1. < MAC & Bronchiectasis

Low energy

Posted by britchic @britchic, Oct 13 2:09pm

Diagnosed with MAC over 18 months ago and was put on the big 3. After 5 months I was taken off riamprin due to having adverse reaction to it. Continued on with 2 antibiotics only to be told I needed to add arikacye . Since being on arikayce I’m more breathless and have zero energy wanting to sleep all the time. I have no ambition to do anything and if I’m honest I’m pretty depressed even though I take a low dose of antidepressant. I have a very supportive husband who works long hours and then comes home and cooks dinner which makes me feel guilty and so the vicious cycle starts again. Anyone else feel like this?

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frankie160 | @frankie160 | Oct 26 10:36pm
In reply to @blm1007blm1007 "Frankie I believe it is because I do not have a cavity with the Mycobacterium avium..." + (show)
@blm1007blm1007

Frankie
I believe it is because I do not have a cavity with the Mycobacterium avium complex., which in itself has been showing as a mild infection.
Truth, I'm not sure if she, the pulmonologist, told me why no Rifambin. She did mention that she was not putting me on it. She may have mentioned why she was not putting me on it and I may have missed it, however, I don't think she did. If she didn't tell me I foolishly failed to ask her why not. She is a practicing spcialist/researcher for BE....very knowledgeable and well known in her specialty of BE. I had two areas of improvement via the CScan and one new area of mucus plugging in the lower left lobe. Hope to continue with improving and no more negative results of more mucus plugging. I shall see how it all goes.
Good report for you....off the meds. Congrats.
Barbara

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Hi BLM1007!
Thanks for your response.
I seem to remember that there were some recent studies that may have shown Rafambin as not crucial.
I was just curious.
Thanks for your good wishes and good luck to you!
Frankie@160

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