Medical care for Grover's disease: How do you find a good doctor?

Posted by wen1011 @wen1011, Jul 2, 2021

I’m newly diagnosed with Grovers Disease. None of the providers in my area seem to know how to treat it. Does anyone have advice on how to connect with a good provider?

Interested in more discussions like this? Go to the Skin Health Support Group.

Fruit smoothies with fresh cilantro. Read a number of the past blogs. There is more knowledge in them than any doctor can provide. Pay attention to “garden junkies” she is incredibly enlightening.

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Hi @wen1011, welcome. It can be a challenge to find a provider familiar with Grover's disease. @kimass1 @ccamargo82 @nodgabnoj @mnitchke and @gardeningjunkie may have some tips on how to find a knowledgeable doctor.

Unfortunately, Grover's disease — also known as transient acantholytic dermatosis - has no cure. To decrease the effects of Grover's disease, the first line of treatment is to avoid factors that can cause and aggravate the condition, such as high environmental temperatures, significant sweating, and dry skin. While no one treatment reliably relieves Grover's disease in all cases, effective therapies are available.

Fellow members share a lot of information in these related discussions
– Grover's Disease: What works to help find relief? https://connect.mayoclinic.org/discussion/grovers-disease-247ffc/
- What is Grover's disease of the skin? https://connect.mayoclinic.org/discussion/what-is-grovers-skin-disease/

Wen, Have you been referred to a dermatologist?

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I,m going on 7 yr,s with this crap, I guess I could call it the 7 year itch. I,ts really not funny I just turned 80 I still work 2 days a week this site is the only one that I go to. I,ll try anything that I see that will releave the pain and itch. But so far my method is working for me. But I,ll try something new if it does a better job. I feel sorry for the ladies that get this . I,ts got to be tough on them. I wishI could say that it goes away, And hopefully it does for some people. Try Inverst the cream not the spray it has helped me, I use a 3 inch paint roller for my back and legswhen you get ready for bed, but make sure that it,s dry it can be messy It,s not a cure but at least you will be able to sleep God bless and take care. GDgd

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Saw what appeared to be a good reference for doctors knowledgeable about GD on the Facebook Grovers Disease Group page. It is on my other computer so I can't get to it right now.

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