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lmctif (@lmctif)

Liver transplant support group

Transplants | Last Active: 14 hours ago | Replies (1029)

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@rosemarya

@livertrex, Congratulations on your transplant one month ago! I am glad to hear that you are going home.

I remember that when I went home after my transplant, my husband and I felt suddenly alone without our nurses and doctors nearby. I want to share a couple of links with you. I invite you to enter the conversation as you are comfortable. And ask any questions as you think of them.

– Post-Transplant Mental Health & Well-being: Q&A with Shelia Jowsey-Gregoire, M.D.
You can read an interview with Here Shelia Jowsey-Gregoire, M.D., psychiatrist in the transplant center at Mayo Clinic’s campus in Rochester, Minnesota. Here is what she says, "One thing we watch for is any changes to sleep or mood as a result of new immunosuppressive therapy. If there are any negative side effects, we work to address those right away."
https://connect.mayoclinic.org/page/transplant/newsfeed-post/post-transplant-mental-health-well-being-qa-with-shelia-jowsey-gregoire-m-d/
– Changes after Transplant – This is a group discussion where members have shared their own experiences with their new lives after transplant.
https://connect.mayoclinic.org/discussion/changes-after-transplant/
Are you able to take naps during the daytime hours?
Have you spoken to your transplant coordinator or team about the sleep issues since they have taken you off prednisone? What have they suggested?

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Replies to "@livertrex, Congratulations on your transplant one month ago! I am glad to hear that you are..."

Thanks, I live in a small community. I get a lot of support from my chuch. But it is nice to talk to people that are going through the same issues. I am resting and if the Broncos don't start playing some football. I am going to nod off. Thanks for your support.