Living with Parkinson's Disease - Meet others & come say hi

Welcome to the Parkinson's Disease group on Mayo Clinic Connect.
This is a welcoming, safe place where you can meet people living with Parkinson's or caring for someone with Parkinson's. Let's learn from each other and share stories about living well with Parkinson's, coping with the bumps and offering tips.

Chances are you'll to be greeted by fellow member and volunteer patient Mentor, Teresa (@hopeful33250), when you post to this group.

We look forward to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.
Let's chat. Why not start by introducing yourself?

Interested in more discussions like this? Go to the Parkinson's Disease Support Group.

Profile picture for js2022 @js2022

Is there a chat site for PD?? Separate from this site.

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@js2022 Not that I know of. I was happy to have found this site.

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Hi, I am Divya. I am a psychiatric patient. I take a medication for it. My father has a Parkinson disease, and I feel I too have the same symptoms. I need a support and guidance for my health issues.

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Profile picture for divyasg @divyasg

Hi, I am Divya. I am a psychiatric patient. I take a medication for it. My father has a Parkinson disease, and I feel I too have the same symptoms. I need a support and guidance for my health issues.

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Hello, @divyasg, and welcome to the PD support group on Mayo Connect. I see that your father has PD, and you think you might have it as well.

What kind of symptoms are you experiencing? Have you consulted with a movement disorder specialist yet?

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Profile picture for Teresa, Volunteer Mentor @hopeful33250

Hello, @divyasg, and welcome to the PD support group on Mayo Connect. I see that your father has PD, and you think you might have it as well.

What kind of symptoms are you experiencing? Have you consulted with a movement disorder specialist yet?

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@hopeful33250
Yes, I have consulted with a psychiatric doctor about my health issues. There are some medication going on for me. Actually I will not be able to understand the things what the opponents will be asking or speaking with me. I will be unexpressed when I don't understand. Or I will be giving late response to them. Left side is very painful. I feel my nerves are weak at the left side of the brain. Can you suggest be how to get cured from PD without medication?

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Profile picture for nova11723 @nova11723

@js2022 When I was on Crexont, it made my anxiety much worse. Driving a car was harder. It got so bad that I had it cause me to be a basketcase on a cross-country flight, i.e.. arm moving out of control, but then wore off right before we landed. I could barely walk off the plane. I remember after I got off Crexont that my arm had spasmed so much that it was painful to raise it for several weeks until my arm's muscles healed.

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@nova11723
Sorry you had such a bad reaction to Crexont. I guess that's why there are so many configurations of c/l on the market; what's right for one patient makes another patient worse!! Take good care!

Janet

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Profile picture for divyasg @divyasg

@hopeful33250
Yes, I have consulted with a psychiatric doctor about my health issues. There are some medication going on for me. Actually I will not be able to understand the things what the opponents will be asking or speaking with me. I will be unexpressed when I don't understand. Or I will be giving late response to them. Left side is very painful. I feel my nerves are weak at the left side of the brain. Can you suggest be how to get cured from PD without medication?

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I am sorry to hear that you are having difficulties, @divyasg. I would still suggest that you consult with a neurologist who specializes in movement disorders. This type of specialist is best equipped to diagnose and treat disorders such as PD.

You asked about treatments for PD that do not involve medication. Please know that I am not a medical professional and cannot give you advice on this question. I do know, however, that exercise will help the symptoms of PD.

Do you exercise on a regular basis? Is it possible to be seen by a neurologist for an evaluation of your symptoms?

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Profile picture for nova11723 @nova11723

@js2022 When I was on Crexont, it made my anxiety much worse. Driving a car was harder. It got so bad that I had it cause me to be a basketcase on a cross-country flight, i.e.. arm moving out of control, but then wore off right before we landed. I could barely walk off the plane. I remember after I got off Crexont that my arm had spasmed so much that it was painful to raise it for several weeks until my arm's muscles healed.

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@nova11723 I have been on assorted strengths of Crexont for over a year. In the past few months I have had 3 meltdowns. Don't know if it is the meds or the condition. I spend a lot of time on the floor w/my arms under my lower back to stop their shaking. Hence, my left arm is often painful. How did you heal your arm muscles?

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Profile picture for goatgirl28 @goatgirl28

@nova11723 I have been on assorted strengths of Crexont for over a year. In the past few months I have had 3 meltdowns. Don't know if it is the meds or the condition. I spend a lot of time on the floor w/my arms under my lower back to stop their shaking. Hence, my left arm is often painful. How did you heal your arm muscles?

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@goatgirl28 The only way I found to heal my arm muscles was to lessen the dosages or switch to a less potent drug. Even after I did that, it took a few weeks to fully go away. Crexont made my anxiety worse, so it is possible it is the meds in your case.

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My name is Lynn and I'm a 63 year old male and 8 months ago I was diagnosed with Parkinson's I've always been physically in shape even for my age and I loved being there for people that needed my help. I feel like I'm in denial but I have Parkinson's I've even questioned my doctors the two neurologist told me without a doubt I have Parkinson's. My question is is there anyone else out there that is angry about having Parkinson's it's like I can't believe it I feel like I'm in denial that I even have it. Thank you for listening

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Profile picture for halenbon81 @halenbon81

My name is Lynn and I'm a 63 year old male and 8 months ago I was diagnosed with Parkinson's I've always been physically in shape even for my age and I loved being there for people that needed my help. I feel like I'm in denial but I have Parkinson's I've even questioned my doctors the two neurologist told me without a doubt I have Parkinson's. My question is is there anyone else out there that is angry about having Parkinson's it's like I can't believe it I feel like I'm in denial that I even have it. Thank you for listening

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@halenbon81 After I was diagnosed, I was in denial for like a year. Every time my symptoms got better, I was cured! It took a long time, but I finally accepted it. I am not sure I am angry about having Parkinsons, but I was angry when doctors asked why I did, like it was my fault. Two doctors have asked me that so far.

Anyway, PD upends your life. No doubt. So yeah, being angry I believe is natural. But what do they say? Get angry, but get over it. You need your whole brain to fight this thing.

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