Meet fellow Caregivers - Introduce yourself

Welcome to the Caregivers group on Mayo Clinic Connect.
Caring for someone can be rewarding, but it is also very demanding and can be isolating. Let’s use this space to connect with other caregivers, share experiences, talk frankly about the tough stuff without judgement and to provide a virtual shoulder to lean on.

I’m Colleen, and I’m the moderator of this group, and Community Director of Connect. I look forwarding to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.

Grab a cup of tea, or beverage of you choice, and let’s chat. Why not start by introducing yourself?

@shortshot80

shortshot80) Nancy Well, they did not do any surgery, he came home and told me that they are going to do the surgery next week on Tuesday) hopefully the small baby catheter will not plug or cause him any problems. Another small thing happened yesterday. Have a pretty large tree that has a enormous amount of leaves on it. Well the large limb in the middle of the tree.The wind yesterday blew pretty hard and the weight of the limb swaying just broke>
Wow! I needed another lemon to work with. Sometimes so many lemons drop out of the sky, that you can’t make lemonade!I’m going to just rest today, I have a small head ache, so will just watch tv. Hey guys/gals Thanks for listening and for all the prayers. Nancy

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@shortshot80 Hi Nancy: Congratulations on finishing your radiation! I am sorry to hear of your husband’s struggles – your plate is certainly full. You are continually blessed to have children who can be involved in your life and help you when the going gets tough. Best wishes and prayers are going out your way this morning! Teresa

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@shortshot80

shortshot80) Nancy Well, they did not do any surgery, he came home and told me that they are going to do the surgery next week on Tuesday) hopefully the small baby catheter will not plug or cause him any problems. Another small thing happened yesterday. Have a pretty large tree that has a enormous amount of leaves on it. Well the large limb in the middle of the tree.The wind yesterday blew pretty hard and the weight of the limb swaying just broke>
Wow! I needed another lemon to work with. Sometimes so many lemons drop out of the sky, that you can’t make lemonade!I’m going to just rest today, I have a small head ache, so will just watch tv. Hey guys/gals Thanks for listening and for all the prayers. Nancy

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@shortshot80
Hi Nancy:
I’ve been thinking about you and your husband. Are you both doing better?
Teresa

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@shortshot80

shortshot80) Nancy Well, they did not do any surgery, he came home and told me that they are going to do the surgery next week on Tuesday) hopefully the small baby catheter will not plug or cause him any problems. Another small thing happened yesterday. Have a pretty large tree that has a enormous amount of leaves on it. Well the large limb in the middle of the tree.The wind yesterday blew pretty hard and the weight of the limb swaying just broke>
Wow! I needed another lemon to work with. Sometimes so many lemons drop out of the sky, that you can’t make lemonade!I’m going to just rest today, I have a small head ache, so will just watch tv. Hey guys/gals Thanks for listening and for all the prayers. Nancy

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Hi Teresa, Bob had bladder surgery last Tuesday, the doc also put in a larger catheter. That is helping quite a bit. Thank Heaven out oldest son who lives with us, has also had urology problems can take care of dad. I don’t know much about those types of problems. Me I’m still tired, once in a while a nap works. Mostly I putter around the house, wash clothes, vacuum some. I seem to keep busy all day. Have had a sore foot for the past month. Been wearing a “boot” for six weeks, not helping much. Doc thinks it is coming from my back. So
more tests will be coming. I finished my radiation June 16, have not heard from my doc’s on what will happen next. Tomorrow a lady friend I have known since 1968 will be coming to spend a couple days with me. I kid her some, telling her we will play “tiddly winks” in bed. She will sleep with me and my little dog Abbi. Last time she stayed Abbi checked her out up one side then the other and then just laid down beside me and we all slept. Interesting she is a late sleeper, I’m early. See how that goes. This weekend our little town has a parade, fish fry, novelty items for sale. Our town is busy for the weekend. August 21 iseclipse and our town is in the middle of the proposed path. We are a uncorporated small town. Year round total of people is about 1100.00. The powers that “be” in the County told us that the county is expecting about over one million people. Amazing! Be sure to get all your groceries on Wednesday or Thursday and then stay home. Won’t be able to go anywhere much less buy anything. Going to be interesting to say the leased…. “shortshot80” Nancy

