Statins and peripheral neuropathy

Posted by jacquespierre @jacquespierre, Fri, Apr 26 1:44am

I have been taking cholesterol medication for the last 20 odd years and a year ago I was diagnosed with PN… burning, numb, painful lower legs and feet… no doctor or neurologist seems able to help me so I have decided to make peace with the fact that my condition cannot be cured. Can anyone tell me if there is any natural cholesterol medication I can use in stead of the chemical one that contains the harmful statins? Will it improve my condition if I stopped taking the chemical cholesterol medicine?

Hello @jacquespierre, welcome to Connect. I have the same concern as you about statins since I think they contributed to my peripheral neuropathy. There are natural ways to lower your cholesterol. Here are a few articles that may help you.

How to lower your cholesterol without drugs
https://www.health.harvard.edu/heart-health/how-to-lower-your-cholesterol-without-drugs

Lowering Cholesterol Naturally – 6 Tips
https://www.pritikin.com/your-health/health-benefits/lower-cholesterol/1468-7-tips-for-improving-your-ldl-cholesterol.html

You may be interested in reading through another active discussion here on Connect and meet other members sharing your symptoms.

Groups > Neuropathy > Living with Neuropathy – Welcome to the group
https://connect.mayoclinic.org/discussion/living-with-neuropathy-welcome-to-the-group/

Are you able to share how you were diagnosed or any treatments you use that help you with your symptoms?

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I have read that if you eat RED apples, carrots, and beets ALL of the time, your cholesterol will go down naturally, by many points. I do this, but have not been to the doc yet to get cholesterol levels. I do have high cholesterol, but not too high, and the ratio of the good to bad is good. Lori Renee

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@marymaurer

Anyone experienced this??
History of long term statin use at high dose.
Loss of feeling in feet and lower legs. Have now discontinued statin… any Chance of recovery. ??

Jump to this post

Hello @marymaurer, welcome to Mayo Clinic Connect. You may be interested in reading through another active discussion here on Connect and meet other members sharing your symptoms and asking your question here where it will have more visibility.

Groups > Neuropathy > Living with Neuropathy – Welcome to the group
https://connect.mayoclinic.org/discussion/living-with-neuropathy-welcome-to-the-group/

There are also two related discussion similar to yours that you may want to join to meet other members who have discussed statins and neuropathy.

> Groups > Neuropathy > Statins and peripheral neuropathy
https://connect.mayoclinic.org/discussion/statins-and-peripheral-neuropathy/

> Groups > Neuropathy > Statins cause peripheral neuropathy?
https://connect.mayoclinic.org/discussion/statins-cause-peripheral-neuropathy/

Are you able to share how you were diagnosed or any treatments you use that help you with your symptoms?

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@dutchman09

Has anyone here been diagnosed with Peripheral Neuropathy caused exclusively from orally ingesting a statin medication for 8 years? I have never had diabetes or high Cholesterol.

Jump to this post

Hi @dutchman09, There are also two related discussion similar to yours that you may want to join to meet other members who have discussed statins and neuropathy.

> Groups > Neuropathy > Statins and peripheral neuropathy
https://connect.mayoclinic.org/discussion/statins-and-peripheral-neuropathy/

> Groups > Neuropathy > Statins cause peripheral neuropathy?
https://connect.mayoclinic.org/discussion/statins-cause-peripheral-neuropathy/

Since you mentioned you have never had high cholesterol, do you mind me asking what condition were you being treated for with statins?

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@marymaurer

Anyone experienced this??
History of long term statin use at high dose.
Loss of feeling in feet and lower legs. Have now discontinued statin… any Chance of recovery. ??

Jump to this post

my doctor wants me on crestor with a cholesterol of 215. I am recovering from base of tongue cancer and am still anemic and not normal as yet. I see no reason to drag my cho0lestrol down to below 150 just to make him happy with his prognosis. He also advised it would make my type 2 diabetes worse or give it to me if I didnt have it already.
I have a friend taking a statin and his blood glucose levels get to 200 and then he takes insulin to bring it down, and he was a mild type 2 with morning glucose about 120, which was then controlled by metformin. So I'd be cautious about taking this junk

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Has anyone here been diagnosed with Peripheral Neuropathy caused exclusively from orally ingesting a statin medication for 8 years? I have never had diabetes or high Cholesterol.

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@dutchman09

Has anyone here been diagnosed with Peripheral Neuropathy caused exclusively from orally ingesting a statin medication for 8 years? I have never had diabetes or high Cholesterol.

Jump to this post

Hi, @dutchman09 – you may have noticed that I moved your post here to this existing discussion on statins and neuropathy so you can talk with others also interested in this topic. Is this what you feel has led to neuropathy in your case?

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@johnbishop

Hi @dutchman09, There are also two related discussion similar to yours that you may want to join to meet other members who have discussed statins and neuropathy.

> Groups > Neuropathy > Statins and peripheral neuropathy
https://connect.mayoclinic.org/discussion/statins-and-peripheral-neuropathy/

> Groups > Neuropathy > Statins cause peripheral neuropathy?
https://connect.mayoclinic.org/discussion/statins-cause-peripheral-neuropathy/

Since you mentioned you have never had high cholesterol, do you mind me asking what condition were you being treated for with statins?

Jump to this post

After my heart attack on February 8, 2010 I was introduced to a local Cardiologist who started me on Plavix, Metoprolol Tartrate, Isosorbide and Crestor. After being diagnosed with PN I discontinued the Crestor on Oct. 15. 2018 and the Plavix on April 20, 2019 at the suggestion of another doctor because I also take 81 mg aspirin. Never during the 8 years of' 'treatment' was I told any Cholesterol level numbers, just that it was high and that I also had diabetes when on my last office visit to this Cardiologist HER own test results showed my Glucose at 101 and I blame my own naive 'respect' for the medical profession for not wanting to second guess this woman until it was too late! I am stuck with this condition and after consulting 27 legal offices was repeatedly told that all the court cases, judgements and class action suites against statins and Astrazeneca (the maker of Crestor) were closed. After extensive research there is no doubt in my mind that this is the only cause for my contracting PN.

