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Moderator

Living with Neuropathy - Welcome to the group

Posted by Colleen Young, Connect Director @colleenyoung, Jul 14, 2017

Welcome to the Neuropathy group.
This is a welcoming, safe place where you can meet other people who are dealing with neuropathy. Let’s learn from each other and share stories about living well with neuropathy, coping with the challenges and offering tips.

I’m Colleen, and I’m the moderator of this group, and Community Director of Connect. Chances are you’ll to be greeted by volunteer patient Mentor John (@johnbishop) and fellow members when you post to this group. Learn more about Moderators and Mentors on Connect.

We look forward to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.
Let’s chat. Why not start by introducing yourself? What concerns would you like to talk about?

Interested in more discussions like this? Go to the Neuropathy Support Group.

rannr | @rannr | 1 day ago
In reply to @johnbishop "Welcome @rannr, I think all of us folks with neuropathy struggle with balance and exercise is..." + (show)
@johnbishop

Welcome @rannr, I think all of us folks with neuropathy struggle with balance and exercise is key to improving our quality of life. Here are a couple of balance articles from the Foundation of Peripheral Neuropathy:

-- Alternative Therapies That Enhance Balance: https://www.foundationforpn.org/brain-based-balance-exercises/
-- Maintaining Balance: https://www.foundationforpn.org/maintaining-balance/

Here's a YouTube video that I thought was helpful to understanding the challenges and what to work on. I like that it points out that certain types of shoes may cause more balance problems for people with neuropathy. - Standing Balance for People with Peripheral Neuropathy: https://www.youtube.com/watch?v=j1bjDmmpPkw

How is your PT going?

Jump to this post

Finally seeing improvement.watched video just now It had some new points for me. Thanks for fast reply and help. Glad I joined.

REPLY
rannr | @rannr | 1 day ago
In reply to @rollo8 "I have found that doing some leg exercises and foot exercises and just generally keep moving,..." + (show)
@rollo8

I have found that doing some leg exercises and foot exercises and just generally keep moving, daily, has made me feel stronger. I use a recumbent bike or a portable elliptical daily. I was never offered Physical Therapy by my primary, a neurologist, or the podiatrist. I went from a cane to a walker very quickly. I could not use a cane on pavement. Now that my legs feel stronger, I have asked my primary for a referral to PT for balance and gait training. My hope is to be 'taught' how to safely use a cane outside of the house. Getting a walker into a car is tricky.
Are you presently taking PT? I hope they address your concerns.

Jump to this post

Thanks for replying. Yes,I’m taking pt cause of Dec fall. Just now seeing lots of improvement. You’ve encouraged me to dust off my exercise bike

REPLY
rollo8 | @rollo8 | 1 day ago
In reply to @johnbishop "Welcome @rannr, I think all of us folks with neuropathy struggle with balance and exercise is..." + (show)
@johnbishop

Welcome @rannr, I think all of us folks with neuropathy struggle with balance and exercise is key to improving our quality of life. Here are a couple of balance articles from the Foundation of Peripheral Neuropathy:

-- Alternative Therapies That Enhance Balance: https://www.foundationforpn.org/brain-based-balance-exercises/
-- Maintaining Balance: https://www.foundationforpn.org/maintaining-balance/

Here's a YouTube video that I thought was helpful to understanding the challenges and what to work on. I like that it points out that certain types of shoes may cause more balance problems for people with neuropathy. - Standing Balance for People with Peripheral Neuropathy: https://www.youtube.com/watch?v=j1bjDmmpPkw

How is your PT going?

Jump to this post

The Mission Gait video was extremely helpful. Thank you.

REPLY
matt2374 | @matt2374 | 23 hours ago

Margaret Callaghan. I have neuropathy in my left leg and foot resulting from spine fusion surgery in 2016.
I have been getting stabbing sharp electric shock type pains in my foot and wondered if anyone else gets these. I have tried ice and heat which help a little. Please let me know of any remedies. Thank you

REPLY
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