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Living with Neuropathy - Welcome to the group

Neuropathy | Last Active: 1 day ago | Replies (5999)

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@testudo

Hi, my name is John. I am 67 years old. This is my first post. I have not been diagnosed with Peripheral Neurology (PN). In the last several weeks I have noticed some "burning" sensation on my feet and ankles, particularly when I lie in bed at night. So I went to Dr. Google and it pointed me to PN. I mentioned it to my doctor the other day since he indicated that I have prediabetes. He said to keep an eye on it and he indicated that there is medication for that. Any initial thoughts and comments for a newbie are greatly appreciated. Thank you Colleen and John for moderating this site.

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Replies to "Hi, my name is John. I am 67 years old. This is my first post. I..."

Hello John and welcome to Connect! I am fairly new and still not proficient in getting around but am making progress.

I hope and pray that you learn as much as I 'm learning here on Connect and I know you will receive a great deal of support and encouragement.

Many blessings, Sunnyflower

Hi John, thought I had lost your post but had wanted to say that it is much better to arrest the pre-diabetic condition because there is no medicine to treat neuropathy once you have it, that I know of. This we do know, that diabetes is one of the main causes of neuropathy.

I could be wrong, but I think it is rare for neuropathy to be reversed. It is much, much better to get sugars under control and prevent full-blown diabetes which affects micro and macro vessels everywhere in the body including vital organs and eyes.

All the best, Sunnyflower

@testudo Hi John, my name is Hank and I would join Sunny in welcoming you here. Not sure what is normally done for someone who might be prediabetic. But my fervent hope is that you do not have neuropathy. The reason I say it that way is, as Sunny mentioned, peripheral neuropathy is virtually incurable with the current medical technology extant today. The first thing you may want to do, in working with your doctor, is to understand about your possible diabetes diagnosis.

Next, if it turns out you are continuing to have unwelcome feelings of pain or discomfort such as what you describe in your feet and ankles, you might be interested in seeing a neurologist. There are some options for being tested for neuropathy. There is a nerve conduction study that could be dome, a skin punch biopsy and an EMG (electromyography) test, among possible other things.If you are developing neuropathy, and you are in pain, especially if it's intolerable, there are treatment options for the pain, i.e. drugs, CBD, THC, other things that people try. These you can discuss with the neurologist, but you will find people here on Connect very eager to help and share their knowledge and experiences with others, so don't be shy about asking.

I believe there is a primer on Connect somewhere as to how to navigate around. I have been here since January 2020 and have pretty much learned on my own. A great resource for general info is John Bishop @johnbishop . You can post a message and include that member name (including the @ sign) and he likely will see it and reply. Best to you and good luck with your experience here on Mayo Connect. Hank

Hello John @testudo, I would like to add my welcome along with @sunnyflower and other members. I've always carried that prediabetes label around myself although I'm not really sure it's a legitimate diagnosis. What I've done in the past 3 to 4 years to improve my numbers is focus on reducing sugar (it's a big culprit and no no for neuropathy) and eating healhier. Here's some information from a Mayo Clinic page that describes the problem much better than I can -- "Diabetic neuropathy is a type of nerve damage that can occur if you have diabetes. High blood sugar (glucose) can injure nerves throughout your body. Diabetic neuropathy most often damages nerves in your legs and feet.Mar 3, 2020" -- Diabetic neuropathy - Symptoms and causes - Mayo Clinic: https://www.mayoclinic.org/diseases-conditions/diabetic-neuropathy/symptoms-causes/syc-20371580

You may also be interested in the following discussions on Connect:
-- Burning Feet syndrome: https://connect.mayoclinic.org/discussion/burning-feet-syndrome/
-- Erythromelalgia: https://connect.mayoclinic.org/discussion/erythromelalgia/
-- Diabetic Neuropathy progressing?: https://connect.mayoclinic.org/discussion/diabetic-neuropathy-progressing/
-- Diabetes & Taking Care of Your Feet - It's Important!: https://connect.mayoclinic.org/discussion/diabetic-neuropathy-its-important-to-take-care-of-your-feet/

The fact that you found Mayo Clinic Connect means that you are trying to learn as much as you can and is a great start to becoming a strong advocate for your health. The best suggestion I have is to keep asking questions and learn as much as you can about your condition. The more you know, the better you can communicate with your doctor and health care team.

Do you ever have the burning during the daytime?