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julesa (@julesa)

Logopenic Progressive Aphasia

Caregivers | Last Active: Jan 17, 2021 | Replies (33)

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@colleenyoung

Welcome back @julesa. I included your message in the discussion in the Caregivers group as well as the Brain & Nervous System group. I did this so that you can continue to connect with @remi54 @dianajane @rmftucker @hopeful33250 as well as inviting others into the discussion.

As you know, logopenic progressive aphasia (LPA) is a variant of primary progressive aphasia. People with this subtype have difficulty finding the right words when they are speaking, but they usually still know the meanings of words. How is your husband doing these days? How are YOU doing?

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Replies to "Welcome back @julesa. I included your message in the discussion in the Caregivers group as well..."

Since COVID it has been very difficult. Going from daily visits to none at all. I am now able to be an essential caregiver and sign up to see him twice a week. We are confined to his room which is hard as he likes to still walk around the unit. He had lost 25 lbs. in April when his physician contacted me He was on ensure and within time he put most of it back on. Now is he has lost weight again but the facility tells me he eats well. He is no longer using utensils and eats finger foods. I did get a camera installed in his room and that has been helpful. He hasn’t spoken in years. He isn’t able to participate in activities they offer. My heart breaks for him but God must have other plans.