Living with epilepsy - Introduce yourself & meet others

Hello there! Im 28 and been 5 years seizure free, taking Keppra, Lamictal, Zonisamide all twice daily.I had recently got married and hoping later in the year to start a family. I am curious if anyone were on the same medications and if they have any problems? Also I'am interested in where i could find info about epilepsy or helpful videos for my husband, if i do end up having a seizure at anytime I don't want him to be scared

Thanks Dawn, I am and have a Dr.'s appointment around the end of this month. Have a blessed day.

Thank you, I will look right into that. Have a blessed day.

Hi @vanessapaugust.
Curious what medication you are taking for seizure control and have you had your levels check? Your doctor may need to make an adjustment since you have had a seizure recently.

Dawn

Hello @stayfree
I have also been on gone down the rough and bumpy road of finding the right medication and the right dose and the right time of the day. Many seizures, ER visits, waisted medications that I can never take again and a lot of waisted money!!!

Now those days are over!!! Now we have the capabilities to prescribe the right medications, right dose, right time of day. Eliminating the adverse reactions, waisted time and money. Here is a link explaining a simple test you only need to do once in your life. Pharmacogenetics testing or also know as PgX.
http://mayoresearch.mayo.edu/center-for-individualized-medicine/drug-gene-testing.asp
When my Mayo docs weaned me the started me on trileptal before weaning me off the other medicine. We weaned 1 dose at a time on 1 medication at a time changing 1week at a time until I was able to finally be on just the trileptal. I had an occasional aura but no seizures. Now seizure free for almost 10 years with a break through a month ago but back on track again.
Remember: weight changes everything. So if you are have weight changes tell your doctor immediately.

Prayers for seizure free days
Dawn

Well I will be 53 in March and moved back to TN with my mom and it has been great. I think I have more of an anxiety/stress seizure. I have experienced some memory loss with the seizures. I don't remember being married and living with my 1st husband, my children's father, I do remember he was my high school sweetheart. I've learned to start notating what happened the day before my seizures to compare what goes on. The last seizure I had was on Jan. 14 (day after I was telling everyone to have a blessed Friday 13th), got up that Sat., had a cup of coffee and sitting talking with my mom about going to the mall that day. When I woke up later she was asking me how I was feeling. I just said, I'm fine, them she told me I had a seizure, she called 911 and they came out and told her I was having a seizure and there was nothing they could do, just to keep a cold towel on my head. Well I was excited about that but the night before is when I told her I decided to say and I was going to join her church because they had a lot of volunteer/activity stuff going on. I was some what depressed about that because I didn't want to tell my daughter the next day I decided to stay. Coping is great, she is my mom, I do make a little income babysitting and she gives me $20 here and there for keeping kitchen clean she saying and being her personal secretary. Then taking me shopping and finding the best deals.

Hello @vanessapaugust,

We're so glad you've joined us here on Connect. @cgrammie2 @randallfrommemphis @jodyalbright @ditim have mentioned living in Tennessee, and I hope they will have some information for you.
Could you tell us a bit more about yourself, @vanessapaugust ? What kind of seizures do you have? How are you coping with this and the move?

Hello, my name is Vanessa and I've been dealing with seizures since 2012. Of course I have been going back and forth with trying to get disability or some sort of income. I am planning on moving with my mom now in Chattanooga, TN and would like to chat and meet people in this area.

Welcome to Connect, @doughboy47. It's great to have your experience to add to our group.
@clawrence has also shared her success story with surgical treatment for epilepsy. I believe @stayfree may be considering surgery.

@doughboy47 do you have experience with weaning of meds before the surgery? @stayfree is dealing with this right now and may have some questions to ask.

Hi everyone. My name is Paul. I had simple partials and gran mal seizures from age 9 until 25. In 2000 i was referred to the mayo clinic. There my life changed for ever. I met Dr. Greg cascino an epitologist. After a year of try meds i became a canidate for surgery. In october of 2001 i had a right temporal lobectomy and hippocampus removed. I've been seizure free since, and med free since 2004. Now that I've been given a second chance at a normal life, i try and help other's with any questions about the choice of having surgery and how it effects your life after. Feel free to reach out to me with any questions you might have.