Living with lung cancer - Introduce yourself & come say hi

Welcome to the Lung Cancer group on Mayo Clinic Connect.
This is a welcoming, safe place where you can meet people living with lung cancer or caring for someone with lung cancer. Let’s learn from each other and share stories about living well with cancer, coping with the challenges and offering tips.

I’m Colleen, and I’m the moderator of this group, and Community Director of Connect. Chances are you’ll to be greeted by volunteer patient Mentors and fellow members when you post to this group. Learn more about Moderators and Mentors on Connect.

We look forward to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.
Let’s chat. Why not start by introducing yourself?

@armstg

Thanks. I think my expectations may be too high. I do fine with normal activities; water aerobics three days a week and walking 2-4 miles most days. I just struggle with physical exertion such as shoveling snow, raking leaves, or packing things up stairs. I had a left upper lobe lobectomy and will be 72 this year.

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@armstg– Good morning. I haven't heard from you in a while. How is your winter going? How are you feeling?

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@merpreb

Goodmorning @woodedareas and welcome to Mayo Connect. I feel your frustration with not being able to see into the future and making plans. My first cancer was exactly like yours and mine (1B) never came back after surgery. I wondered the same things that you are now. I just couldn't believe that I didn't need chemo or something else like radiation. I actually wrote a blog post about my frustrations with it. I know that it sounds crazy but in 1997 I thought that everyone had to have these two things! https://my20yearscancer.com/lung-cancer-survivor/
I wish that I could wave a magic wand and let us all know what the future holds for all of us who have had cancer. There are so many treatment options available now. But, as you know, no one can tell us about recurrences. My second cancer, a multifocal adenocarcinoma was 10 years after my first. I needed radiation and that put a huge kibosh on any future plans, as you can well imagine.
I had a trip to Israel planned about 2+ years ago. But I needed an SBRT (a type of radiation) to kill a new lesion. My radiologist put a stop on the trip. We had taken out travel insurance and I got every cent back.
I have also been very honest with people about my having cancer when making plans for the future. I can't tell you how many dinners that I have canceled, or other social plans. I don't know how you will deal with business plans. I really do suggest being open and honest about it, if you haven't already.
My suggestion is to make plans. Live your life the way you want and work it around what your main priority is now, taking care of yourself. As you get further and further from your surgery you will see that even if your life has changed the future is still there to be grabbed!
Merry

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@woodedareas– Good morning. I hope that I didn't scare you away. How are you?

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@shortshot80

c
olleenyoung.
Yes, I would be interested in seeing what other people are doing with stage three Kidney disease. (
Shortshot80) Thanks Colleen@

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) Hi Colleen, Nancy (short shot) I've been on here several times in the past couple weeks. I have a cardiologist appt tomorrow and I will be having my left lung drained on Monday 24th of Feb. 2020. I also had radiation on Jan 22. Now my friend a PT stopped b
yesterday and noticed me still limping around and in visiting he told me to get checked by my primary doc as he thought maybe the urinary infection that I had so long may have settled into my hip/leg bone. So I have a appt netxt Tuesday to visit with my doc on all the stuff I have been going through. Now will you tell me where to go in here where I would be on the pages for 2020. All I seem to find is 2017… Am lost…. Nancy

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@shortshot80

) Hi Colleen, Nancy (short shot) I've been on here several times in the past couple weeks. I have a cardiologist appt tomorrow and I will be having my left lung drained on Monday 24th of Feb. 2020. I also had radiation on Jan 22. Now my friend a PT stopped b
yesterday and noticed me still limping around and in visiting he told me to get checked by my primary doc as he thought maybe the urinary infection that I had so long may have settled into my hip/leg bone. So I have a appt netxt Tuesday to visit with my doc on all the stuff I have been going through. Now will you tell me where to go in here where I would be on the pages for 2020. All I seem to find is 2017… Am lost…. Nancy

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Hi Nancy @shortshot80, my goodness you have a lot going on. I'm glad that your friend was alerted to a possible urinary infection and that you're getting that looked at as well. Did you experience any side effects with the radiation in January?

Some discussions started in 2017 and continue to be active today, like this one. Here's how to see the most recent discussions and posts:
1. Go to the Lung Cancer group https://connect.mayoclinic.org/group/lung-cancer/
Discussions at the top are the most recently active, i.e., had a new post added. The rest are listed in reverse chronological order.
2. Click a discussion that interests you.
3. Now you can read the discussion from beginning to end or you can choose to view "Newest to Oldest" and see the recent posts.

