Living with Neuropathy - Welcome to the group

Welcome @roserogers, I don't have any experience with MSA but there is another discussion you might find helpful:
-- Parkinson's along with Multiple Systems Atrophy (MSA): https://connect.mayoclinic.org/discussion/parkinsons-plus-msa/.

Here is another site that has a lot of information and may help answer some of your questions:
-- Multiple System Atrophy - Types and Symptoms: https://www.multiplesystematrophy.org/about-msa/types-and-symptoms/.

Did the Movement Specialist offer any information or suggestions on what to expect?

John- off topic, but wondering- do you like your Teeter exercise cross trainer? Am in PT again, now for patellar tendonitis, advised my long walks are not a good idea anymore.

@centre, Yes - I really like the Teeter FreeStep cross trainer. I use it at least 30 minutes a day, sometimes longer. You can adjust the tension so that it is really easy to use with the arms and legs, or you can crank the tension up so that it takes a lot more effort with the arms and legs.

Sorry to hear you have patellar tendonitis. I originally got the Teeter FreeStep to replace my recumbent exercise bike to help build leg strength after I had a knee replacement. I also bought an inexpensive Row-N-Ride machine that lets you easily do squat type exercises which help with cardio and leg strength. 10 to 15 minutes is about my max time using it as it uses your body weight and takes more effort. https://www.amazon.com/Sunny-Health-Fitness-Row-N-Ride-Trainer/dp/B08SSFZN4P/

Forgot to mention that you can use arms only or legs only with the Teeter FreeStep.

Thank-you so much for your replies- I have trouble with exercise bikes as my neuropathy leg/foot slips off without me realizing it. Really appreciate your input.

They make foot holders to put on pedals that keep your feet on the pedal. My exercise bike came with them.

Hi Colleen. I had 3 back surgeries 2017 to 2019. None of them solved the problem. The pain has continued to get worse. I was very active before but do very little exercise anymore because it just causes more pain. The wierd problems in my legs have gradually increased. I get extreme spells of cold and pins and needles. I wear heavy pants to try to keep from getting cold because when those spells hit I just have to put heating pads on my legs. It's wierd. I am told I have neuropathy. But thats all they tell me. I am supposed to have a Stimwave spinal stimulator implanted to help with the pain. So I am always looking for information to figure out what is going on with my legs. Doctors seem more interested in treating the pain than the neuropathy. I am on hydrocodone, muscles relaxers, and gababentin. My neurologist said more surgery would just make things worse so I am hoping the spinal stimulator will help. @pat79

I am 84 and have neuropathy after chemo treatments. I was wondering if you suffer also from leg cramps or muscle cramps when you stretch. I do and while I am not taking that many meds now, I sure wish I could latch on to something that will help these awful leg/muscle cramps that wake me up in the middle of the night.
Ginger

I am 86 and have had peripheral neuropathy in my legs for some time. I don't know the cause, but I suspect it was because of IMRT for prostate cancer. I take Lyrics (generic) for it, and it is manageable.

I never put the awful foot and leg cramps as part of the peripheral neuropathy. Now I am wondering.