Living with Neuropathy - Welcome to the group

Posted by Colleen Young, Connect Director @colleenyoung, Jul 14, 2017

Welcome to the Neuropathy group.
This is a welcoming, safe place where you can meet other people who are dealing with neuropathy. Let’s learn from each other and share stories about living well with neuropathy, coping with the challenges and offering tips.

I’m Colleen, and I’m the moderator of this group, and Community Director of Connect. Chances are you’ll to be greeted by volunteer patient Mentor John (@johnbishop) and fellow members when you post to this group. Learn more about Moderators and Mentors on Connect.

We look forward to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.
Let’s chat. Why not start by introducing yourself? What concerns would you like to talk about?

Interested in more discussions like this? Go to the Neuropathy Support Group.

denverduffer22 | @denverduffer22 | May 1, 2022

Does anyone know if statins can cause neuropathy?

John, Volunteer Mentor | @johnbishop | May 1, 2022

In reply to @denverduffer22 "Does anyone know if statins can cause neuropathy?" + (show)

Hi @denverduffer22, Welcome to Connect. There is quite a lot of information available pointing to statins causing or making peripheral neuropathy worse. Here are some of the sites I've found.

The implications of statin induced peripheral neuropathy
— https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3103035/
Statin Neuropathy Masquerading as Diabetic Autoimmune Polyneuropathy
— http://care.diabetesjournals.org/content/28/8/2082.1
Medication Induced Neuropathy
— https://link.springer.com/article/10.1007/s11910-003-0043-8

You may also be interested in reading through a few other discussions on the topic:
-- Connection of statins, rosvastatin, with neuropathy of feet?: https://connect.mayoclinic.org/discussion/connection-of-statins-rosvastatin-with-neuropathy-of-feet/
-- Statins and peripheral neuropathy: https://connect.mayoclinic.org/discussion/statins-and-peripheral-neuropathy/

Have you been diagnosed with neuropathy?

centre | @centre | May 2, 2022

In reply to @johnbishop "Hi @macirish, Welcome to Connect. It sounds like you've looked into all the alternatives so that..." + (show)

To John and Neuropathy friends-
The Washington Post has an excellent article, dated 04/30/2022, about new research on chronic pain. Under the heading “Health”, next heading”Perspectives”, article title “Chronic Pain is terrible, A new way of understanding it may help”. Reporter is Haiden Warraich.
I’m able to share articles as a subscriber, but I can’t figure out how to do it to our support page. Hopefully people can see it at their Library. Thanks for all you do to keep information flowing.

John, Volunteer Mentor | @johnbishop | May 2, 2022

In reply to @centre "To John and Neuropathy friends- The Washington Post has an excellent article, dated 04/30/2022, about new..." + (show)

Here's the link to the article you mentioned -- https://www.washingtonpost.com/health/2022/04/30/chronic-pain-relief/

philipwest | @philipwest | May 2, 2022

In reply to @johnbishop "Did your doctor suggest any treatments for the pain? There are some complementary and integrative treatments..." + (show)

Yes, Amitriptyline and pcm... it didn't really help much

ajnos03 | @ajnos | May 10, 2022

I was diagnosed with periferal neuropathy in February 2022. Prescribed gabapentin gave me brain fog and didn't seem to help the pins and needles pain and numbness. I have not seen a neurologist yet. Can anyone give me advice as to wether I should see a neurologist. My gp doctor said it wouldn't do me any good and that a neurologist couldn't help me. What should I do?

robyn | @boltz7555 | May 11, 2022

In reply to @ajnos "I was diagnosed with periferal neuropathy in February 2022. Prescribed gabapentin gave me brain fog and..." + (show)

@ajnos Hello. I’m sorry to hear of your diagnosis. May I ask how your doctor diagnosed you? Was it based on symptoms, bloodwork, biopsy? I would see a neurologist. In many cases, neuropathy is the result of an underlying cause. Did your doctor diagnose an underlying cause? Diabetes is a common one although there are many! If there is an underlying cause, treating that may help the neuropathy. I had the same experience that you described with gabapentin. There are a few other medications that can be tried. Cymbalta, Amitriptyline, Lyrica. I had a very bad experience with Lyrica but everyone is different. I think a neurologist can help you dig deeper and determine next steps.

ajnos03 | @ajnos | May 11, 2022

In reply to @boltz7555 "@ajnos Hello. I’m sorry to hear of your diagnosis. May I ask how your doctor diagnosed..." + (show)

Hi Boltz - I had a nerve test done after my GP doctor has already diagnosed it as Itiopathic Periferal Neuropathy, and the nerve test came out positive for IPN. I also had a A1C Blood test which came out 4.6 negative for diabeties. So I don't know how I contracted it. When I went back to my GP doctor to get a referral for a Neuroligist, he blatently said there is no sense in going to a Neuroligist as they couldn't help me. So now I am looking for another GP that is more understanding and in tune with my condition. I agree I need to find a Neurologist but have some hoops go through to get there as I find out that all neurologists need the referral.
I find that walking and exercise is the best antidote for my condition. So far that is working okay...of course I worry about what is next...
Thanks for responding.
Airiel

sjspri | @sjspri | May 28, 2022

Does anyone know anything about an electrical treatment for peripheral neuropathy , as vigorously advertised on TV, called “Sanexas” ? When I googled it, Mayo Clinic popped up……is it real?