Living with Neuropathy - Welcome to the group

@wisfloj. Are you a vegetarian or vegan? My friend is a vegan and he takes sublingual B12. Most vegetarians and vegans are B12 deficient because they cannot get enough B12 from their diet. I am eating less meat and I take 1000mcg, the same form as yours. It's a lozenge that dissolves in my mouth.

@otisco. As each of us is unique, you really should get a blood test and speak with your doctor about it. I have sfpn, and blood tests consistently show B is within normal range. Many things can be harmful if dosage is too high.

Jim

@otisco I have Small Fiber Peripheral Polyneuropathy as a result from B12 deficiency which slowly developed through my forties. Now that I've been regulated through injections, I take oral B12 2,000 mcg per day and a daily B Complex with 30 mcg B6. Too much B6 creates PN, too little B12 creates PN, it's a balancing act, one that your Dr. should be aware of and advise on. Dangerous area. Good luck.

I have been diagnosed with small fiber idiopathic peripheral neuropathy. I would appreciate hearing about any experience with immunoglobulin treatments.

Hello @ginger7, Welcome to Mayo Clinic Connect. There is another discussion you may be interested in reading and learning what others have shared about IVIG Infustions: https://connect.mayoclinic.org/discussion/ivig-infusions/

@sparshall, @arnrob, @jimhd and others may be able to share their experience with IVIG treatments with you.

Has your doctor recommended the treatments for you?

Yes.

Hi, my name is John. I am 67 years old. This is my first post. I have not been diagnosed with Peripheral Neurology (PN). In the last several weeks I have noticed some "burning" sensation on my feet and ankles, particularly when I lie in bed at night. So I went to Dr. Google and it pointed me to PN. I mentioned it to my doctor the other day since he indicated that I have prediabetes. He said to keep an eye on it and he indicated that there is medication for that. Any initial thoughts and comments for a newbie are greatly appreciated. Thank you Colleen and John for moderating this site.

would be interesting to know what medication he is referring to: for the PN or for the prediabetes -- ask questions now

I have a call into his office to see what medication he was thinking about. Is there a "hallmark" medication that is commonly prescribed?

Hello John and welcome to Connect! I am fairly new and still not proficient in getting around but am making progress.

I hope and pray that you learn as much as I 'm learning here on Connect and I know you will receive a great deal of support and encouragement.

Many blessings, Sunnyflower