Looking for other experiences with Aricept.

Posted by DanL @tunared, Apr 3 10:24pm

My wife is ending her 2nd month on Aricept (1 month on 5mm and 1 month on 10mm) and wants to stop it because of the (bad) dreams and hallucinations she has experienced. She has never had these problems before Aricept. Anyone else have bad experiences with Aricept? It does not appear to slow down her MCI decline. We meet with her Neurologist next week and will be discussing the problems with him. We are just interested in anyone else who experienced problems and did they continue with the drug or did they stop it.
We will also be asking the neurologist about the current study at the Geisel school (Dartmouth medical school) and the effectiveness of L-Serine.
All comments would be appreciated.

@colleenyoung

I wonder if @bczachery @debbraw @joancampy @jal333 have experience with galantamine.
Dan, while we wait for others to chime in, I think you might appreciate this expert interview on the MCI blog.

– To Medicate or Not to Medicate in MCI; That is the Question https://connect.mayoclinic.org/blog/living-with-mild-cognitive-impairment-mci/newsfeed-post/to-medicate-or-not-to-medicate-for-mci-that-is-the-question/

Jump to this post

Colleen, that was an excellent article and much appreciated! Thank you!

REPLY

an update, my wife has decided to stop the galantatime. she has been off it for about 5 days now. Not sure how long it will take to leave her system but some of the side effects have lessened (confusion, etc). However, now she is being treated for something called Pseudoexfoliative, which causes blurry vision and requires eye drops a few times a day. it causes excessive eye pressure and can lead to more serious vision problems. Md's do not think, Pseudoexfoliative is caused by MCI but cannot provide a definitive answer. She can't remember the eye drops so it's something I have to keep track of but that's ok. MCI is just an amazing condition and I have not met anyone who can say anything definitive about the condition, except for: If you have seen many examples of MCI, you still have only seen ONE example.
Thanks everyone, for being there and trying to help.

REPLY

Sorry I meant nambia

REPLY
@colleenyoung

I wonder if @bczachery @debbraw @joancampy @jal333 have experience with galantamine.
Dan, while we wait for others to chime in, I think you might appreciate this expert interview on the MCI blog.

– To Medicate or Not to Medicate in MCI; That is the Question https://connect.mayoclinic.org/blog/living-with-mild-cognitive-impairment-mci/newsfeed-post/to-medicate-or-not-to-medicate-for-mci-that-is-the-question/

Jump to this post

I am not familiar with galantamine. My partner has taken a a few meds for his MCI and currently is on memantine. He has issues with excess salivation. One day, one drug at a time in a search for help.

REPLY

Every person reacts differently but my beloved with LBD had hallucinations GO AWAY when he started on donepezil–the generic.

REPLY
@tamarab

Every person reacts differently but my beloved with LBD had hallucinations GO AWAY when he started on donepezil–the generic.

Jump to this post

My husband has issues with excessive salivation on donepezil. Unsure if taking it is helping or not at this point.

REPLY
@jal333

My husband has issues with excessive salivation on donepezil. Unsure if taking it is helping or not at this point.

Jump to this post

Hello: I am a LBD with Parkinsonism patient. I have had drooling problems for quit sometime. I also take donepezil. We arent sure if it is the donezepil contributing to it or just a natural progression of the diseases.
My neurologist did tell me if the dose is too high (no more than 10mg/day) there could be some worsening or the drooling.

How long has your husband been on donezepil?
For me it took a couple of weeks to feel results.

I’m curious to hear what the neurologist says as I also have similiar problems. Always good to know others experiences.

Peace
Larry H.

REPLY

My husband started Aricept 5mg about one month ago. So far, no side effects and MCI seems quite improved. He takes it at night and is more alert and engaged in the morning. He may go up to 10mg after his next appointment with the PA at the Neurologist’s practice.

REPLY

My wife started Aricept on Dec. 4, 2021; same dose regimen as you noted. She is still on this medication at 10 mg per day. Results have shown some improvement to MCI; no side effects; no bad dreams.

REPLY
@jal333

My husband has issues with excessive salivation on donepezil. Unsure if taking it is helping or not at this point.

Jump to this post

My wife has been taking donepizil since Dec. 4, 2021. No excessive salvation experienced.

REPLY

Aricept caused bad headaches for my husband, so the neurologist switched him to the Excelon patch. We started at 4.5…then the 9.4 (?) and next we go to the 13mg. It seemed to help for awhile. However, I do feel that the LBD is advancing and just wonder how many of these meds will become more of a hinderance than a help. He is still active in that he still drives (we know this will be ending one day but he did well on a 3 hour driving test is Jacksonville) mows the yard, vacuums, makes the bed, etc. But he was once the funniest person and now is quite withdrawn, is afraid to speak up in social situations, is very insecure in large settings, stares into space,, wants me with him 24/7, anxiety can pop up unannounced, and he is quite depressed,, etc. He is dependent for food, medications, reminders to shower, wear clean clothes, etc. It is an honor to be his best friend and helper and yet, it is an experience I wish was just a sad dream amd not reality.

REPLY
@teacher502

Aricept caused bad headaches for my husband, so the neurologist switched him to the Excelon patch. We started at 4.5…then the 9.4 (?) and next we go to the 13mg. It seemed to help for awhile. However, I do feel that the LBD is advancing and just wonder how many of these meds will become more of a hinderance than a help. He is still active in that he still drives (we know this will be ending one day but he did well on a 3 hour driving test is Jacksonville) mows the yard, vacuums, makes the bed, etc. But he was once the funniest person and now is quite withdrawn, is afraid to speak up in social situations, is very insecure in large settings, stares into space,, wants me with him 24/7, anxiety can pop up unannounced, and he is quite depressed,, etc. He is dependent for food, medications, reminders to shower, wear clean clothes, etc. It is an honor to be his best friend and helper and yet, it is an experience I wish was just a sad dream amd not reality.

Jump to this post

Hi,
In response to teacher502 I completely understand what you are going through. My husband has LBD and Parkinson’s and has the exact same symptoms. He doesn’t drive as he is far less active. He might do chores if I direct him on good days and he loves walking a little outside. He has less energy so he might be little further along but I understand the social withdrawal aspect. My husband is on Exelon capsules 4.5 twice daily and he hasn’t been able to take antidepressants as his stomach is very sensitive. What is your husband taking Aricept for?
Thank you, Rudy

REPLY
Please sign in or register to post a reply.