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Living with LPSVS (long post-COVID vaccination syndrome)
Has anyone experienced long-covid symptoms from the vaccines. I have been searching for 10 months now for the cause of my severe fatigue. I have been sent to an ENT, a cardiologist, a hematologist and undergone so many tests/scans. My doc told me a few days ago that he is stumped. No idea. Come back in a month. I pace myself to get through a day. Is this LPCVS? Is there something to do besides pace oneself? Should I ever get another covid vaccine?
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https://pmc.ncbi.nlm.nih.gov/articles/PMC10659483/ (Post-Vaccination Syndrome: A Descriptive Analysis of Reported Symptoms and Patient Experiences After Covid-19 Immunization)
https://roy.house.gov/media/press-releases/rep-roy-re-introduces-legislation-remove-federal-liability-protections-covid (Rep. Roy Re-Introduces Legislation to Remove Federal Liability Protections for COVID-19 Vaccines)
https://www.midwesterndoctor.com/p/yale-proved-covid-vax-injury-exists?fbclid=IwY2xjawIkjc1leHRuA2FlbQIxMQABHZ0F7OYUE8NbA9G0BwLFLRJzQXxWzPIAvzzTocGpSAdZv2q57wCpBboskw_aem_PB9gjXMYN0vjQlrhwLroNA (Yale Just Proved COVID Vaccine Injury Exists and Spike Production Persists for Years Inside The Body)
Hope those help... and I will share the link to my personal story
(https://uncoverdc.com/2025/02/14/unseen-consequences-the-struggle-for-disability-among-vaccine-injured?fbclid=IwY2xjawInOpxleHRuA2FlbQIxMQABHSp2inlt2Tof5aPdeuX_wQjqugE1_4J34YafnmSzLdnCnF9TxkO0iUtLCw_aem_W3Ujava0LSxjTs8KpM6sMg)
Thank you for the links. As you indicated, people can access the VAERS site for reactions to vaccines and post their personal info. It is a useful site for scientists as well. As a scientist, I review and evaluate research papers. For example, your first link (below) does not contain results, just "yet to be well characterized" for 241 people that posted on the Yale forum. So, no conclusions, just possibilities. The second is a link to a congressman. The third is a .com site that likely was not written by a doctor based on the quality of the writing, mistakenly indicating that a Yale forum is "Yale Just Proved" anything, lack of either references or citations for figures, and the author's "return to good science" embrace of RF Kennedy Jr. who has no background in science. That said, I believe illnesses and vaccines can trigger autoimmune and other diseases in some people and I wish there was more directed research. I have celiac disease because I caught H1N1 15 years ago and it triggered my HLA DQ8 gene. About 40% of the population has this or HLA-DQ2, but it is dormant in all but ~1% of the population. I wish it was easier for disabled people to get SS disability and to have better support networks. I hope that Medicaid and SNAP are not cut, because there are too many people that are hurting and with minimal resources.
Introduction:
A chronic post-vaccination syndrome (PVS) after covid-19 vaccination has been reported but has yet to be well characterized.
Methods:
We included 241 individuals aged 18 and older who self-reported PVS after covid-19 vaccination and who joined the online Yale Listen to Immune, Symptom and Treatment Experiences Now (LISTEN) Study from May 2022 to July 2023. We summarized their demographics, health status, symptoms, treatments tried, and overall experience.