You can learn more about this functionality here:
– [TIP] Customize the Order You View Posts – See New Posts First https://connect.mayoclinic.org/discussion/new-customize-the-order-you-view-posts-see-new-posts-first/

Does that make sense?

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@shortshot80

) Hi Colleen, Nancy (short shot) I've been on here several times in the past couple weeks. I have a cardiologist appt tomorrow and I will be having my left lung drained on Monday 24th of Feb. 2020. I also had radiation on Jan 22. Now my friend a PT stopped b
yesterday and noticed me still limping around and in visiting he told me to get checked by my primary doc as he thought maybe the urinary infection that I had so long may have settled into my hip/leg bone. So I have a appt netxt Tuesday to visit with my doc on all the stuff I have been going through. Now will you tell me where to go in here where I would be on the pages for 2020. All I seem to find is 2017… Am lost…. Nancy

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@shortshot80 Hi Nancy,

I'm sorry to hear of your continued problems but glad to hear that a friend with a medical background alerted you to the urinary tract problem. I do hope that all goes well for you on Monday when you have your left lung drained.

Have you had your lung drained previously, or is this the first time?

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@shortshot80

) Hi Colleen, Nancy (short shot) I've been on here several times in the past couple weeks. I have a cardiologist appt tomorrow and I will be having my left lung drained on Monday 24th of Feb. 2020. I also had radiation on Jan 22. Now my friend a PT stopped b
yesterday and noticed me still limping around and in visiting he told me to get checked by my primary doc as he thought maybe the urinary infection that I had so long may have settled into my hip/leg bone. So I have a appt netxt Tuesday to visit with my doc on all the stuff I have been going through. Now will you tell me where to go in here where I would be on the pages for 2020. All I seem to find is 2017… Am lost…. Nancy

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@shortshot80– How was your appointment with your cardiologist?

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@colleenyoung

Hi Nancy @shortshot80, my goodness you have a lot going on. I'm glad that your friend was alerted to a possible urinary infection and that you're getting that looked at as well. Did you experience any side effects with the radiation in January?

Some discussions started in 2017 and continue to be active today, like this one. Here's how to see the most recent discussions and posts:
1. Go to the Lung Cancer group https://connect.mayoclinic.org/group/lung-cancer/
Discussions at the top are the most recently active, i.e., had a new post added. The rest are listed in reverse chronological order.
2. Click a discussion that interests you.
3. Now you can read the discussion from beginning to end or you can choose to view "Newest to Oldest" and see the recent posts.

You can learn more about this functionality here:
– [TIP] Customize the Order You View Posts – See New Posts First https://connect.mayoclinic.org/discussion/new-customize-the-order-you-view-posts-see-new-posts-first/

Does that make sense?

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Nancy Shotrtshot…. Yes it does make sense.. My friend PT stopped by couple days ago and said as long as I'm still hurting from the surgery (broken hip) that I should see my doc and see if I have another urinary infection and also suggested that I may have infection in my hip bone. So I have appt on Tuesday for that. Will be having my left lung drained on Monday. Saw my cardiologist yesterday and he said I'm good to go till I'm 90. I will be 87 next month.I hope to have my book printed by my birthday. So lots of things going on around here. I will put out a up date after I have my lung drained next Monday. Cheers…… Nancy

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@hopeful33250

@shortshot80 Hi Nancy,

I'm sorry to hear of your continued problems but glad to hear that a friend with a medical background alerted you to the urinary tract problem. I do hope that all goes well for you on Monday when you have your left lung drained.

Have you had your lung drained previously, or is this the first time?

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Yes I had my lung drained twice. October & November 2015, before I knew I had lung cancer. Didn't find that out till Jan. 16 after a surgery. Nancy shortshot

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@shortshot80

Yes I had my lung drained twice. October & November 2015, before I knew I had lung cancer. Didn't find that out till Jan. 16 after a surgery. Nancy shortshot

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@shortshot80– Are you awake for lung drainage? I've had many chest tubes but I've been asleep when they have been inserted but wide awake when they have been taken out, all from surgeries, not for drainage at other times. One time an intern was very instensitive and another time I hardly felt a thing.

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