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@shortshot80

shortshot80) Nancy Well, they did not do any surgery, he came home and told me that they are going to do the surgery next week on Tuesday) hopefully the small baby catheter will not plug or cause him any problems. Another small thing happened yesterday. Have a pretty large tree that has a enormous amount of leaves on it. Well the large limb in the middle of the tree.The wind yesterday blew pretty hard and the weight of the limb swaying just broke>
Wow! I needed another lemon to work with. Sometimes so many lemons drop out of the sky, that you can’t make lemonade!I’m going to just rest today, I have a small head ache, so will just watch tv. Hey guys/gals Thanks for listening and for all the prayers. Nancy

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@shortshot80 Thanks for updating us on you and your husband. I’m glad to hear that your husband’s surgery was helpful to him. Your son’s presence continues to be a blessing to you – that is so good. I’m sure that you will have a great weekend with your friend. I hope you get a glimpse of the eclipse and enjoy the weekend. Teresa

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Hello! Welcome

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@shortshot80

shortshot80) Nancy Well, they did not do any surgery, he came home and told me that they are going to do the surgery next week on Tuesday) hopefully the small baby catheter will not plug or cause him any problems. Another small thing happened yesterday. Have a pretty large tree that has a enormous amount of leaves on it. Well the large limb in the middle of the tree.The wind yesterday blew pretty hard and the weight of the limb swaying just broke>
Wow! I needed another lemon to work with. Sometimes so many lemons drop out of the sky, that you can’t make lemonade!I’m going to just rest today, I have a small head ache, so will just watch tv. Hey guys/gals Thanks for listening and for all the prayers. Nancy

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Hi Nancy @shortshot80

I’ve been thinking about you. The folks in your town must be gearing up for the eclipse!

How are you and your husband doing? As I remember your radiation treatments ended in June. Are you beginning to get your energy back? Also, last we heard, your husband had bladder surgery. Has he recovered from that and doing better?

Teresa

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@shortshot80

shortshot80) Nancy Well, they did not do any surgery, he came home and told me that they are going to do the surgery next week on Tuesday) hopefully the small baby catheter will not plug or cause him any problems. Another small thing happened yesterday. Have a pretty large tree that has a enormous amount of leaves on it. Well the large limb in the middle of the tree.The wind yesterday blew pretty hard and the weight of the limb swaying just broke>
Wow! I needed another lemon to work with. Sometimes so many lemons drop out of the sky, that you can’t make lemonade!I’m going to just rest today, I have a small head ache, so will just watch tv. Hey guys/gals Thanks for listening and for all the prayers. Nancy

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Hi everyone, Things have been going half way smooth. A few ups & downs as usual. Bob is doing much better.
He is eating a little better too. I try to have been trying to have somewhat healthy meals. Breakfast this morning
a bagquete cut in half toasted, buttered along with a small dish of cherries. Lunch a half tuna sandwich mixed
with some Mayo, onion spread on toasted bread along with a tomato and left over salad. With a few potato chips.
Me I am still tired a lot. But maybe I am doing too much again. Today…Saturday 8/12 I took out a cornbeef out of the
freezer and put it in the crock pot about 10am. Bob was in the shower, I changed his bedding, found the clothes he wanted
to wear. Put all the clothes in the wash. unloaded the dishwasher. Put all the dishes away. Loaded breakfast dishes. Bob Jr
came home and I fixed him a sandwich of tuna. Clothes are done. Pulled the clothes from the dryer, took them into the
bedroom and folded and put them away. When Bob jr came home he brought foudr more crab for me to clean and pick.
I have a nice big bowl for us to share before dinner. Stopped and had a cup of tea. Then to the computer. It is just 2pm.
And I’m tired. Yesterday company showed up. at dinner time. 5-6ish I had fixed a shrimp Louie. Boiled eggs, salad.
I make my own thousand island dressing for the shrimp or crab salad. 4-5 boiled eggs. Peeled & grated. Sweet pickles
grated. Mayo, mix well, add 2-3 tablespoons lemon juice. Add 2-3 tablespoons sweet pickle juice and mix well. Then
add catsup11/2 to 3/4 cup. Mix well and put in refrigerator till time to serve the salad. Earlier I had gone to the store, they
had Marion berry pie on sale.. Ummm good for desert. We visited until about 8:30 PM. He left and I went to bed. Got up
this morning about 6:30 and now It is 3:15 and I’m tired. Maybe a small nap will help. Shortshot80.   Nancy

