1. < MAC & Bronchiectasis

Low energy

Posted by britchic @britchic, Oct 13 2:09pm

Diagnosed with MAC over 18 months ago and was put on the big 3. After 5 months I was taken off riamprin due to having adverse reaction to it. Continued on with 2 antibiotics only to be told I needed to add arikacye . Since being on arikayce I’m more breathless and have zero energy wanting to sleep all the time. I have no ambition to do anything and if I’m honest I’m pretty depressed even though I take a low dose of antidepressant. I have a very supportive husband who works long hours and then comes home and cooks dinner which makes me feel guilty and so the vicious cycle starts again. Anyone else feel like this?

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irene5 Irene Estes | @irene5 | Oct 15 11:04am

Garden of Life Dr. Formulated once daily women’s - no refrigeration needed.

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pacathy | @pacathy | Oct 15 1:02pm
In reply to @sueinmn "@imatcha I really think that in the past, before the importance of nebulizing saline, daily airway..." + (show)
@sueinmn

@imatcha I really think that in the past, before the importance of nebulizing saline, daily airway clearance and exercise, infections recurrent much more often.

But, many of us here have established routines that keep us healthy. I stopped antibiotics 58 months ago, and feel as healthy as I ever have in the past 8 years.
The gold standard will be my CT tomorrow and repeat Pulmonary function test (the last one was done while I was at the end of Covid.) Not sure if I will do a sputum culture as I am not very productive.

I would encourage you to use your neb a couple times a week with saline - there is coming to be more evidence that it helps. I do mine 2-3x week, and usually I exercise as my form of airway clearance. A brisk walk or 30 minutes of yoga bring up more mucus for me than any other technique.

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Good luck at appointments, Sue.

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helen1000 | @helen1000 | Oct 21 9:23am

@irene5 Garden of life probiotics don't specify the strain name, so i don't use them any more. I prefer antibiotics with specific strain name and high CFU like 20 billion and above. Seed is one of them I used. Green package , glass container, 24 specific strain for heart health, woman health, digestive health and mental health.

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2 replies
irene5 Irene Estes | @irene5 | Oct 21 9:28am
In reply to @helen1000 "@irene5 Garden of life probiotics don't specify the strain name, so i don't use them any..." + (show)
@helen1000

@irene5 Garden of life probiotics don't specify the strain name, so i don't use them any more. I prefer antibiotics with specific strain name and high CFU like 20 billion and above. Seed is one of them I used. Green package , glass container, 24 specific strain for heart health, woman health, digestive health and mental health.

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I have heard that one is good. Garden of Life was recommended by my ID doctor. Irene

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1 reply
helen1000 | @helen1000 | Oct 21 9:37am
In reply to @irene5 "I have heard that one is good. Garden of Life was recommended by my ID doctor...." + (show)
@irene5

I have heard that one is good. Garden of Life was recommended by my ID doctor. Irene

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My dietitian also recommended Garden of Life. But I find other brands and replace it. I also use Cultrelle and Florastor. But if there is lactose intolerant please be careful. I feel I have heart burn with taking Florastor. I believe I have low grade lactose intolerance but I can drink yogurt.

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britchic | @britchic | Oct 21 9:48am
In reply to @helen1000 "@irene5 Garden of life probiotics don't specify the strain name, so i don't use them any..." + (show)
@helen1000

@irene5 Garden of life probiotics don't specify the strain name, so i don't use them any more. I prefer antibiotics with specific strain name and high CFU like 20 billion and above. Seed is one of them I used. Green package , glass container, 24 specific strain for heart health, woman health, digestive health and mental health.

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It’s called seeds?

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1 reply
irenea8 | @irenea8 | Oct 22 8:34am

I see a number of probiotic options under Garden of Life brand and they ALL list the strains.

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1 reply
helen1000 | @helen1000 | Oct 22 10:55am
In reply to @irenea8 "I see a number of probiotic options under Garden of Life brand and they ALL list..." + (show)
@irenea8

I see a number of probiotic options under Garden of Life brand and they ALL list the strains.

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@irenea8, it has to list the name plus a number , for example, lacxxxx Plantarum RSB11. Garden of life only give the name, not the number. That is what I mean. Hope this explains,
Helen

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1 reply
helen1000 | @helen1000 | Oct 22 10:57am

For energy level - if you put on a lot of weight, that will help with energy. Our body uses a lot of protein to fight bacteria, so we need to continue to gain weight, esp we are already under weight. For woman above 60, BMI over 24 is recommended. We are slender type, so this makes us prone to bacterial infection!

I find myself able to gain weight after removing outside food, wheat and flaxseed from my diet. They always contribute to extra stool for me! I also like fruits a lot right now perhaps the antibiotics consumed too much vitamins in my body!

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