1. < Transplants

Liver transplant - Let's support each other

Posted by lmctif @lmctif, Oct 29, 2018

What topics do people who are waiting for a liver transplant want to talk about? Who has had a liver transplant and wants to talk about?

Interested in more discussions like this? Go to the Transplants Support Group.

JK | @contentandwell | Feb 2, 2021
In reply to @athenalee "What really struck me about the article is that I wasn’t told about these potential diseases..." + (show)
@athenalee

What really struck me about the article is that I wasn’t told about these potential diseases that are so prevalent post transplant. My transplant team is awesome, and our nutritionist informative. But I think it’s a disservice to have not been fully transparent. I’ve never had high blood pressure, high lipid counts, or high glucose until post transplant. I’m now being even more diligent on healthy eating and exercise so my labs are improving. I’m glad your diabetes is in remission!

Jump to this post

@athenalee I agree with you. I love my transplant team but I was not really made aware of these potential problems from immunosuppressants. I also did not have these problems prior to transplant, except for diabetes which apparently goes hand in hand with cirrhosis.
I am really trying to eat healthily also, and I am trying to concentrate on eating to improve my cholesterol and my bones.
JK

REPLY
Mentor
Rosemary, Volunteer Mentor | @rosemarya | Feb 4, 2021
In reply to @jackie421blfdgurl "Transplant done October 2020. Transplant went well came home from hospital two mos.later. I lost a..." + (show)
@jackie421blfdgurl

Transplant done October 2020. Transplant went well came home from hospital two mos.later. I lost a
Considerate amount of weight. Still working on building up my strength. My stomach area was very soft
And almost flat, very flat as I lay on my back. But two to threes ago my top belly is swollen and surgery site where the new liver is located is also swollen and tender,if I punch on the spot it hurts. I am going for a
MRI but that is not scheduled for another week, any advice

Jump to this post

@jackie421blfdgurl, I hope that you get satisfactory results from your MRI. Is it this week?
I found a discussion for you -
stomach swelling after liver transplant four years ago
https://connect.mayoclinic.org/discussion/stomach-swelling-after-liver-transplant-four-years-ago/

REPLY
1 reply
jackie421blfdgurl | @jackie421blfdgurl | Feb 4, 2021
In reply to @rosemarya "@jackie421blfdgurl, I hope that you get satisfactory results from your MRI. Is it this week? I..." + (show)
@rosemarya

@jackie421blfdgurl, I hope that you get satisfactory results from your MRI. Is it this week?
I found a discussion for you -
stomach swelling after liver transplant four years ago
https://connect.mayoclinic.org/discussion/stomach-swelling-after-liver-transplant-four-years-ago/

Jump to this post

Yes MRI was complicated yesterday my doctor already has report but now needs the disk. Don’t know anything. But I will get her the disk we have an appointment nx
Thursday. Thanks for asking. I am praying a pill will solve this.

REPLY
1 reply
jackie421blfdgurl | @jackie421blfdgurl | Feb 5, 2021
In reply to @jackie421blfdgurl "Yes MRI was complicated yesterday my doctor already has report but now needs the disk. Don’t..." + (show)
@jackie421blfdgurl

Yes MRI was complicated yesterday my doctor already has report but now needs the disk. Don’t know anything. But I will get her the disk we have an appointment nx
Thursday. Thanks for asking. I am praying a pill will solve this.

Jump to this post

I picked up the report and disc
From radiologist. I read report
Apparently there is a collection
Of fluid that builds up under skin after surgery it&apos;s composed of blood
plasma that seeps out of ruptured bld
Vessels...if this is my denarii
Draining maybe !! I see doctor
Monday...thanks for asking

REPLY
Moderator
Colleen Young, Connect Director | @colleenyoung | Feb 10, 2021
In reply to @tgm512500 "This was very helpful Thanks" + (show)
@tgm512500

This was very helpful

Thanks

Jump to this post

Hi @tgm512500, welcome. Are you a liver transplant recipient? I would like to learn more about you and your transplant story.

REPLY
racing212 | @racing212 | Feb 13, 2021
In reply to @rosemarya "@jackie421blfdgurl, I am in Kentucky and my transplant Center in in Minnesota (750 miles). I can..." + (show)
@rosemarya

@jackie421blfdgurl, I am in Kentucky and my transplant Center in in Minnesota (750 miles). I can understand how the distance and travel planning can complicate things. I rely on my local primary care doctor who is willing to work in cooperation with my Transplant team at Mayo in MN.
Like you, I found myself at home and alone in a world on non-transplant family and friends. I find great comfort and companionship in the interaction with others who are like me on Connect. I enjoy learning from each other and supporting each other. I hope that you will feel the same.
I am sharing a link to some immunosuppressant medicine and side effects for you to look at. It is going to be your doctors who regulate and advise you about your meds.
Immunosuppression: Watching For and Managing Side Effects
https://connect.mayoclinic.org/page/transplant/newsfeed-post/immunosuppression-watching-for-and-managing-side-effects/

When is your MRI? Is it local? or do you need to travel to the transplant center?
What is the status of your swelling and pain?

Jump to this post

I was at Mayo MN over the week and my meld score went up and I also was told that I have kidney cancer

REPLY
2 replies
Moderator
Colleen Young, Connect Director | @colleenyoung | Feb 14, 2021
In reply to @racing212 "I was at Mayo MN over the week and my meld score went up and I..." + (show)
@racing212

I was at Mayo MN over the week and my meld score went up and I also was told that I have kidney cancer

Jump to this post

@racing212, I'm sorry to hear the news about their finding kidney cancer. How does this affect the waiting for a liver transplant?

Let me know if you'd like to connect with others who have kidney cancer.

REPLY
racing212 | @racing212 | Feb 14, 2021

Thanks. I'm doing ok just wasn't expecting to hear that. I'm not sure how that affects the liver wait time

REPLY
2 replies
racing212 | @racing212 | Feb 14, 2021
In reply to @racing212 "Thanks. I'm doing ok just wasn't expecting to hear that. I'm not sure how that affects..." + (show)
@racing212

Thanks. I'm doing ok just wasn't expecting to hear that. I'm not sure how that affects the liver wait time

Jump to this post

Send me to the message board for kidney cancer

REPLY
1 reply
Moderator
Colleen Young, Connect Director | @colleenyoung | Feb 14, 2021
In reply to @racing212 "Send me to the message board for kidney cancer" + (show)
@racing212

Send me to the message board for kidney cancer

Jump to this post

@racing212, you will find people talking about kidney or renal cancer in the Cancer group: https://connect.mayoclinic.org/group/cancer/
Here are some specific discussions:
- Re: My Scan Results for followup of Renal Cell Carcinoma https://connect.mayoclinic.org/discussion/re-scans/
- Sutent for renal cell carcinoma: What are the side effects? https://connect.mayoclinic.org/discussion/sutent/
- Staging Renal Cell Carcinoma https://connect.mayoclinic.org/discussion/renal-cell-carcinoma-1/

REPLY
View MoreView Less
Please sign in or register to post a reply.