Living with lung cancer - Introduce yourself & come say hi

Welcome to the Lung Cancer group on Mayo Clinic Connect.
This is a welcoming, safe place where you can meet people living with lung cancer or caring for someone with lung cancer. Let’s learn from each other and share stories about living well with cancer, coping with the challenges and offering tips.

I’m Colleen, and I’m the moderator of this group, and Community Director of Connect. Chances are you’ll to be greeted by volunteer patient Mentors and fellow members when you post to this group. Learn more about Moderators and Mentors on Connect.

We look forward to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.
Let’s chat. Why not start by introducing yourself?

@colleenyoung

Always good to hear from you when you do post, @meka. Great advice for @scoop2365
Meka, how are you doing?

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Good morning @meka, @bluelagoon @scoop2365 @alamogal635– My CT scan came back as unchanged, everything is stable! There were no changes! Yipee! I will have another CT scan in 6 months! That will make 22 1/2 years! Wahoo!

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@merpreb

Good morning @meka, @bluelagoon @scoop2365 @alamogal635– My CT scan came back as unchanged, everything is stable! There were no changes! Yipee! I will have another CT scan in 6 months! That will make 22 1/2 years! Wahoo!

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Congratulations! You’re an inspiration for so many.

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Hello Everyone. Last week I found this group in search of friendly ears and good advise and knowledge. I posted about how my wife's doctor told her through a X-ray she was showing a 1.7 cm and 3 cm nodule. This created so much concern that I had nowhere to turn except for hear. For those of you who responded with encouraging words and advise ,I thank you all. Our prayers were herd. We had a Ct scan on a Sunday and then had a appointment 4 days later with the specialist. The news was good. He has told my wife that she has pneumonia. Wow what a relief. He proscribed her with what he called a 5 day pill and sent us on our way. He said the CT scan showed no signs of lung cancer. As a precaution we will be going back just to see if everything is 100% ok in the next 4 to 6 weeks. I want to thank you all, and wish you all the very best and my prayers will go out to every one of you. Merry Christmas and live to the fullest each and every day.
Regards
Peter

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@scoop2365

Hello Everyone. Last week I found this group in search of friendly ears and good advise and knowledge. I posted about how my wife's doctor told her through a X-ray she was showing a 1.7 cm and 3 cm nodule. This created so much concern that I had nowhere to turn except for hear. For those of you who responded with encouraging words and advise ,I thank you all. Our prayers were herd. We had a Ct scan on a Sunday and then had a appointment 4 days later with the specialist. The news was good. He has told my wife that she has pneumonia. Wow what a relief. He proscribed her with what he called a 5 day pill and sent us on our way. He said the CT scan showed no signs of lung cancer. As a precaution we will be going back just to see if everything is 100% ok in the next 4 to 6 weeks. I want to thank you all, and wish you all the very best and my prayers will go out to every one of you. Merry Christmas and live to the fullest each and every day.
Regards
Peter

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@scoop2365– Scoop! Phew! What wonderful news. Relax and enjoy life!

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Thanks for thr welcome Colleen. I'm a recently diagnosed, actually I had a CT that showed a "suspicious, spinated (?)" lesion and am gathering any and all good information I can get!. I'll check back after I've met with an oncologist.

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@mrmouth19

Thanks for thr welcome Colleen. I'm a recently diagnosed, actually I had a CT that showed a "suspicious, spinated (?)" lesion and am gathering any and all good information I can get!. I'll check back after I've met with an oncologist.

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@mrmouth19– Good morning and welcome to Mayo Clinic Connect. I looked high and low for "spinated" lesion and for the life of me I couldn't find the term. Do you have a better spelling?
I have an unusual lung cancer called multi-focal adenocarcinoma of the lung- it's plagued me for 12 years. Ten years before that I had my first cancer which was a simple adenocarcinoma, very fast growing.
Have you had your appointment with your oncologist?

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@merpreb

Good morning @meka, @bluelagoon @scoop2365 @alamogal635– My CT scan came back as unchanged, everything is stable! There were no changes! Yipee! I will have another CT scan in 6 months! That will make 22 1/2 years! Wahoo!

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Great news to hear merry. Hope younhave a very merry christmas

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@merpreb

@mrmouth19– Good morning and welcome to Mayo Clinic Connect. I looked high and low for "spinated" lesion and for the life of me I couldn't find the term. Do you have a better spelling?
I have an unusual lung cancer called multi-focal adenocarcinoma of the lung- it's plagued me for 12 years. Ten years before that I had my first cancer which was a simple adenocarcinoma, very fast growing.
Have you had your appointment with your oncologist?

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@mrmouth19– Good morning. I'm checking up to see how you are doing. I haven't heard from you since December 20, 2019. May I help you in any way?

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@sakota

Great news to hear merry. Hope younhave a very merry christmas

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@sakota Hello Joan:

I just wanted to check in with you and see how you are doing. I see that you were dealing with a lot of health problems in December.

I would enjoy hearing from you. Will you post an update when it's convenient for you?

