radish, cherries, processed, fried. Focus more on fruits. Anyone adhered to special diet and have not had MGUS progress for years? Thank you, Susan

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raye | @raye | May 11, 2022
In reply to @teedlum "Hi Susan, Sorry I don’t have any information either. I would like to know if anything..." + (show)
@teedlum

Hi Susan,
Sorry I don’t have any information either. I would like to know if anything will stop the progression of MGUS too.

Hugs
Linda

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Dear Ones,
Two thoughts come to mind: my IgM kappa MGUS was first diagnosed seven years ago when my weight was at all time high. I had just gone on a cruise and eaten far to liberally. No more! Subsequently I’m trying to be honest with myself and have slowly lost 8% of the excess. In online researching from peer reviewed sources, I gather gaining weight can cause MGUS to progress to MM. Suggesting see if your research verifies this. Good Luck! Healing hugs!

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wyom1998 | @wyom1998 | May 16, 2022
In reply to @raye "Can only say that my PCP informed that after 2 Moderna Innoculations + 2 M boosters,..." + (show)
@raye

Can only say that my PCP informed that after 2 Moderna Innoculations + 2 M boosters, I do not have covid immunity.
Possibly this is due to IgM kappa MGUS dx 7 years ago. Now suggested to take extremely new med: Evusheld. Anyone have any experience with it? Thank you! @rae

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I had evushield late last year and new series three days ago with my weekly infusion.
No side effects and no Covid so far.

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1 reply
raye | @raye | May 16, 2022
In reply to @wyom1998 "I had evushield late last year and new series three days ago with my weekly infusion...." + (show)
@wyom1998

I had evushield late last year and new series three days ago with my weekly infusion.
No side effects and no Covid so far.

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Thanks for your encouraging words, Wyom!

What tests were done to prove that the other vaccines were inadequate for your needs?

One concern is that they are all based on the 2019 version of COVID and other variants are circulating now.

Wishing you well!

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wyom1998 | @wyom1998 | May 16, 2022

I had Moderna 2 dose and booster early last year before evushield. My SCT deleted that series.
I had the new evushield shot last week based on what I understood were new expanded coverages.

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chellelasvegas | @chellelasvegas | Jul 27, 2022
In reply to @colleenyoung "Hi @sstillwell, welcome. Let me bring some fellow MGUS members into this conversation like @kandc317 @iain49..." + (show)
@colleenyoung

Hi @sstillwell, welcome. Let me bring some fellow MGUS members into this conversation like @kandc317 @iain49 @auntieoakley @cctoo @dazlin @momofthree1 @susangs and @gingerw who may have some thoughts about MGUS and diet.

Susan, have you ever consulted with an oncology dietitian to ask about diet and MGUS? Did you know that there are dietitians who specialize in cancer nutrition?

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Hello i am new here just found y'all on a google search. I cannot figure out how to join your group?

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1 reply
Moderator
Colleen Young, Connect Director | @colleenyoung | Jul 27, 2022
In reply to @chellelasvegas "Hello i am new here just found y'all on a google search. I cannot figure out..." + (show)
@chellelasvegas

Hello i am new here just found y'all on a google search. I cannot figure out how to join your group?

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Welcome, @chellelasvegas. You are successfully follow the Blood Cancers group and posted to this discussion about MGUS and diet. Do you have MGUS? I look forward to learning more about you and what brought you here.

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1 reply
chellelasvegas | @chellelasvegas | Jul 28, 2022
In reply to @colleenyoung "Welcome, @chellelasvegas. You are successfully follow the Blood Cancers group and posted to this discussion about..." + (show)
@colleenyoung

Welcome, @chellelasvegas. You are successfully follow the Blood Cancers group and posted to this discussion about MGUS and diet. Do you have MGUS? I look forward to learning more about you and what brought you here.

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I was diagnosed a couple weeks ago. Im shocked and lost. I was on a fb group but the posts were giving me anxiety. I'm a little scared. Not totally sure what to do next. My Primary dr said we'll check again in 3 months but thats not enough for me. I have symptoms and need to be proactive. I appreciate any knowledge you can share with me ❤

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jerrlin | @jerrlin | Jul 28, 2022

I joined Voices for MPN’s. It has a lot of good information. I’m as confused as you, but always make sure you get more than one professional opinion.

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1 reply
teedlum | @teedlum | Jul 29, 2022
In reply to @jerrlin "I joined Voices for MPN’s. It has a lot of good information. I’m as confused as..." + (show)
@jerrlin

I joined Voices for MPN’s. It has a lot of good information. I’m as confused as you, but always make sure you get more than one professional opinion.

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Hi Jerrlin,
What is voices for MPNs?
Thank you

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jerrlin | @jerrlin | Jul 29, 2022

I believe it to be a group of people just like you and me that suffer from a blood disease. You can keep track of your counts , symptoms and journey on your phone. There are video taped real life stories and great information.

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