Living with Parkinson's Disease - Meet others & come say hi

Posted by Colleen Young, Connect Director @colleenyoung, Dec 8, 2016

Welcome to the Parkinson's Disease group on Mayo Clinic Connect.
This is a welcoming, safe place where you can meet people living with Parkinson's or caring for someone with Parkinson's. Let's learn from each other and share stories about living well with Parkinson's, coping with the bumps and offering tips.

Chances are you'll to be greeted by fellow member and volunteer patient Mentor, Teresa (@hopeful33250), when you post to this group.

We look forward to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.
Let's chat. Why not start by introducing yourself?

Interested in more discussions like this? Go to the Parkinson's Disease Support Group.

nova11723 | @nova11723 | 3 days ago

In reply to @js2022 "Is there a chat site for PD?? Separate from this site." + (show)

@js2022 Not that I know of. I was happy to have found this site.

divyasg | @divyasg | 1 day ago

Hi, I am Divya. I am a psychiatric patient. I take a medication for it. My father has a Parkinson disease, and I feel I too have the same symptoms. I need a support and guidance for my health issues.

Teresa, Volunteer Mentor | @hopeful33250 | 1 day ago

In reply to @divyasg "Hi, I am Divya. I am a psychiatric patient. I take a medication for it. My..." + (show)

Hello, @divyasg, and welcome to the PD support group on Mayo Connect. I see that your father has PD, and you think you might have it as well.

What kind of symptoms are you experiencing? Have you consulted with a movement disorder specialist yet?

divyasg | @divyasg | 1 day ago

In reply to @hopeful33250 "Hello, @divyasg, and welcome to the PD support group on Mayo Connect. I see that your..." + (show)

@hopeful33250
Yes, I have consulted with a psychiatric doctor about my health issues. There are some medication going on for me. Actually I will not be able to understand the things what the opponents will be asking or speaking with me. I will be unexpressed when I don't understand. Or I will be giving late response to them. Left side is very painful. I feel my nerves are weak at the left side of the brain. Can you suggest be how to get cured from PD without medication?

js2022 | @js2022 | 17 hours ago

In reply to @nova11723 "@js2022 When I was on Crexont, it made my anxiety much worse. Driving a car was..." + (show)

@nova11723
Sorry you had such a bad reaction to Crexont. I guess that's why there are so many configurations of c/l on the market; what's right for one patient makes another patient worse!! Take good care!

Janet

Teresa, Volunteer Mentor | @hopeful33250 | 1 hour ago

In reply to @divyasg "@hopeful33250 Yes, I have consulted with a psychiatric doctor about my health issues. There are some..." + (show)

I am sorry to hear that you are having difficulties, @divyasg. I would still suggest that you consult with a neurologist who specializes in movement disorders. This type of specialist is best equipped to diagnose and treat disorders such as PD.

You asked about treatments for PD that do not involve medication. Please know that I am not a medical professional and cannot give you advice on this question. I do know, however, that exercise will help the symptoms of PD.

Do you exercise on a regular basis? Is it possible to be seen by a neurologist for an evaluation of your symptoms?