Meningioma: Anyone else? I'm frightened

Posted by pixie49247 @pixie49247, May 12, 2023

I just found out I have a Meningioma tumor from a MRI I had for something else. Doctor said they are almost always benign and am going to get an appointment with a neurologist. Anyone else have one of these. I’m getting very frightened now.

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Profile picture for jackie2k @jackie2k

@randallshields56 Hi Randy! I have short term memory lost also. Not sure what’s causing it other than age . Hope you’re doing ok.

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@jackie2k peas in a pod, thank you for the post. It's been a long week already and not over yet. I love your style of chatting with me. Here is hoping you have a blessed evening and chat whenever I see you message.

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Profile picture for Randy Shields @randallshields56

@jackie2k peas in a pod, thank you for the post. It's been a long week already and not over yet. I love your style of chatting with me. Here is hoping you have a blessed evening and chat whenever I see you message.

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@randallshields56 hey Randy! Thanks for chatting with me too it’s just good to hear that someone knows what it feels like to have to go through a tuff time. I had ADEM and it took me months to get over it I was paralyzed on my whole right side and had to learn how to walk talk and swallow again but now I try to walk 3 miles a day snd garden.

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i try to get out and walk as often as i can weather permitting. you are an inspiration to others well back to exercises. chat later.

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Profile picture for Randy Shields @randallshields56

i try to get out and walk as often as i can weather permitting. you are an inspiration to others well back to exercises. chat later.

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@randallshields56 hi Randy! I’m so glad you are a fighter also. We are the type that survive.

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Profile picture for Randy Shields @randallshields56

i try to get out and walk as often as i can weather permitting. you are an inspiration to others well back to exercises. chat later.

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@randallshields56 understood as to going thru stuff that is tuff. like right now am going thru withdrawals on one medication that i dropped. it could have more issues down the line but for now i am just being cautious to symptoms and paying more attention to my body alarms if that makes sense. yesterday i pushed it a little hard but slept good. so for now going to check messages and try to figure the day a little better. Have a blessed day today everyone.

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Profile picture for Randy Shields @randallshields56

@randallshields56 understood as to going thru stuff that is tuff. like right now am going thru withdrawals on one medication that i dropped. it could have more issues down the line but for now i am just being cautious to symptoms and paying more attention to my body alarms if that makes sense. yesterday i pushed it a little hard but slept good. so for now going to check messages and try to figure the day a little better. Have a blessed day today everyone.

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@randallshields56 Hi Randy! I understand with the meds I have the same one Dr gives me a med and not sure he’s checked out why this med can’t work because of my other conditions

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Profile picture for jackie2k @jackie2k

@randallshields56 Hi Randy! I understand with the meds I have the same one Dr gives me a med and not sure he’s checked out why this med can’t work because of my other conditions

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@jackie2k correct again. i have a few doctors that are regular and keep me on the same diet of pills, i know if i can lose a couple my health and thinking will be better and already is to a large margin, or should i say i see improvement anyway. my caregivers are nervous about my decision and one of them pushed me to the limit yesterday seeing if i was going to have an attack. i did not and that's because of my controlling the events at my speed. no pressure sequence. i am getting to go out to more places and get away from the house with my caregiver which makes the days better. here i am off subject again. doctors prescribe too many drugs that we don't need, leave it at that. well have a great weekend and a blessed day.

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I also have one which was found after I fainted and fell 2 flights of stairs. I got knocked out. Don’t remember the scans. The fall was not from the meningioma.. Yes. It was a terrifying diagnosis. I see a Neurologist. Due for scans next week.I was told it is very small and to try not to be upset. Easier said than done.. I hope you get a positive report.
Stay in touch. Joanna

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Profile picture for staywell @staywell

I also have one which was found after I fainted and fell 2 flights of stairs. I got knocked out. Don’t remember the scans. The fall was not from the meningioma.. Yes. It was a terrifying diagnosis. I see a Neurologist. Due for scans next week.I was told it is very small and to try not to be upset. Easier said than done.. I hope you get a positive report.
Stay in touch. Joanna

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@staywell - thank you-
Joanna Fenton

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I too found out I had a M incidentally January 2024 after a fall in which I broke my shoulder and hit my head. Mine was small so they say and in the dura(lining). Hadn't infiltrated my brain. They monitored it with 6 month MRIs and seeing it grew a little bit a year later recommended radio surgery to try and shrink or prevent from growing further. I had it done June 2025. Six months later, in Dec. 2025, I had another MRI to see if it's working and there was no new growth. I have to go back in a year for another MRI and will continue to monitor every year in hopes it shrinks or goes away. I pray to God everyday it never grows and is stable. It is very scary and I wish you much strength and success with yours. Everyone's M is different and I hope yours is minor.

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