Long Covid Symptoms?
Hello all, I am stopping by as I have been told I might end up seeing a Long Covid medical group soon. I don't know what is going on with my symptoms and I know each person is different.
Here is what I've experienced so far since getting COVID. I have had so many tests done with so many negative results, but some that have not.
Clinical history:
Has had issues since Covid in 2022
First started as kidney pain because it felt like kidney stones, felt like stabbing pain on his lower back and then progressed to having pain in pelvic area (squeezing feeling), blood in urine for 8 days no stones.
Then felt weak energy-wise, felt issues with energy and thinking straight.
Lost a lot of weight, +50lb over the past year, unprompted. Is having a lot of night sweats.
Then started having chest pain and got a heart cath and had bradycardia. Ended up with pacemaker. Cardiac surgeon prescribed Metoprolol for arrhythmia, changed settings in pacemaker to detect certain numbers. HR was spiking into the 220s while resting and drop into the 50's, HR now stays erratic 130 - upper 40's
Then his cataracts became worse and ended up getting cataract surgery. Had surgery Dec 2023.
In June-July 2024 developed a different pain at incision site of pacemaker. Had EMG of left arm here (August 16, 2024) that was ok. Has pain in that area and radiating down to left arm. Also has left sided neck pain particularly front left side. Brain fog / memory issues, blurry eyes
Then after August 2024 (after he had EMG) he developed numbness and tingling that started L arm moved to R arm then L left leg then right leg.
First started numbness and tingling and now burning, hurts down to the muscle and bone with feelings like electrical worms wiggling around. Distributions is L/R elbows down and L/R mid thigh down.
Has issues grabbing stuff, can't determine detail/texture, can't always figure out how much pressure he is putting on objects and has been dropping things.
Feet have turned gray for a week and a half. Hands do change colors once in a while.
Has some swelling once in a while mostly on Left leg from knee to ankle, veins will sometimes bulge
Legs go out once in a while. Feels like he "can't operate it".
Feels like it hurts to walk.
Face Left side twitches and spasms, affecting his throat/voice, issues swallowing, choked once in a while. This comes and goes.
Then got headaches, located bi frontotemporal more in R side.
No rashes
Endorses dry eyes and mouth.
Tinnitus bilaterally L>R. Feels like he can't hear well form R ear.
R>L vision blurriness
Has fallen a couple times, feels like balance off if tries to move too quick. Has fallen 7-8times. Not tripping or feet dragging.
Gets dizzy/lightheaded if stands up to quickly.
Feels bloated, loss of appetite
Feels cold from waist up all the time. Not having fevers to his knowledge. Hands and feet become icy cold
Has been having urinary incontinence issues. Every day.
Has issues with diarrhea, constipation, bowel incontinence
Broke his toe and nerve pain from that has persisted.
Pain from gallbladder surgery has not gone away. Also had pancreatitis.
Sleeping a lot through the day.
Breaks into coldsweats. Gets palpitations when it happens.
cards to review pacemaker check, BP is all over the place
He has seen several medical providers for all these issues without a clear indication of what is causing them. Has seen rheumatology due to a positive ANA however extensive workup has remained negative.
March 2025 Symptoms overall remain about the same, no new symptoms. Lyrica has improved pain from shoulder and chest area. Still has numbness and uncomfortable tingling on hands and feet. Triggered by activity.
bloodwork suggests prediabetes, it does run in family
Skin bx negative for sfn
Nasal lesion was a right maxillary sinus inverted papilloma. At that time we planned on getting amyloid genetic testing and referring to . Increased lyrica for pain management.
I had taken off from work june -oct 2024 , went back, now I'm at part time barely holding onto that because of pain and fatigue and these symptoms. It is mentally & physically the toughest thing I think I have tackled and still fighting.
Holding on by a thread, and hoping everyone else in a similar situation to be able to find relief someday!
Thank you for your time.
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Sorry to hear you have Hashimoto’s with Hypothyroidism. I will be having another scan of my Thyroid this year, last year I had no nodules, but will continue checking as my daughter had Thyroid Cancer 2 years ago. She’s doing well. You just might cure yourself eliminating those 3 foods. Good luck!
@lkirnbauer
Thank you. It is good that you are keeping an eye on your thyroid. I only accidentally found a nodule on a ct scan for cervical spine surgery. No doctor pointed this out to me. I was paying a bill and happened to review the pre-surgical testing/reports and found it. By the time I had it out, it was about 2.5 cm. I had it removed because it was suspicious and my sister had a full thyroidectomy due to malignant cancer. She was only 27 at the time. I was 52
When I had my lobectomy. I need to monitor a macro calcification on my left lobe to make sure cancer doesn’t show up there. My last ultrasound showed some thyroid tissue regrowth on the right side so will want to make sure to keep an eye on that, too, since there seems to me a micro calcification in the regrowth.
Yes, my daughter as well had a complete thyroidectomy and had the 1 radiation pill to take and then remain in isolation for I think it was 5 days. I hope you continue to have good scans and no cancer shows up. Always something to worry about these days…good luck and good health!
The Dr's (Neurologists and Rheumatologists and everyone else) are monitoring the ANA and keep looking at RA as a possibility but they haven't deemed any of it a priority and seem to keep looking elsewhere for answers for now. I just wish all of the Drs would have a coordination Dr who would put all of the info together and assemble the data and distribute / direct traffic that way. Stay positive and hopefully you are getting some relief / help along the way.
Thank you! Hope we all find resolution and feel better.