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@shortshot80

shortshot80) Nancy Well, they did not do any surgery, he came home and told me that they are going to do the surgery next week on Tuesday) hopefully the small baby catheter will not plug or cause him any problems. Another small thing happened yesterday. Have a pretty large tree that has a enormous amount of leaves on it. Well the large limb in the middle of the tree.The wind yesterday blew pretty hard and the weight of the limb swaying just broke>
Wow! I needed another lemon to work with. Sometimes so many lemons drop out of the sky, that you can’t make lemonade!I’m going to just rest today, I have a small head ache, so will just watch tv. Hey guys/gals Thanks for listening and for all the prayers. Nancy

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Hi Nancy @shortshot80

Thanks for checking in with us and updating us on you and your husband. You sound like an excellent caregiver for your hubby!

If I knew where you lived, I’d probably stop in to eat – it sounds like you have some amazing recipes!!

I am sorry to hear that your fatigue is still a problem, but it is probably quite natural given all of the treatments you have been through. Naps and tea sound like good breaks when fatigue hits.

Teresa

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@shortshot80

shortshot80) Nancy Well, they did not do any surgery, he came home and told me that they are going to do the surgery next week on Tuesday) hopefully the small baby catheter will not plug or cause him any problems. Another small thing happened yesterday. Have a pretty large tree that has a enormous amount of leaves on it. Well the large limb in the middle of the tree.The wind yesterday blew pretty hard and the weight of the limb swaying just broke>
Wow! I needed another lemon to work with. Sometimes so many lemons drop out of the sky, that you can’t make lemonade!I’m going to just rest today, I have a small head ache, so will just watch tv. Hey guys/gals Thanks for listening and for all the prayers. Nancy

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shortshot (Nany)
Our town is pretty small, about almost 1000 full time people. Our County is expecting over one million people to be here for the eclipse, and our town doesn’t have enough of anything to accommodate that many people. A meeting of all the officials in the County, we were told we should go to the store and purchase all we will need for a week (maybe longer) then go home and stay there. The grid lock of so many cars (people) will just overwhelm our town. Another town south of us about 20 miles is a whole lot bigger than we are (rumor ) has that the police will be on bikes in order to be able to get around (because of grid lock) I am praying for fog! People will leave to try to get ukp on higher ground. People want to camp on the beach, but we expect a really low tide and to comple the tide will be a NINE foot high tide. If you sleep on the beach you will get wet. Bob is doing much better as far as the surgery went.Doing ok otherwise. He is 89 will be 90 in October. We also will celebrat 67 years of marriage October 21. Lots of ups & downs over the years. Nancy

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@shortshot80

shortshot80) Nancy Well, they did not do any surgery, he came home and told me that they are going to do the surgery next week on Tuesday) hopefully the small baby catheter will not plug or cause him any problems. Another small thing happened yesterday. Have a pretty large tree that has a enormous amount of leaves on it. Well the large limb in the middle of the tree.The wind yesterday blew pretty hard and the weight of the limb swaying just broke>
Wow! I needed another lemon to work with. Sometimes so many lemons drop out of the sky, that you can’t make lemonade!I’m going to just rest today, I have a small head ache, so will just watch tv. Hey guys/gals Thanks for listening and for all the prayers. Nancy

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@shortshot80

Congratulations on your upcoming anniversary!

Teresa

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I’m Diana and caring for a husband diagnosed with Frontal Temporal Dementia (FTD). He is 75 and was diagnosed 4 years ago when we noticed his aphasia (inability to find the right word). Since then his communication has deteriorated significantly – finding the right words is a nightmare, he can only read very simple words and only write his name. Both his short and long term memories are being affected and now his balance is becoming precarious – all part of this type of dementia. The “up” side of this dementia: I am becoming VERY good at charades (the word Yellow + sweeping hand motion = banana, FYI).
PLUS my mother was diagnosed with early-stage Alzheimer’s about 3 months ago, but we had been seeing changes for the past 2 years.
Essentially, I just needed a place to belong, with people who understand the frustrations.