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I was diagnose with two kinds of lung cancer in 1916. I have mesothelioma in my left lung and plain old cancer in my right lung. I have been on Mayo Clinic Connect for several years, but have not been here for several months. I have been talking with Colleen and Teresa for several years. I would like to visit with Colleen and Teresa. Thank you. I would update them for the past six months.

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@shortshot80

I was diagnose with two kinds of lung cancer in 1916. I have mesothelioma in my left lung and plain old cancer in my right lung. I have been on Mayo Clinic Connect for several years, but have not been here for several months. I have been talking with Colleen and Teresa for several years. I would like to visit with Colleen and Teresa. Thank you. I would update them for the past six months.

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Hi Nancy @shortshot80, welcome back to Mayo Clinic Connect. It is so good to hear from you again. I'm sure Teresa @hopeful33250 will be equally delighted to get an update from you and hear what has been going on the past 6 months.

How are you doing?

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@shortshot80

I was diagnose with two kinds of lung cancer in 1916. I have mesothelioma in my left lung and plain old cancer in my right lung. I have been on Mayo Clinic Connect for several years, but have not been here for several months. I have been talking with Colleen and Teresa for several years. I would like to visit with Colleen and Teresa. Thank you. I would update them for the past six months.

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@shortshot80 Hello Nancy, It is so good to hear from you! I hope you are feeling better now. I look forward to your update of the last 6 months.

Just wondering, how is your book coming along?

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I was diagnosed with stage 1A lung cancer. They followed the nodule for 15 months and when there was change I had VAT surgery. I have had (1) 4-month scan with no change and my next scan is in April. I am 79 but find I can not make any long term commitments for business or personal matters as I don't know what to expect from scan to scan. I have not required further treatment at this point. I started at Mayo Rochester but had my surgery at Rush in Chicago near my family. Both hospitals and staff are excellent. I am thankful for this time but wish there was some medical professional who could render advice about possible reoccurrence and available treatments.

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@shortshot80

I was diagnose with two kinds of lung cancer in 1916. I have mesothelioma in my left lung and plain old cancer in my right lung. I have been on Mayo Clinic Connect for several years, but have not been here for several months. I have been talking with Colleen and Teresa for several years. I would like to visit with Colleen and Teresa. Thank you. I would update them for the past six months.

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@shortshot80– Good morning Nancy. I remember when I became a mentor for the lung cancer group that you were just leaving for your surgeries. And I have read your occasional posts. I'm so glad that the surgeries are behind you and that you back!
I realize that you feel especially close to Colleen and Teresa. They are so warm and understanding. Since you have left I have become the mentor for Lung Cancer. I have multifocal adenocarcinoma of the lung. I have this type of cancer for 12+ years and another 10 years before that.
Through Colleen's unique ability to bring more mentors into Connect we can now share more mentoring and let her have more time for admin work and making sure that we are all doing what needs to be doing. lol We find that the more people who share their stories and experiences actually help others. We are quite a community here!
I hope that you will feel safe amongst those of us who have had similar cancers to share your story. I'm sure that it will help all of us!

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@woodedareas

I was diagnosed with stage 1A lung cancer. They followed the nodule for 15 months and when there was change I had VAT surgery. I have had (1) 4-month scan with no change and my next scan is in April. I am 79 but find I can not make any long term commitments for business or personal matters as I don't know what to expect from scan to scan. I have not required further treatment at this point. I started at Mayo Rochester but had my surgery at Rush in Chicago near my family. Both hospitals and staff are excellent. I am thankful for this time but wish there was some medical professional who could render advice about possible reoccurrence and available treatments.

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Goodmorning @woodedareas and welcome to Mayo Connect. I feel your frustration with not being able to see into the future and making plans. My first cancer was exactly like yours and mine (1B) never came back after surgery. I wondered the same things that you are now. I just couldn't believe that I didn't need chemo or something else like radiation. I actually wrote a blog post about my frustrations with it. I know that it sounds crazy but in 1997 I thought that everyone had to have these two things! https://my20yearscancer.com/lung-cancer-survivor/
I wish that I could wave a magic wand and let us all know what the future holds for all of us who have had cancer. There are so many treatment options available now. But, as you know, no one can tell us about recurrences. My second cancer, a multifocal adenocarcinoma was 10 years after my first. I needed radiation and that put a huge kibosh on any future plans, as you can well imagine.
I had a trip to Israel planned about 2+ years ago. But I needed an SBRT (a type of radiation) to kill a new lesion. My radiologist put a stop on the trip. We had taken out travel insurance and I got every cent back.
I have also been very honest with people about my having cancer when making plans for the future. I can't tell you how many dinners that I have canceled, or other social plans. I don't know how you will deal with business plans. I really do suggest being open and honest about it, if you haven't already.
My suggestion is to make plans. Live your life the way you want and work it around what your main priority is now, taking care of yourself. As you get further and further from your surgery you will see that even if your life has changed the future is still there to be grabbed!
Merry

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