Meniere's Disease

Posted by morninglory @morninglory, May 13, 2018

Has anyone with Meniere's Disease been prescribed the compound drug Betahistine?

Interested in more discussions like this? Go to the Ear, Nose & Throat (ENT) Support Group.

@karinzeigler

I am not sure that I have Menieres or not. One doctor told me I had it - another doctor said no. I have not had the dizziness that I had a number of years back, but I have stuffed ears most of the time. . I got hearing aids which help the hearing somewhat, but when my ears are stuffed up i can barely hear even with the hearing aids. . None of the doctors I have seen have helped with the stuffed up ears. I have taken steroids for a month - that did not help. I watch my diet - very little salt but I do eat chocolate ones in a while. I wish I find a help for the stuffed up ears

Jump to this post

@karinzeigler Hi I also have tinnitus or menieres Dr can't tell what I only have the ringing in ears I use to have the stuffiness but took mucinex for it That cleared that up Going of dairy products has helped .Dr,s seem to not know really like so many things

REPLY

@karinzeigler Although I was diagnosed with Menieres, I've not had episode for many years. Now I have tinnitus, hearing loss, and a "feels like there's a bucket on my head" stuffy feeling. Finally got a name for it - occlusion - but can't find anything on it. I can't find anyone who seems to know how to solve the problem - I refuse to spend $6,000 for a hearing aid that, since it fits inside my ear, makes the problem worse. There was a link for Menieres to a blog, I think, but I've lost it.

REPLY
@trishanna

@karinzeigler Although I was diagnosed with Menieres, I've not had episode for many years. Now I have tinnitus, hearing loss, and a "feels like there's a bucket on my head" stuffy feeling. Finally got a name for it - occlusion - but can't find anything on it. I can't find anyone who seems to know how to solve the problem - I refuse to spend $6,000 for a hearing aid that, since it fits inside my ear, makes the problem worse. There was a link for Menieres to a blog, I think, but I've lost it.

Jump to this post

I can relate to the stuffy feeling. I never heard of occlusion but I do have echo-like sounds of my own own voice. Thank you for the information. The echo in my ears drives me crazy. I purchased the $6000 hearing aids - they help me when my ears are not stuffy but still have problems when my ears are stuffed up which is most of the time. I just read about some hearing aids by SeboTek that is supposed to help occlusion. I don't know anything about this company or their hearing aids but wondered if anyone has heard about hearing aids for occlusion . I do not drink milk or eat any milk products, & very little salt. I will definitely stop the chocolate and see if that helps. II have tried some decongestant but it did not help me.

REPLY
@karinzeigler

I can relate to the stuffy feeling. I never heard of occlusion but I do have echo-like sounds of my own own voice. Thank you for the information. The echo in my ears drives me crazy. I purchased the $6000 hearing aids - they help me when my ears are not stuffy but still have problems when my ears are stuffed up which is most of the time. I just read about some hearing aids by SeboTek that is supposed to help occlusion. I don't know anything about this company or their hearing aids but wondered if anyone has heard about hearing aids for occlusion . I do not drink milk or eat any milk products, & very little salt. I will definitely stop the chocolate and see if that helps. II have tried some decongestant but it did not help me.

Jump to this post

@karinzeigler I also never heard of occlusion and have hearing aids Phonic is the brand it has helped me with tinnitus instead of loud ringing it is a quiet humming but yes still there . Going of dairy has helped but hasn't stopped it so I don't know the answer . When my head felt like it was all stuffy the decongestant helped me . Then I became dizzy and started losing my balance Dt. sent me to a Ear Dr. for testing it was a 2 hr test haven't gotten the results yet If anyone finds an answer I would really like to know

REPLY

Hello All:
Regarding the problem with tinnitus and the stuffy-ear feeling, I have found that taking NSAID (meds like ibuprofen, Advil, aspirin, Motrin, etc.) tend to make the symptoms much worse (however, I don't think that they necessarily cause them). Because of a lot of arthritis pain I just use one Advil in the evening to help reduce the pain/inflammation while I sleep but if I take more than one a day, my hearing gets worse (feels like my ear canal is filled with cotton) and the ringing in my ears increases in volume.
Anyone else found this to be true?

REPLY
@estrada53

Hi everyone. I've had Meniere's since 1992 when I was 39 years old. It caused years of episodes, vertigo and hours of regurgitation. I would literally crawl to the bathroom, because I couldn't walk. I was given diazepam to calm the vertigo, along with nausea medication and all to no avail. I had an episode while driving 60 miles an hour on Lake Shore Drive in Chicago. Nearly killed myself and other folks. Then I stopped using caffeine, lowered my sugar intake and went all low-sodium. I have not had an episode in over 12 years. I do have tinnitus - the ringing in my right ear, where I am now deaf. I wear bi-cross hearing aids. I have tried Lipo-Flavonoid - available at most pharmacies and at Target, etc and online. I did notice a decrease in the ringing. Rehab absolutely worked and I kept the pictures of the exercises on my inside cupboard doors for many years. Whenever I would begin to "feel" the onset of an episode I would begin the exercises. Retraining the brain. Hope this helps someone.

Jump to this post

I have had Meniere's since my early 40's (now 58). The severe dizziness and nausea has subsided but I have lot almost all of the hearing in that ear. Trying a one sided hearing aid but still not able to discern sound location and speech clarity. Are you having luck with your bi-cross hearing aids? Meniere's has a lot of challenges to work through. I had lost a lot of hearing in my affected ear and then had a sudden onset of almost all hearing about a year and half ago. This has really been a challenge. Feel disoriented and slightly uncoordinated. Hard to explain. Open for suggestions.

REPLY
@hopeful33250

Hello All:
Regarding the problem with tinnitus and the stuffy-ear feeling, I have found that taking NSAID (meds like ibuprofen, Advil, aspirin, Motrin, etc.) tend to make the symptoms much worse (however, I don't think that they necessarily cause them). Because of a lot of arthritis pain I just use one Advil in the evening to help reduce the pain/inflammation while I sleep but if I take more than one a day, my hearing gets worse (feels like my ear canal is filled with cotton) and the ringing in my ears increases in volume.
Anyone else found this to be true?

Jump to this post

Interesting. Some of the NSAIDS can cause mild to moderate fluid retention. I wonder if that is why it makes your symptoms worse. I cannot tolerate NSAIDS for different reasons. Started taking turmeric 500 mg daily for joint pain. It is working pretty good. Not as good as ibuprofen but pretty good. You might try that.

REPLY

I have been reading and following this thread. I have a friend with Meniere's. I am learning from the comments. I have no hearing issues but know many that do.

REPLY
@grannyjack

Interesting. Some of the NSAIDS can cause mild to moderate fluid retention. I wonder if that is why it makes your symptoms worse. I cannot tolerate NSAIDS for different reasons. Started taking turmeric 500 mg daily for joint pain. It is working pretty good. Not as good as ibuprofen but pretty good. You might try that.

Jump to this post

Interesting thought, @grannyjack

REPLY

Occlusion is a word used to describe the effect a hearing aid has for some people when it is an in-ear type device. It seems to cause a "bucket over the head" type sensation - stuffed up ears, if you will. However, I have the same symptoms without a hearing aid and I have researched all over the internet and can find no information. Even tried hearing associations, etc. It's interesting that others seem to have a similar problem. I'm convinced there is a connection between my occlusion symptoms and Meniere's disease.

REPLY
Please sign in or register to post a reply.