Long Covid Symptoms?

Posted by joffield @joffield, Mar 27 9:56am

Hello all, I am stopping by as I have been told I might end up seeing a Long Covid medical group soon. I don't know what is going on with my symptoms and I know each person is different.
Here is what I've experienced so far since getting COVID. I have had so many tests done with so many negative results, but some that have not.

Clinical history:

Has had issues since Covid in 2022

First started as kidney pain because it felt like kidney stones, felt like stabbing pain on his lower back and then progressed to having pain in pelvic area (squeezing feeling), blood in urine for 8 days no stones.

Then felt weak energy-wise, felt issues with energy and thinking straight.

Lost a lot of weight, +50lb over the past year, unprompted. Is having a lot of night sweats.

Then started having chest pain and got a heart cath and had bradycardia. Ended up with pacemaker. Cardiac surgeon prescribed Metoprolol for arrhythmia, changed settings in pacemaker to detect certain numbers. HR was spiking into the 220s while resting and drop into the 50's, HR now stays erratic 130 - upper 40's

Then his cataracts became worse and ended up getting cataract surgery. Had surgery Dec 2023.

In June-July 2024 developed a different pain at incision site of pacemaker. Had EMG of left arm here (August 16, 2024) that was ok. Has pain in that area and radiating down to left arm. Also has left sided neck pain particularly front left side. Brain fog / memory issues, blurry eyes

Then after August 2024 (after he had EMG) he developed numbness and tingling that started L arm moved to R arm then L left leg then right leg.

First started numbness and tingling and now burning, hurts down to the muscle and bone with feelings like electrical worms wiggling around. Distributions is L/R elbows down and L/R mid thigh down.

Has issues grabbing stuff, can't determine detail/texture, can't always figure out how much pressure he is putting on objects and has been dropping things.

Feet have turned gray for a week and a half. Hands do change colors once in a while.

Has some swelling once in a while mostly on Left leg from knee to ankle, veins will sometimes bulge

Legs go out once in a while. Feels like he "can't operate it".

Feels like it hurts to walk.

Face Left side twitches and spasms, affecting his throat/voice, issues swallowing, choked once in a while. This comes and goes.
Then got headaches, located bi frontotemporal more in R side.

No rashes

Endorses dry eyes and mouth.
Tinnitus bilaterally L>R. Feels like he can't hear well form R ear.
R>L vision blurriness

Has fallen a couple times, feels like balance off if tries to move too quick. Has fallen 7-8times. Not tripping or feet dragging.
Gets dizzy/lightheaded if stands up to quickly.

Feels bloated, loss of appetite

Feels cold from waist up all the time. Not having fevers to his knowledge. Hands and feet become icy cold

Has been having urinary incontinence issues. Every day.

Has issues with diarrhea, constipation, bowel incontinence

Broke his toe and nerve pain from that has persisted.

Pain from gallbladder surgery has not gone away. Also had pancreatitis.

Sleeping a lot through the day.

Breaks into coldsweats. Gets palpitations when it happens.
cards to review pacemaker check, BP is all over the place

He has seen several medical providers for all these issues without a clear indication of what is causing them. Has seen rheumatology due to a positive ANA however extensive workup has remained negative.

March 2025 Symptoms overall remain about the same, no new symptoms. Lyrica has improved pain from shoulder and chest area. Still has numbness and uncomfortable tingling on hands and feet. Triggered by activity.
bloodwork suggests prediabetes, it does run in family
Skin bx negative for sfn
Nasal lesion was a right maxillary sinus inverted papilloma. At that time we planned on getting amyloid genetic testing and referring to . Increased lyrica for pain management.

I had taken off from work june -oct 2024 , went back, now I'm at part time barely holding onto that because of pain and fatigue and these symptoms. It is mentally & physically the toughest thing I think I have tackled and still fighting.
Holding on by a thread, and hoping everyone else in a similar situation to be able to find relief someday!

Thank you for your time.

Interested in more discussions like this? Go to the Post-COVID Recovery & COVID-19 Support Group.

Since my last comment / post / rant that things (symptoms) have been the same "as in always active", some new ones and yet all the ones prior since the start of this, some more than others though based on external & or body temperature (this also changes the symptoms intensity I have found for myself). Old Dr's and a few new Dr's have added more meds and infusions for pain and "still" waiting for insurance to approve the spinal stimulator's trial to help alleviate this "F'N-PAIN". Ugh, sorry. Well, my 2nd skin biopsy results (2 different places) within a year have came back (yesterday) positive for Small Fiber Neuropathy. I'm still waiting to find out the type / subtype, treatment and the possible cause, but they are / have been calling it idiopathic for awhile (I say COVID). Even though in the last 2 weeks, I feel that I have been on a decline (friends and family brought it up to me first) that I feel like, my energy, fatigue, lack of sleep have gotten worse and have added a few new excruciating symptoms to boot. Keep looking, keep reminding, keep your heads up, we'll get thru it!

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