Meniere's Disease

Posted by morninglory @morninglory, May 13, 2018

Has anyone with Meniere’s Disease been prescribed the compound drug Betahistine?

Hello All:
Regarding the problem with tinnitus and the stuffy-ear feeling, I have found that taking NSAID (meds like ibuprofen, Advil, aspirin, Motrin, etc.) tend to make the symptoms much worse (however, I don't think that they necessarily cause them). Because of a lot of arthritis pain I just use one Advil in the evening to help reduce the pain/inflammation while I sleep but if I take more than one a day, my hearing gets worse (feels like my ear canal is filled with cotton) and the ringing in my ears increases in volume.
Anyone else found this to be true?

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@estrada53

Hi everyone. I've had Meniere's since 1992 when I was 39 years old. It caused years of episodes, vertigo and hours of regurgitation. I would literally crawl to the bathroom, because I couldn't walk. I was given diazepam to calm the vertigo, along with nausea medication and all to no avail. I had an episode while driving 60 miles an hour on Lake Shore Drive in Chicago. Nearly killed myself and other folks. Then I stopped using caffeine, lowered my sugar intake and went all low-sodium. I have not had an episode in over 12 years. I do have tinnitus – the ringing in my right ear, where I am now deaf. I wear bi-cross hearing aids. I have tried Lipo-Flavonoid – available at most pharmacies and at Target, etc and online. I did notice a decrease in the ringing. Rehab absolutely worked and I kept the pictures of the exercises on my inside cupboard doors for many years. Whenever I would begin to "feel" the onset of an episode I would begin the exercises. Retraining the brain. Hope this helps someone.

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I have had Meniere's since my early 40's (now 58). The severe dizziness and nausea has subsided but I have lot almost all of the hearing in that ear. Trying a one sided hearing aid but still not able to discern sound location and speech clarity. Are you having luck with your bi-cross hearing aids? Meniere's has a lot of challenges to work through. I had lost a lot of hearing in my affected ear and then had a sudden onset of almost all hearing about a year and half ago. This has really been a challenge. Feel disoriented and slightly uncoordinated. Hard to explain. Open for suggestions.

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@hopeful33250

Hello All:
Regarding the problem with tinnitus and the stuffy-ear feeling, I have found that taking NSAID (meds like ibuprofen, Advil, aspirin, Motrin, etc.) tend to make the symptoms much worse (however, I don't think that they necessarily cause them). Because of a lot of arthritis pain I just use one Advil in the evening to help reduce the pain/inflammation while I sleep but if I take more than one a day, my hearing gets worse (feels like my ear canal is filled with cotton) and the ringing in my ears increases in volume.
Anyone else found this to be true?

Jump to this post

Interesting. Some of the NSAIDS can cause mild to moderate fluid retention. I wonder if that is why it makes your symptoms worse. I cannot tolerate NSAIDS for different reasons. Started taking turmeric 500 mg daily for joint pain. It is working pretty good. Not as good as ibuprofen but pretty good. You might try that.

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I have been reading and following this thread. I have a friend with Meniere's. I am learning from the comments. I have no hearing issues but know many that do.

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@grannyjack

Interesting. Some of the NSAIDS can cause mild to moderate fluid retention. I wonder if that is why it makes your symptoms worse. I cannot tolerate NSAIDS for different reasons. Started taking turmeric 500 mg daily for joint pain. It is working pretty good. Not as good as ibuprofen but pretty good. You might try that.

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Interesting thought, @grannyjack

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Occlusion is a word used to describe the effect a hearing aid has for some people when it is an in-ear type device. It seems to cause a "bucket over the head" type sensation – stuffed up ears, if you will. However, I have the same symptoms without a hearing aid and I have researched all over the internet and can find no information. Even tried hearing associations, etc. It's interesting that others seem to have a similar problem. I'm convinced there is a connection between my occlusion symptoms and Meniere's disease.

