Meet others living with Head & Neck Cancer: Introduce yourself

Posted by Colleen Young, Connect Director @colleenyoung, Nov 13, 2017

Welcome to the Head and Neck Cancer group.
This is a welcoming, safe place where you can meet other people who are living with head and neck cancer. Let’s learn from each other and share experiences from diagnosis through treatment and coping with symptoms and recovery challenges.

As you know, head and neck cancer is the general term for a broad group of cancers that begin in the head and neck region. This include oropharyngeal cancer, hypopharyngeal cancer, laryngeal cancer, lip and oral cavity cancer, nasopharyngeal cancer, paranasal sinus and nasal cavity cancer, salivary gland cancer, squamous cell neck cancer or ameloblastoma.

Let’s get to know one another. Why not start by introducing yourself? What type of cancer have you been diagnosed with?

Interested in more discussions like this? Go to the Head & Neck Cancer Support Group.

sarahbee56 | @sarahbee56 | 4 hours ago

I’ve been diagnosed with Chondroblastic Osteosarcoma of the left maxilla. So rare! 😭

Not quite two weeks ago I had a partial maxillectomy and a temporary obturator placed. The lump on my gum started growing last fall but was thought to be irritation from wearing Invisalign. In early March I had an infection in that area which kicked off a shocking progression of dental visits culminating in a biopsy and then on to an ENT surgeon and all the usual preliminary scans and tests, then, because the tumor was very small, surgery. Unfortunately the pathology report says “tumor present at margins” so now I’m waiting to see where this nightmare goes next. I still can’t believe this is happening.