stomach swelling after liver transplant four years ago

Posted by deejean123 @deejean123, Jan 24, 2017

I have a concern and would like to hear if anyone else has had this problem — I was given a new recliner two months ago and in the past two weeks when I get up from it after having it reclined in a semi laying position== I have noticed a pulling in the rt side of my stomach area below my rt breast. In the past week now my stomach is swelling and if I sit on my bed and bend over to put on socks or shoes that I have to tie, my swelling feels like it is being pinched
I go to Cleveland clinic on the 15th of Feb for my yearly checkup and I will have a procedural catscan so I don’t want to go to the er and have one here since the appointment is so close == any suggestions

@deejean123, Welcome to Connect. I am 7 years post liver/kidney transplant. I have not experienced the problem that you are describing. I can understand your not wanting to go to the ER. But if you start to develop worsening symptoms, or a fever, please go and get it checked out.
Unfortunately, our health complications don’t always coincide with our scheduled appointments. I encourage you to contact your transplant coordinator at Cleveland Clinic. He/she would be the best qualified to give you some advice.
I live 800 miles away from my transplant center. And I have experienced much comfort and advice by way of phone communication. Plus they have also spoken with my local docs when necessary.
I hope you can resolve this issue. I’m interested in learning what is going on, in case I ever experience anything similar.
Rosemary

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thanks so much Rosemary I have connected with the my chart at Cleveland Clinic and am hoping for a response tonight or tomorrow as to what they advise once again thanks

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@deejean123

thanks so much Rosemary I have connected with the my chart at Cleveland Clinic and am hoping for a response tonight or tomorrow as to what they advise once again thanks

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I’m glad I could lend some support to a fellow transplant recipient! We have to be extra careful and look out for each other.
Rosemary

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hello, do you still have your gall bladder. Right side below the breast sits your gall bladder. Something to check on

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@deejean123

thanks so much Rosemary I have connected with the my chart at Cleveland Clinic and am hoping for a response tonight or tomorrow as to what they advise once again thanks

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@deejean123, How are you feeling? And if you are comfortable to share- Are you okay to wait until your appointment on 15th?
Rosemary

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Hi, @deejean123. According to my calendar, you are at Cleveland Clinic for your annual review. Hope all is going well for you as you navigate those appointments. I also hope that you did/will get a resolution for your right side pain.
Hugs from a fellow transplant recipient.
Rosemary

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@harliegirl

hello, do you still have your gall bladder. Right side below the breast sits your gall bladder. Something to check on

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Hi Robin @harliegirl,
Thanks for the suggestion for @deejean123 with respect to the pain she is experiencing on her right side. Deejean, did you get any answers at your appointment or through MyChart?

Robin,
We look forward to getting to know you. Can you tell us a bit about yourself?

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@rosemarya

@deejean123, Welcome to Connect. I am 7 years post liver/kidney transplant. I have not experienced the problem that you are describing. I can understand your not wanting to go to the ER. But if you start to develop worsening symptoms, or a fever, please go and get it checked out.
Unfortunately, our health complications don’t always coincide with our scheduled appointments. I encourage you to contact your transplant coordinator at Cleveland Clinic. He/she would be the best qualified to give you some advice.
I live 800 miles away from my transplant center. And I have experienced much comfort and advice by way of phone communication. Plus they have also spoken with my local docs when necessary.
I hope you can resolve this issue. I’m interested in learning what is going on, in case I ever experience anything similar.
Rosemary

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I am 3 ur past liver transplant and I am sleeping for days and all the sudden it looks like I'm getting a hernia.

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@kimm53, I think that you should contact your transplant team. Whenever you are experiencing any kind of unusual or 'all of a sudden" symptoms, you need to talk to them. We transplant people have to get accurate advise from our medical staff.
Will you let me know what you find out?

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I'm new on here and I'm following your post. May I ask how was your outcome from your Dr. appt.? My stomach is swelling again from my liver transplant in March of this year 2020. I've already had one paracentesis in April not sure if I need another. Anyone?

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@rgt

I'm new on here and I'm following your post. May I ask how was your outcome from your Dr. appt.? My stomach is swelling again from my liver transplant in March of this year 2020. I've already had one paracentesis in April not sure if I need another. Anyone?