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@dianaodecatur

I’m Diana and caring for a husband diagnosed with Frontal Temporal Dementia (FTD). He is 75 and was diagnosed 4 years ago when we noticed his aphasia (inability to find the right word). Since then his communication has deteriorated significantly – finding the right words is a nightmare, he can only read very simple words and only write his name. Both his short and long term memories are being affected and now his balance is becoming precarious – all part of this type of dementia. The “up” side of this dementia: I am becoming VERY good at charades (the word Yellow + sweeping hand motion = banana, FYI).
PLUS my mother was diagnosed with early-stage Alzheimer’s about 3 months ago, but we had been seeing changes for the past 2 years.
Essentially, I just needed a place to belong, with people who understand the frustrations.

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Yes, this is the right place to come to belong. I’m caretaker for my sister who so far has the diagnosis of mild dementia. We are having her bathroom equipped with a walk in shower by taking out the bathtub/shower. This group has helped and supported me in figuring out her pain reception. It is on going …….. Glad you joined us. The others will help you more than I will as I am new to this and am on the early side of care giving.

Liked by Lisa Lucier

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@dianaodecatur

I’m Diana and caring for a husband diagnosed with Frontal Temporal Dementia (FTD). He is 75 and was diagnosed 4 years ago when we noticed his aphasia (inability to find the right word). Since then his communication has deteriorated significantly – finding the right words is a nightmare, he can only read very simple words and only write his name. Both his short and long term memories are being affected and now his balance is becoming precarious – all part of this type of dementia. The “up” side of this dementia: I am becoming VERY good at charades (the word Yellow + sweeping hand motion = banana, FYI).
PLUS my mother was diagnosed with early-stage Alzheimer’s about 3 months ago, but we had been seeing changes for the past 2 years.
Essentially, I just needed a place to belong, with people who understand the frustrations.

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Hello @dianaodecatur Nice to e-meet you here, even under these circumstances. Glad you found Connect! I am Scott and I was the primary caregiver for my wife for 14 years as she fought brain cancer, with many dementia-like symptoms as well as being a secondary caregiver for my MIL who also had FTD. I found Connect while fighting the isolation that so often accompanies caregiving.

Here you will find many fellow caregivers who have broad shoulders, open ears, and are a nonjudgmental group. We also often share hints and tips we have learned from each of our experiences — and yes we will understand the massive sense of frustration that often comes with caring for a loved one with dementia.

Glad to have you here!

I send you strength, courage, and peace!

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@dianaodecatur

I’m Diana and caring for a husband diagnosed with Frontal Temporal Dementia (FTD). He is 75 and was diagnosed 4 years ago when we noticed his aphasia (inability to find the right word). Since then his communication has deteriorated significantly – finding the right words is a nightmare, he can only read very simple words and only write his name. Both his short and long term memories are being affected and now his balance is becoming precarious – all part of this type of dementia. The “up” side of this dementia: I am becoming VERY good at charades (the word Yellow + sweeping hand motion = banana, FYI).
PLUS my mother was diagnosed with early-stage Alzheimer’s about 3 months ago, but we had been seeing changes for the past 2 years.
Essentially, I just needed a place to belong, with people who understand the frustrations.

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Thank you for the encouragement! Frustration and isolation are the truly hard parts and I believe caregivers understand that best!

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@shortshot80

shortshot80) Nancy Well, they did not do any surgery, he came home and told me that they are going to do the surgery next week on Tuesday) hopefully the small baby catheter will not plug or cause him any problems. Another small thing happened yesterday. Have a pretty large tree that has a enormous amount of leaves on it. Well the large limb in the middle of the tree.The wind yesterday blew pretty hard and the weight of the limb swaying just broke>
Wow! I needed another lemon to work with. Sometimes so many lemons drop out of the sky, that you can’t make lemonade!I’m going to just rest today, I have a small head ache, so will just watch tv. Hey guys/gals Thanks for listening and for all the prayers. Nancy

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shortshot80 Nancy) Hi everyone, life has been mostly slow this summer. I am still tired, did go to Kidney doc, kidneys are not at their full capacity, so drinking more water. I have been working on my book,,that I have wanted to write for over umteen years. So finally getting something done on it. Hope to just carry on with it with no deadline to finish. I was one of five gals to fish with their husbands in 1971. So will see how things turn out. Bob is doing much better. He has been asked to go on a “Hero” flight for world war 2 veteran’s. Bob jr is also going as caregiver. What a nice surprise. “So as the world turns” Several checks on my oxygen has been low so keeping a careful watch on that. Have a great day. Nancy

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