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Living with Neuropathy - Welcome to the group
Welcome to the Neuropathy group.
This is a welcoming, safe place where you can meet other people who are dealing with neuropathy. Let’s learn from each other and share stories about living well with neuropathy, coping with the challenges and offering tips.
I’m Colleen, and I’m the moderator of this group, and Community Director of Connect. Chances are you’ll to be greeted by volunteer patient Mentor John (@johnbishop) and fellow members when you post to this group. Learn more about Moderators and Mentors on Connect.
We look forward to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.
Let’s chat. Why not start by introducing yourself? What concerns would you like to talk about?
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No-pain neuropathy with lightheadedness. Numb feet to ankles. Has anyone experienced this, discovered causes for the lightheadedness, and found treatment for the same? My spouse suffers from this. He has been to a primary care doctor, neurologist, cardiologist, physical therapist, ENT doctor, and podiatrist with no explanations. They ruled out inner ear problems and vertigo. He does not have diabetes, and his blood pressure is stable. The physical therapist suggested that the lightheadedness could be due to imbalance caused by neuropathy. However, he has experienced lightheadedness when sitting in his recliner. He was waking up with cramps but taking calcium and magnesium and an extra magnesium tablet before bedtime, alleviates the cramps. He exercises at the YMCA and walks at the Mall, using a cane for balance. This condition has caused anxiety and depression. He has stopped driving on the freeway because he doesn't want to put anyone at risk.
Hi Sam @sam31, I see myself in the same prediabetes scenario also was recently reading more about the metabolic syndrome. I normally have my checkup in the spring and the doctor orders a lipids panel and fasting glucose but I think what's missing is the fasting insulin test to check the insulin resistance which could be the reason for higher A1C and the prediabetes label. I'm planning to have the fasting insulin test along with the fasting glucose test so that they can be compared and it will give a better picture of what's going on. I don't totally understand everything so I'm just trying to learn more about it. The good news is if you can catch it before you get to stage 2 diabetes I think you can fix it with diet and exercise. There is a discussion with some good info for nutrition and healthy eating -- Low-carb healthy fat living. Intermittent fasting. What’s your why?: https://connect.mayoclinic.org/discussion/low-carb-healthy-fat-living-intermittent-fasting-whats-your-why/
-- Insulin Resistance & Prediabetes: https://www.niddk.nih.gov/health-information/diabetes/overview/what-is-diabetes/prediabetes-insulin-resistance
-- Neuropathies Associated With Diabetes and the Metabolic Syndrome: https://neuropathycommons.org/neuropathy/causes-neuropathy/neuropathies-associated-diabetes-and-metabolic-syndrome
Hello @alexandraeugenia, Welcome to Connect. I know it must be frustrating for your husband and you not being able to get a diagnosis and treatment after seeing so many different doctors and specialists. I'm wondering if this post by @jenniferhunter in this Lightheadedness discussion may be similar to what is going on with your husband - https://connect.mayoclinic.org/comment/244223/.
I know your husband has seen a lot of different doctors but have you thought about seeking help at a major teaching hospital or health facility like Mayo Clinic that uses a multidisciplinary teamwork approach to diagnosis difficult conditions? If you would like get a second opinion from Mayo Clinic, you can find the contact information for
the Minnesota, Arizona and Florida campuses here http://mayocl.in/1mtmR63.
I suggested a teaching hospital to my husband, and he was not open to it because he has seen so many doctors. I am referring your response to him with hopes he will give it some consideration. Thank you for responding quickly.
I did not mention in my original post is that my husband had a CT scan of his brain and an MRI of his spine. Neither showed any irregularities. His upper back has been slightly curved (hunched) since youth.
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1 Reaction@alexandraeugenia - You might want to show him what multidisciplinary teamwork is and how it can help with better outcomes for the patient. Here's more information here - https://www.td.org/insights/multidisciplinary-teamwork-ensures-better-healthcare-outcomes
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1 ReactionVertigo seems to be a common plight among former military.
Thank you for your comment. My husband was tested for vertigo, and the results were negative.
Hi Alex,
Thanks for sharing your story. I have similar conditions. No pain but numbness and lightheadedness. Wish I could tell you where we go from here. Can anyone share?
Bless all,
Rick
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1 ReactionGood to see that.