Living with Neuropathy - Welcome to the group

Posted by Colleen Young, Connect Director @colleenyoung, Jul 14, 2017

Welcome to the Neuropathy group.
This is a welcoming, safe place where you can meet other people who are dealing with neuropathy. Let’s learn from each other and share stories about living well with neuropathy, coping with the challenges and offering tips.

I’m Colleen, and I’m the moderator of this group, and Community Director of Connect. Chances are you’ll to be greeted by volunteer patient Mentor John (@johnbishop) and fellow members when you post to this group. Learn more about Moderators and Mentors on Connect.

We look forward to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.
Let’s chat. Why not start by introducing yourself? What concerns would you like to talk about?

Interested in more discussions like this? Go to the Neuropathy Support Group.

gus0557 | @gus0557 | 1 day ago

In reply to @johnbishop "Hello Gus @gus0557, Welcome to Connect. I'm hoping you get some answers when you see your..." + (show)

Thank you John for your welcoming message and the included information. The test I had today also revealed early manifestation of small fiber neuropathy in addition to the other 2 cases. Indeed I wish it was just the tingling and no pain. In fact, at the end of each day, I become almost unable to step on the bottom of my feet. They are quite painful along with terrible tingling. And my right arm is about to fall off.
I shall see what the neurologist will say. In the meantime, I shall visit the links you sent me and see what help I may be able to find.
Thanks again.

herroyall | @herroyall | 1 day ago

I don’t know which neuropathy I have. I it started a few days after I had a 3 disc spinal fusion. It has been 10 yrs and has gotten worse it’s moving to the right leg now when it was only in my left leg. It’s extremely painful and can’t sleep at night.What should I do at this point.

John, Volunteer Mentor | @johnbishop | 1 day ago

In reply to @herroyall "I don’t know which neuropathy I have. I it started a few days after I had..." + (show)

Welcome @herroyall, I am sorry to hear that you have been dealing with the pain for more than 10 years and haven't had much relief since the spinal fusion. There are other members who have shared their experience with similar symptoms following a spinal infusion. Here is a search link that lists the comments if you would like to scan through them - https://connect.mayoclinic.org/search/comments/?search=neuropathy%20following%20spinal%20fusion.

The Foundation for Peripheral Neuropathy has a list of complementary and alternative therapies if you want to scan through them - https://www.foundationforpn.org/therapies/

Have you thought about seeking help at a teaching hospital or major health facility like Mayo Clinic?