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@lisalucier

Hi, @dutchman09 – you may have noticed that I moved your post here to this existing discussion on statins and neuropathy so you can talk with others also interested in this topic. Is this what you feel has led to neuropathy in your case?

Jump to this post

After extensive research over the past year there is no doubt in my mind that being prescribed Crestor for 8 years is the only and absolute cause of my contracting PN.

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I stopped taking the generic version of Crestor last October 15, 2018. I now take one tablespoon of Bragg® Organic Raw-Unfiltered Apple Cider Vinegar with the "Mother" mixed in an 8 oz. glass of apple juice every morning on an empty stomach. Do not take a higher dose or drink it out of the bottle because it could damage your esophagus. You can find it in a 16 oz.bottle in most large grocery stores. You might want to look it up on line. The last time I went to my Nephrologist she said my Cholesterol was "well within the range for my age group".

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Anyone experienced this??
History of long term statin use at high dose.
Loss of feeling in feet and lower legs. Have now discontinued statin… any Chance of recovery. ??

REPLY
@dutchman09

After my heart attack on February 8, 2010 I was introduced to a local Cardiologist who started me on Plavix, Metoprolol Tartrate, Isosorbide and Crestor. After being diagnosed with PN I discontinued the Crestor on Oct. 15. 2018 and the Plavix on April 20, 2019 at the suggestion of another doctor because I also take 81 mg aspirin. Never during the 8 years of' 'treatment' was I told any Cholesterol level numbers, just that it was high and that I also had diabetes when on my last office visit to this Cardiologist HER own test results showed my Glucose at 101 and I blame my own naive 'respect' for the medical profession for not wanting to second guess this woman until it was too late! I am stuck with this condition and after consulting 27 legal offices was repeatedly told that all the court cases, judgements and class action suites against statins and Astrazeneca (the maker of Crestor) were closed. After extensive research there is no doubt in my mind that this is the only cause for my contracting PN.

Jump to this post

Hi, @dutchman09 – wanted to let you know I moved your post on statins and neuropathy here so you could meet @marymaurer @wayno1234 @johnbishop @lorirenee1 @jacquespierre @crshowers, who have discussed this potential issue and may have some input for you on this connection or on your move from a statin to taking apple cider vinegar. @jimbotch also may have some thoughts for you.

Does your doctor think that being off the statin or taking the vinegar is making the most impact on your cholesterol at this point, dutchman09? Is your neuropathy any different after discontinuing the statin?

marymauer – Has the loss of feeling in your feet and lower legs continued? How are you doing?

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@lisalucier

Hi, @dutchman09 – wanted to let you know I moved your post on statins and neuropathy here so you could meet @marymaurer @wayno1234 @johnbishop @lorirenee1 @jacquespierre @crshowers, who have discussed this potential issue and may have some input for you on this connection or on your move from a statin to taking apple cider vinegar. @jimbotch also may have some thoughts for you.

Does your doctor think that being off the statin or taking the vinegar is making the most impact on your cholesterol at this point, dutchman09? Is your neuropathy any different after discontinuing the statin?

marymauer – Has the loss of feeling in your feet and lower legs continued? How are you doing?

Jump to this post

Have been off the statins for about 3 months. Still numbness in feet and lower legs.. no better but no worse. Would be interested to see if the apple cider vinegar is helpful with cholesterol!
Mine isn’t real high but I did have a partially blocked artery many years ago and have been on high dosage statin for past twenty years. Numbness slowly developing starting with the Sock under toes feeling. Not totally numb.. kind of like John describes his.

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If you'd like to read up on the Apple Cider Vinegar you can go to https://www.google.com/search?q=braggs+apple+cider+vinegar&ie=utf-8&oe=utf-8&client=firefox-b-1. But read the directions carefully and also the reviews. It hasn't 'damaged' me in any way so I continue to take it until I find another Cardiologist that's not into 'pushing drugs'! My main problem is my balance. After extensive research and several doctor and Chiropractor visits I've realized that the Myelin Sheath surrounding the peripheral nerves in my feet have been damaged by taking a statin. Therefore it takes the signal that tells my brain where 'in space' my feet are at any given time too long which causes the imbalance. As far as a cure for PN…the doctors cop-out is that "everyone is different" which absolves them from making any definitive statement about the drugs or the 'cure'.

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I am both a sufferer and a doctor.
I have recently joined this forum, looking for an answer to this maddening disease. My diagnosis is idiopathic small fiber peripheral neuropathy.
With all due respect, I find posts such as the one by dutchman09 above to be unhelpful at best.
As far as I can tell, there is no definitive evidence that statins cause PN, although there is some evidence. I myself have taken statins for high lipids, but have stopped because of the possibility that they have contributed. When I discussed this with my MD, she was not dismissive, but pointed out that instead of suffering with PN, I may instead suffer from a stroke or heart attack. Chose your poison. It's complicated.
Almost all MD's I know do their best to provide validated information to their patients. They generally do not push medications, unless there is good scientific evidence of their effectiveness (as is true of statins). BTW, there is no good scientific evidence that apple cider vinegar works for PN. However, if it helps you, and doesn't hurt (which you may not realize for several years) go for it!
The doctor's do not "cop out" when there is no definitive cure. They simply do not know. They stopped being God a long time ago. My experience is that most MD's are quite open to trying new things (alternative medicine), when they do not have the cure.
Getting angry will only make you feel worse.

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