Logopenic Progressive Aphasia

Posted by julesa @julesa, Mon, Jan 21 12:41pm

Does anyone else familiar with this ? My husband was diagnosed at age 51 and is now 62.

@IndianaScott thank you. Last night nurse phoned. Not hurt but he had fallen again in his room. They are blaming it on him having snacks in rm…so now they plan to keep at nurse station for him and will give to him when he asks….he cannot ask coherently for anything!!!! I usually keep snack in container for only when I am there. I was told it was ok initially. Im ok with rules. I just want husb to be safe. And looked after as was the whole idea of succumbing to placing in the home. I don't do confrontation well & I hope that I am able to get my wishes across without sounding like a "B". Any suggestions? Family schedules are such that I'll be meeting alone. '-)

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@dianajane

@julesa Has gotten better A little! Is sleeping in bed, seems to settle in at night, watching tv, not falling since took off of2 meds. Things,are looking up but I'm a bit discouraged with the nursing facility. He is left to care for himself and I have found him in bathroom unable to get up from toilet. needs assistance with toileting…lots of laundry every day. I. I take It home. Other things are not right.Having a,patient care meeting Friday.

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I hope your conference goes well. I always made a list of my concerns/questions to go over with them. We all want the best for our spouses.
Prayers and blessings !

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@julesa @IndianaScott He is settling in a bit. Meeting went well. All concerns addressed…I am pleased with the way it was approached. Thank you for your input.

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Just thinking about you, @dianajane. I hope all is going well for you.
Will you post when you have a moment and provide an update?

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@hopeful33250

Just thinking about you, @dianajane. I hope all is going well for you.
Will you post when you have a moment and provide an update?

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@hopeful33250 Doing better. I feel bad for my husband. He is frustrated when trying to talk. Says bits and pieces but I don't understand him very well. Now at meals he eats with hand while holding fork in one hand. Doesn't want help either. Not only does that stress me but this fingernails are filthy. I try to cut them. He doesn't like it. I'm washing his hands and also using a cuticle stick to clean nails. Nursing home doesn't bother. Frustrating.

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@dianajane

@hopeful33250 Doing better. I feel bad for my husband. He is frustrated when trying to talk. Says bits and pieces but I don't understand him very well. Now at meals he eats with hand while holding fork in one hand. Doesn't want help either. Not only does that stress me but this fingernails are filthy. I try to cut them. He doesn't like it. I'm washing his hands and also using a cuticle stick to clean nails. Nursing home doesn't bother. Frustrating.

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@dianajane I appreciate the update. I certainly admire all that you are doing to help your husband. I understand your frustration over the nursing home not being attentive to the details of hygiene including caring for nails, etc.

I'm sorry to hear that he is continually frustrated with speech problems. Not being able to communicate is a tremendous loss. You take it for granted until you can no longer use this skill. I don't suppose any speech therapy is available for him now?

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@hopeful33250

@dianajane I appreciate the update. I certainly admire all that you are doing to help your husband. I understand your frustration over the nursing home not being attentive to the details of hygiene including caring for nails, etc.

I'm sorry to hear that he is continually frustrated with speech problems. Not being able to communicate is a tremendous loss. You take it for granted until you can no longer use this skill. I don't suppose any speech therapy is available for him now?

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@hopeful33250 …Thank you for your kind words. Did try speech therapy when in early stage, but to no avail. He tried so hard but the therapist thought it was too stressful for him. And he is worse as I have said. Also has what doc called essential tremor which has also gotten worse and his balance is off. Needs assistance but hates to be followed he can still walk after getting help up from chair.

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@dianajane

@hopeful33250 …Thank you for your kind words. Did try speech therapy when in early stage, but to no avail. He tried so hard but the therapist thought it was too stressful for him. And he is worse as I have said. Also has what doc called essential tremor which has also gotten worse and his balance is off. Needs assistance but hates to be followed he can still walk after getting help up from chair.

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My husband also tried speech therapy for a short time. I can’t say it was very helpful but at least we tried. He also can no longer use utensils and eats with his fingers . That does limit some of the food choices in the care facility. When I’m there at mealtime I take a washcloth to clean him up. I also clip his nails as it’s a process. He mumbles and tries so hard to speak at times. It breaks my heart. Peace and Gods blessings !

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@dianajane and @julesa

You are both going through similar struggles with a great deal of grace and kindness. You both seem to be so aware of the frustration experienced in not being able to communicate.

I know your husbands cannot properly express their appreciation for your efforts but know that many of us who read your posts are touched by your caregiving. Thanks for the examples you provide for all of us!

Liked by cmael, dianajane

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@julesa

My husband also tried speech therapy for a short time. I can’t say it was very helpful but at least we tried. He also can no longer use utensils and eats with his fingers . That does limit some of the food choices in the care facility. When I’m there at mealtime I take a washcloth to clean him up. I also clip his nails as it’s a process. He mumbles and tries so hard to speak at times. It breaks my heart. Peace and Gods blessings !

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@julesa Bless your heart. Thanks ever so for sharing. I was embarrassed to share that, but your reply truly makes me feel that I am not alone. It's a journey. Need to remind myself often. God is in charge. He has a plan, we just need to trust Him.

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@dianajane

@julesa Bless your heart. Thanks ever so for sharing. I was embarrassed to share that, but your reply truly makes me feel that I am not alone. It's a journey. Need to remind myself often. God is in charge. He has a plan, we just need to trust Him.

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I put my trust in God too but it’s not always easy. It’s helpful to have someone share the journey.

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Hello all. Just reread past posts. Thank you all. Husb doing a bit better..settling in I credit the Ativan he is taking and they actually give to him earlier in afternoon for what I think is Sundown syndrom. It was my suggestion. It helps with the anxiety that overcomes him like clockwork late afternoon.I hope you all have been coming well through your journeys. It's still a struggle. Talk therapy and Skill class helping as well but these 2 wkly appts. add to my long "to do lists". Having spiraling down episodes so I am told to continue…

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