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Profile picture for sarahbee56 @sarahbee56

I’ve been diagnosed with Chondroblastic Osteosarcoma of the left maxilla. So rare! 😭

Not quite two weeks ago I had a partial maxillectomy and a temporary obturator placed. The lump on my gum started growing last fall but was thought to be irritation from wearing Invisalign. In early March I had an infection in that area which kicked off a shocking progression of dental visits culminating in a biopsy and then on to an ENT surgeon and all the usual preliminary scans and tests, then, because the tumor was very small, surgery. Unfortunately the pathology report says “tumor present at margins” so now I’m waiting to see where this nightmare goes next. I still can’t believe this is happening.

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Replies to "I’ve been diagnosed with Chondroblastic Osteosarcoma of the left maxilla. So rare! 😭 Not quite two..."

@sarahbee56 I pray all will go well for you. I have an obturator and it is not fun. Luckily my SCC surgery which was a right maxillectomy, had clear margins. However since there was invasion of bone, I had radiation. It has been 2 years now. I had to have 5 teeth removed to get to the tumor and have the hole in my palate. Luckily I was sent to U of M which is over 2 hrs away. Excellent care team. I was told if I had it done in Midland Mi (close to home) it would have taken months and there is no one that could do it.