Liver transplant - Let's support each other

Posted by lmctif @lmctif, Oct 29, 2018

What topics do people who are waiting for a liver transplant want to talk about? Who has had a liver transplant and wants to talk about?

Interested in more discussions like this? Go to the Transplants Support Group.

Profile picture for Ginger, Volunteer Mentor @gingerw

@rodney9999 Because organ recipients are on immunosupressants, there seems to be a higher incident of them developing skin cancer. A visit to the dermatologist will include a visual check by that person, to check for any signs of skin cancer. They will advise you to have a yearly or even semi-annual check. Congratulations on your successful transplant! How are you feeling these days?
Ginger

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I have been doing well since transplant. Thanks for asking and thanks for the information.

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Profile picture for rodney9999 @rodney9999

I am 6 months post transplant and am scheduled to see a dermatologist next week. I use sunscreen regularly but not sure what to expect.

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@rodney9999 Because organ recipients are on immunosupressants, there seems to be a higher incident of them developing skin cancer. A visit to the dermatologist will include a visual check by that person, to check for any signs of skin cancer. They will advise you to have a yearly or even semi-annual check. Congratulations on your successful transplant! How are you feeling these days?
Ginger

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I am 6 months post transplant and am scheduled to see a dermatologist next week. I use sunscreen regularly but not sure what to expect.

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Profile picture for livertrex @livertrex

I just had a liver transplant in August at the Mayo Clinic in Arizona everything went well it's taking a little longer to get back on my feet and I thought ,I guess I had great expectations I'll have the great expectations for you too so congratulations on your liver transplant and the doctor had me go ahead and get a dermatologist in my local community look at Maya dark spots all over my body and give me a plan to move forward with him to make sure that I wore sunscreen. Thank you

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@livertrex I am just seeing a dermatologist now. Some of my brown sun spots have turned cancerous and a biopsy has been taken on the largest one. I am waiting for results and am sure they will be removed in office. This has happened post transplant. I'm not sure if this relates to your conversation or not but thought I'd share anyway. I am now 9 months post transplant.

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Profile picture for JK @contentandwell

@racing212 When you go back for more tests will they determine if the “spots” are benign or malignant? I had malignant lesions and they did an ablation to get rid of them. That was more than a year before my transplant which occurred in September 2016.
JK

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I just had a liver transplant in August at the Mayo Clinic in Arizona everything went well it's taking a little longer to get back on my feet and I thought ,I guess I had great expectations I'll have the great expectations for you too so congratulations on your liver transplant and the doctor had me go ahead and get a dermatologist in my local community look at Maya dark spots all over my body and give me a plan to move forward with him to make sure that I wore sunscreen. Thank you

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Profile picture for racing212 @racing212

Im on the list for liver transplant...went to Rochester last week for more tests and found out there's 3 spots that could turn into a tumor. My meld score also went up from 3 months ago. I go back in December for more tests..... Chuck

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@racing212 When you go back for more tests will they determine if the “spots” are benign or malignant? I had malignant lesions and they did an ablation to get rid of them. That was more than a year before my transplant which occurred in September 2016.
JK

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Profile picture for Rosemary, Volunteer Mentor @rosemarya

@racing212, It is good to hear that you are being monitored for this while it is a 'could be' tumor. My Mayo experience is that they will keep a close watch on it for you. I know that this is not a comfortable position to be in. I was believed to have cancer tumors in my bile ducts and my local transplant hospital was unable to get tissue samples so they had to inactivate me from the transplant list until they could get me to the Mayo team in Rochester for the tests. I did not have cancer and was able to be activated again. Rodney, I will be thinking of you during this time.
When you return in December, do you know what kind of tests they will do?
With an increased score, have your symptoms changed any?

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I go back for another ct scan blood work and an ultra sound....

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Profile picture for benlam11 @benlam11

This site is almost like SPAM !!!! If you register and forget your
password - you cannot retrieve it , if you try to Unsubscribe - you need
your password. So your stuck with endless emails.

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Hi @benlam11, I can help. Please send me an email using this form https://connect.mayoclinic.org/contact-a-community-moderator/

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Profile picture for Rosemary, Volunteer Mentor @rosemarya

@contentandwell - Happy Transplant Anniversary! You and your husband look wonderfully happy.
I firmly believe in celebrating our successes and especially our transplant! Thanks for sharing.

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This site is almost like SPAM !!!! If you register and forget your
password - you cannot retrieve it , if you try to Unsubscribe - you need
your password. So your stuck with endless emails.

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