Share this:
zhana
@zhana

Posts: 2
Joined: Oct 13, 2018

Looking for a Nephrologist for a post transplant patient

Posted by @zhana, Sat, Oct 13 11:07am

I had a kidney transplant several months ago and have been getting blood tests (weekly) and evaluations (bi-weekly) at Mayo Clinic. The nephrologist I used pre-transplant does not seem to interested in continuing this (or anything similar) to this level of care. I had a fairly simple transplant from a living donor and I am doing very well. Can anyone suggest or recommend an appropriate physician, in my area (south Tempe, AZ) who is accepting new patients. Thanks so much for your help.

Liked by gingerw

REPLY

@zhana, I want to, first, congratulate you on your recent kidney transplant. And, I also want to send you a sincere Welcome to Connect. I am happy that you have joined the transplant discussion.
I am a liver/kidney recipient. My local (Kentucky) PCP monitors all of my health issues, and he can consult with Mayo if/when the need arises. My labs are drawn locally and sent to Rochester where I received my transplant. I do return to Rochester annually for my evaluation. I realize that we all have unique circumstances and health needs, so this might not apply to you
Has your transplant team suggested that you need to have a local nephrologist?

I second what @rosemarya said, I have a local Nephrologist and then go to Mayo annually (or more often if needed). The partnership between my local labs and specialists along with the team at Mayo works out well. I do not live in your area so I cannot suggest a dr. there.

@rosemary Thanks for the quick response. Yes the transplant team has suggested that I need an outside nephrologist. I live fairly close to Mayo Scottsdale, AZ and had the procedure done there but they are very busy with potential/new patients and like to have us go back to our pre-transplant nephrologist. Unfortunately as I noted in my previous post my per-transplant nephrologist is much more interested in working with people on dialysis than they seem to be in post transplant. The services they are proposing for me are significantly less than what Mayo recommends. As the transplant process has gone very well for me and Mayo does 300+ kidney transplants in Scottsdale every year, I want someone who will for the most part follow Mayo's protocols.

@jolinda seems to have the right setup and I was hoping that there would be someone from my area who could provide an appropriate recommendation. I have started to call around but all the offices say their nephrologists work with Mayo transplant patients (which is not the case with my own doctor). It is very frustrating to wait a month for an appointment only to find out they are not doing what we are looking for (the target seems to me to be pretty straight forward). I guess I need to work harder at getting a recommendation from the Mayo staff but they are very reluctant as they do not want to be seen as favoring one doctor or nephrology group.

Thanks for your input!

Liked by gingerw

@zhana

@rosemary Thanks for the quick response. Yes the transplant team has suggested that I need an outside nephrologist. I live fairly close to Mayo Scottsdale, AZ and had the procedure done there but they are very busy with potential/new patients and like to have us go back to our pre-transplant nephrologist. Unfortunately as I noted in my previous post my per-transplant nephrologist is much more interested in working with people on dialysis than they seem to be in post transplant. The services they are proposing for me are significantly less than what Mayo recommends. As the transplant process has gone very well for me and Mayo does 300+ kidney transplants in Scottsdale every year, I want someone who will for the most part follow Mayo's protocols.

@jolinda seems to have the right setup and I was hoping that there would be someone from my area who could provide an appropriate recommendation. I have started to call around but all the offices say their nephrologists work with Mayo transplant patients (which is not the case with my own doctor). It is very frustrating to wait a month for an appointment only to find out they are not doing what we are looking for (the target seems to me to be pretty straight forward). I guess I need to work harder at getting a recommendation from the Mayo staff but they are very reluctant as they do not want to be seen as favoring one doctor or nephrology group.

Thanks for your input!

Jump to this post

@zhana First off, congratulations on your new kidney! I would suggest you let Mayo know your difficulties finding a post transplant nephrologist. Perhaps they will cover you for the time it takes to find a new nephrologist that will follow their protocol. My husband was lucky in that he kept the same nephrologist pre and post transplant here in the Los Angeles area. I am sure Mayo would want your new nephrologist following their protocol so they would be willing to support you until that can happen. Good luck to you and let us know what you find out.
Ginger

@zhana

@rosemary Thanks for the quick response. Yes the transplant team has suggested that I need an outside nephrologist. I live fairly close to Mayo Scottsdale, AZ and had the procedure done there but they are very busy with potential/new patients and like to have us go back to our pre-transplant nephrologist. Unfortunately as I noted in my previous post my per-transplant nephrologist is much more interested in working with people on dialysis than they seem to be in post transplant. The services they are proposing for me are significantly less than what Mayo recommends. As the transplant process has gone very well for me and Mayo does 300+ kidney transplants in Scottsdale every year, I want someone who will for the most part follow Mayo's protocols.

@jolinda seems to have the right setup and I was hoping that there would be someone from my area who could provide an appropriate recommendation. I have started to call around but all the offices say their nephrologists work with Mayo transplant patients (which is not the case with my own doctor). It is very frustrating to wait a month for an appointment only to find out they are not doing what we are looking for (the target seems to me to be pretty straight forward). I guess I need to work harder at getting a recommendation from the Mayo staff but they are very reluctant as they do not want to be seen as favoring one doctor or nephrology group.

Thanks for your input!

Jump to this post

zhana, I think that I made my answer in haste, and it sounds misleading. I neglected to consider that I did not have need of a nephrologist prior to my kidney transplant that was due to acute kidney failure caused by my liver failure. I did have a GI for the liver, however.
You are absolutely correct in wanting to follow the protocol that Mayo has established for you. I am confident that you will find someone to meet that criteria.

@zhana, I want to drop in and ask how your are coming along with your recovery. As you continue your post transplant living, I want to invite you to join into any of our discussions. You are welcome to read and to join in anywhere. How can I help you?

Have you been able to find a local nephrologist yet?

Please login or register to post a reply.