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DiscussionMeet others living with Head & Neck Cancer: Introduce yourself
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Replies to "Hi. I'm Christian. I had neck and throat back in 2011 and was treated with radiation..."
@cgoins1031 Hi Christian. My experience was in 2006. Little information was available back then on what we would have to deal with for aftereffects of radiation. With syncope, a possible culprit is baroreflex failure, something I've been dealing with for years. A large percentage of people who've had radiation of the neck are likely to experience this. I've posted issue elsewhere, but a quick run-down is this. Radiation hardens the blood vessels, making it difficult for your baroreceptors to detect blood pressure variations leading to wild swings of BP readings. There is no cure, so it's a matter of treating the symptoms of hypertension/hypotension to improve quality of life. I've posted the protocol I've been using under baroreflex failure. It isn't perfect, but at least I feel like I have some control. I wish you well.
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@cgoins1031 Hello Christian and welcome. Is your diagnosis a Baroreflex disorder? I have seen others with this issue and it seems to be difficult to find medical experts to deal with this. Travel to a large medical center may be necessary. Can your PCP or oncologist give you a referral? The Mayo system is a good place to look. I hope that others like @56tburd can chime in and share their information.