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@rgt, Welcome to Connect. I want to Congratulate you on your liver transplant in March. I had my liver and kidney transplant in 2009, and I did not need any paracentesis after my transplant, although I did have my fair share of them before it. Was your April paracentesis performed by your transplant center or at a local facility? What are your transplant doctors saying about why you are accumulating fluid your abdomen?

I would like to invite you to post your question in the Liver transplant support group where it can be more readily viewed by liver transplant recipients. You can click on this link in blue > https://connect.mayoclinic.org/discussion/liver-support-group/

Here is a discussion where new transplant patients are sharing in Post Transplant Surgery and Early Recovery: What's normal? > https://connect.mayoclinic.org/discussion/post-liver-transplant/

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@rosemarya

@deejean123, Welcome to Connect. I am 7 years post liver/kidney transplant. I have not experienced the problem that you are describing. I can understand your not wanting to go to the ER. But if you start to develop worsening symptoms, or a fever, please go and get it checked out.
Unfortunately, our health complications don’t always coincide with our scheduled appointments. I encourage you to contact your transplant coordinator at Cleveland Clinic. He/she would be the best qualified to give you some advice.
I live 800 miles away from my transplant center. And I have experienced much comfort and advice by way of phone communication. Plus they have also spoken with my local docs when necessary.
I hope you can resolve this issue. I’m interested in learning what is going on, in case I ever experience anything similar.
Rosemary

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I had a liver and kidney transplant 10/24/20. I have the same symptoms as you described. I had a cat and it shows fluid, but prescribed diuretics rather than drain. My right side has eased up, but my stomach is way bloated especially under belly button. I also don’t sleep well at all.

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@lvowell

I had a liver and kidney transplant 10/24/20. I have the same symptoms as you described. I had a cat and it shows fluid, but prescribed diuretics rather than drain. My right side has eased up, but my stomach is way bloated especially under belly button. I also don’t sleep well at all.

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@lvowell, Welcome to Mayo Connect and a Congratulations on your liver and kidney transplant. I see that today marks 2 months since your transplant surgery, so I think it is safe to say that your body is still getting adjusted to the new medications and the new organs.

It sounds like you are saying that the diuretics have reduced the fluid accumulation/swelling in the right side of your abdomen.
But what about the bloating – Have your doctors said if this is related to the fluid retention? Or is it a digestive issue related to bowels or new foods that you are reintroducing to your diet? Constipation can be a problem for us after transplant because of our activity level and also because of the medications that we must take. I had my liver and kidney transplant in 2009, and I do remember a different abdominal pain as I healed and as I began to get more active. I later learned that my pain was attributed to scar tissue and to my increased physical activity. In that situation, I was advised to go easy and to gradually increase my activity level. It gave me peace of mind to know that I was okay and as I increased my exercise and walking, the pain diminished as did my irregularity and constipation.

Are you running a temperature? Have you mentioned the pain to your transplant team?

lvowell, I have a discussion to share with you where you can join the conversation and ask your question so that other new transplant recipients will see it. Post Transplant Surgery and Early Recovery: What's normal?
https://connect.mayoclinic.org/discussion/post-liver-transplant/

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I did stay in the hospital. They did ultrasound, ct scan and said all were good. Said had fluid in abdomen, around heart and lungs. They didn’t want to do para drain. I haven’t been as active while hurting and taking colace. My opinion a drain once would help, but they are the drs. I am itching all in the abdomen, but they said it’s healing. I need to be patient. I did so great right after surgery that I was only in the hospital 5 days. It does really not when I eat even the smallest of meals. They say I am young into this and it takes time to heal. I am so blessed and few guilty of the sanest complaint. Without the transplants I would not be here to enjoy life. I a forever grateful.

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@lvowell

I did stay in the hospital. They did ultrasound, ct scan and said all were good. Said had fluid in abdomen, around heart and lungs. They didn’t want to do para drain. I haven’t been as active while hurting and taking colace. My opinion a drain once would help, but they are the drs. I am itching all in the abdomen, but they said it’s healing. I need to be patient. I did so great right after surgery that I was only in the hospital 5 days. It does really not when I eat even the smallest of meals. They say I am young into this and it takes time to heal. I am so blessed and few guilty of the sanest complaint. Without the transplants I would not be here to enjoy life. I a forever grateful.

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@lvowell, I want to visit (from a safe distance) today. How are you feeling? Have you been able to get any relief from the stomach bloating?

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