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@grannyjack

I have had Meniere's since my early 40's (now 58). The severe dizziness and nausea has subsided but I have lot almost all of the hearing in that ear. Trying a one sided hearing aid but still not able to discern sound location and speech clarity. Are you having luck with your bi-cross hearing aids? Meniere's has a lot of challenges to work through. I had lost a lot of hearing in my affected ear and then had a sudden onset of almost all hearing about a year and half ago. This has really been a challenge. Feel disoriented and slightly uncoordinated. Hard to explain. Open for suggestions.

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@grannyjack I have had tinnitus for a long time recently I experienced balance problems and dizziness went to have a 2gr8 test ,Dr told me to do ear exercises I think these are helping my tinnitus ,not as loud Have you had these symptoms ? Talk with your ear Dr if so good luck

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@grannyjack

Interesting. Some of the NSAIDS can cause mild to moderate fluid retention. I wonder if that is why it makes your symptoms worse. I cannot tolerate NSAIDS for different reasons. Started taking turmeric 500 mg daily for joint pain. It is working pretty good. Not as good as ibuprofen but pretty good. You might try that.

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@grannyjack Forgot to mention about the inflammation I take Golden Milk a combination of tumeric,ginger ,little black pepper everyday

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@estrada53

Dear @phillipflippo, I certainly empathize with your situation. It took years to diagnose my Meniere's. Regarding your hearing test, my hearing would come and go for many years. I could have a hearing test and it would be fine and then my hearing would disappear. I currently wear hearing aides in both ears. I also was taken off of potassium and weaned back on. I went off salt completely and maintain a low-sodium diet but it was also caffeine that was a big culprit for me. And I didn't drink alcohol. Meds did not help me — I was on an anti-nauseam med and diazepam, neither of which did anything. Changing my diet was the key. I hope the meds help you. Also, Meniere's can have a range of severity, Your appointment at Mayo will provide some insight into your situation. I've seen the ENT team in AZ and they are wonderful. Wishing you the best. Take good care of yourself.

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Thank you so much for your information. Have had a Meniere's diagnoses by ENT but am eagerly awaiting my appt. at Mayo Rochester in June for further testing. The test they have avail here is simply a hearing test and then a test for vestibular problem given by a p.at.
Was hoping to flunk the vestibular testing but I didn't so was deposited in the Meniere column. I have cut salt daily intake to under 1000mg and seems to help, but still have had some momentary dizziness lately. Have not had a full blown Meniere's attack in over a month and appreciate any info at all about the problem. It does change your life and not in a good way.

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@lioness

@grannyjack I have had tinnitus for a long time recently I experienced balance problems and dizziness went to have a 2gr8 test ,Dr told me to do ear exercises I think these are helping my tinnitus ,not as loud Have you had these symptoms ? Talk with your ear Dr if so good luck

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Thank you. I will ask about the exercises- it sounds interesting and definitely worth a try!

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@susyq213

Hello I suffer from menieres disease, any body to share experiencies?

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First, are you certain that you have Meniere's? About 80% of people diagnosed with Meniere's actually have some other inner ear disease. Regardless, you should keep a diary or calendar showing the kind of day you've had (good, so-so, bad, awful) and even the smallest thing you did that was different. Most Menierians have triggers that cause bad days and/or crises. Triggers can be stress, lack of sleep, inhaled allergens, food allergies (esp. dairy), lack of sleep, or low hormone levels (esp. if you're 40 or older). You can have more than one trigger, too. Over a period of weeks or months, you may be able to learn what your personal trigger is and do whatever you need to do to deal with it. I've had Meniere's for well over 50 years, but it only became a serious problem when I quit taking birth control pills (hormones) in my mid 40s. I spent 4 years working to find hormone replacement (HRT) considered safe for someone my age that kept the disease in control. During that time, I lost most hearing and balance function in my right ear. Over time, I was able to reduce the amount of HRT (you need less as you age) until I was taking a fraction of what I'd initially used. I did vestibular rehab every day and was able to function well, although age-related deafness increased in my left ear over time. Then, on May 24 at 6:45 p.m., my left ear quit hearing useful sound and roaring tinnitus moved in. So, I've just joined this group in the hopes of finding text-to-speech apps that will enable me to continue to live an active life at 77.

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Hello I suffer from menieres disease, any body to share experiencies?

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