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Does anyone else familiar with this ? My husband was diagnosed at age 51 and is now 62.
My husband also tried speech therapy for a short time. I can’t say it was very helpful but at least we tried. He also can no longer use utensils and eats with his fingers . That does limit some of the food choices in the care facility. When I’m there at mealtime I take a washcloth to clean him up. I also clip his nails as it’s a process. He mumbles and tries so hard to speak at times. It breaks my heart. Peace and Gods blessings !
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@julesa Bless your heart. Thanks ever so for sharing. I was embarrassed to share that, but your reply truly makes me feel that I am not alone. It's a journey. Need to remind myself often. God is in charge. He has a plan, we just need to trust Him.
I put my trust in God too but it’s not always easy. It’s helpful to have someone share the journey.
Hello all. Just reread past posts. Thank you all. Husb doing a bit better..settling in I credit the Ativan he is taking and they actually give to him earlier in afternoon for what I think is Sundown syndrom. It was my suggestion. It helps with the anxiety that overcomes him like clockwork late afternoon.I hope you all have been coming well through your journeys. It's still a struggle. Talk therapy and Skill class helping as well but these 2 wkly appts. add to my long "to do lists". Having spiraling down episodes so I am told to continue…
I’m wanting to connect with anyone whose loved one has/had this disease. Any medical information would also be appreciated.
Welcome back @julesa. I included your message in the discussion in the Caregivers group as well as the Brain & Nervous System group. I did this so that you can continue to connect with @remi54 @dianajane @rmftucker @hopeful33250 as well as inviting others into the discussion.
As you know, logopenic progressive aphasia (LPA) is a variant of primary progressive aphasia. People with this subtype have difficulty finding the right words when they are speaking, but they usually still know the meanings of words. How is your husband doing these days? How are YOU doing?
Since COVID it has been very difficult. Going from daily visits to none at all. I am now able to be an essential caregiver and sign up to see him twice a week. We are confined to his room which is hard as he likes to still walk around the unit. He had lost 25 lbs. in April when his physician contacted me He was on ensure and within time he put most of it back on. Now is he has lost weight again but the facility tells me he eats well. He is no longer using utensils and eats finger foods. I did get a camera installed in his room and that has been helpful. He hasn’t spoken in years. He isn’t able to participate in activities they offer. My heart breaks for him but God must have other plans.
@colleenyoung Thanks for reaching out. I'm sad to say my husband, Al passed away on Jan 3rd. He had covid dehydrated, malnourished sent to hospital and then to hospice. Got thru the covid but within 2 wks the aphasia/Alzheimer's took over. He hadn't spoken for almost 18 months. No idea how he was when we could only visit through window at nursing home. Seemed to enjoy our visits but didn't participate. All happened so fast. I wish your husband comfort on his journey. And peace for you..
I’m so sorry for your loss. May I ask how long he had this disease? We don’t go into Mayo for doctor visits anymore. The facility provides that in house when needed. My prayers are with you.
@dianajane, thank you for returning to share about your husband's passing. COVID has complicated both life and death. I'm so sorry to hear that you couldn't be at his side. That must've been hard. Please know that there is a Loss & Grief support group here if you wish: https://connect.mayoclinic.org/group/loss-grief/
@julesa, COVID has complicated everything! It must be a big help however that you are now able to focus on being an essential caregiver and have a camera in his room to monitor.
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