Living with Parkinson's Disease - Meet others & come say hi

Posted by Colleen Young, Connect Director @colleenyoung, Dec 8, 2016

Welcome to the Parkinson's Disease group on Mayo Clinic Connect.
This is a welcoming, safe place where you can meet people living with Parkinson's or caring for someone with Parkinson's. Let's learn from each other and share stories about living well with Parkinson's, coping with the bumps and offering tips.

Chances are you'll to be greeted by fellow member and volunteer patient Mentor, Teresa (@hopeful33250), when you post to this group.

We look forward to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.
Let's chat. Why not start by introducing yourself?

Interested in more discussions like this? Go to the Parkinson's Disease Support Group.

Teresa, Volunteer Mentor | @hopeful33250 | 10 hours ago

In reply to @halenbon81 "My name is Lynn and I'm a 63 year old male and 8 months ago I..." + (show)

I understand the feeling of not believing a PD diagnosis, @halenbon81! After I began taking PD medication (carbidopa/levodopa) and had more confidence when I walked, I began to accept the fact that if the medicine made a difference, PD must be the correct diagnosis!

I had searched for a number of years to find a neurologist who could help with my balance, gait, and walking problems before the PD diagnosis became a reality. For me, it was a relief.

What type of symptoms led you to the diagnosis of PD? Have medications been tried, and have they been helpful?

louismines | @louismines | 8 hours ago

In reply to @halenbon81 "My name is Lynn and I'm a 63 year old male and 8 months ago I..." + (show)

@halenbon81 time will help you resolve your frustration then all we can do is the best we can do is, do not get upset or inpatient we are all in this together take care of yourself and hopefully you will find someone to connect to personally and have a friend on your side

goatgirl28 | @goatgirl28 | 7 hours ago

In reply to @halenbon81 "My name is Lynn and I'm a 63 year old male and 8 months ago I..." + (show)

@halenbon81 Hi. I am not angry. I am glad to finally have a box to put this in but I am frustrated by the fact that I made life choices meant to protect my brain only to land in this boat. What annoys me are the chemical manufacturers and the careless or uninformed who use them. Right now I'm distressed over the celebs w/PD who are keeping their mouths shut. This is not an STD in the 50s. They should get out and shout "Hey, people. This is real. We have to fix it."

kshansen | @kshansen | 6 hours ago

In reply to @nova11723 "@halenbon81 After I was diagnosed, I was in denial for like a year. Every time my..." + (show)

@nova11723
Two doctors asked YOU why you had PD?

agentlady | @agentlady | 5 hours ago

I too was angry at being diagnosed with PD. My diagnosis came about 13 years ago. I was more frightened of the future. The best I can say is there is life after PD diagnosis. You will learn to adapt to symptoms PD puts in your path but being active and accepting small victories over PD you will learn you are the same person you were before your diagnosis. It’s just your body is changing. I was diagnosed at 58 and am now 75. Stay with the support group. It will help.

Teresa, Volunteer Mentor | @hopeful33250 | 54 minutes ago

In reply to @agentlady "I too was angry at being diagnosed with PD. My diagnosis came about 13 years ago...." + (show)

This was a great way to describe your adjustment to PD, @agentlady. Being active and accepting small victories is what we all need to do.

Since you were diagnosed some time ago, how are you doing now? What are your most bothersome symptoms?

Return to first page

Please sign in or register to post a reply.