1. < Digestive Health

Liver hemangioma/liver resection

Posted by phillrachel @phillrachel, Oct 26, 2017

I have been referred to mayo for a giant liver hemangioma to discuss liver resection surgery. Has anyone had a liver resection? Just curious how the Mayo process goes and the surgery.

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Lisa | @techi | Nov 3, 2017
In reply to @kanaazpereira "Hello @phillrachel, Welcome to Connect. I'm so glad you've joined this group. I'd like to start..." + (show)
@kanaazpereira

Hello @phillrachel,

Welcome to Connect. I'm so glad you've joined this group. I'd like to start by introducing you to fellow member @pkindron who has shared some great insights information about her liver resection at Mayo Clinic. I'm also tagging @martid and @tgirl who have posted about liver resection, and I'm certain they will return to share their thoughts and experiences.

Here's some information about liver hemangioma from Mayo Clinic:
https://www.mayoclinic.org/diseases-conditions/liver-hemangioma/symptoms-causes/syc-20354234

I'd also like to mention that the multidisciplinary approach at Mayo Clinic lets you benefit from the knowledge and experience of each specialist on your care team. Team members collaborate closely in planning each individual's care. This link will give you a few more details about your care at Mayo Clinic:
https://www.mayoclinic.org/diseases-conditions/liver-problems/care-at-mayo-clinic/why-choose-mayo-clinic/con-20025300

@phillrachel, may I ask about your symptoms? Did you have any pain that led to this diagnosis? What tests did you have to undergo to detect the hemangioma?

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Liver hemangioma I was also wondering about this diagnoses. I read both of those articles and either went online but what l want to know if you have coils of veins with shunt s is that the same? Because when l came to the Mayo Clinic the vascular medicine doctor said that when they did my TIP surgery they did it wrong and it's all coiled up and one shunt is open but he didn't know how wide. Then he ordered an ultrasound and the next thing is that l have to come back for a consult with a gastroenterologist so l don't know what that means
So l just want to know if this is the same diagnoses. I know they said sometimes it can be corrected with medicine, surgery or of course a transplant which l am really not worried about that but l just want to have some understanding. And if there is a website of TIP surgery uncessiful surgery.

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sheikham1 | @sheikham1 | Nov 26, 2018
In reply to @phillrachel "We actually found my liver hemangioma when I thought I was having a heart attack. Turns..." + (show)
@phillrachel

We actually found my liver hemangioma when I thought I was having a heart attack. Turns out it was a gall bladder attack so when I was 17 weeks pregnant I had my gall bladder removed. I had my first CT scan on my liver in the Fall of 2010 after my pregnancy was done. At the time my hemangioma was already considered giant and was about 6cm if I remember right. I have had annual CT scans since 2010. My most recent one showed that it was now almost 12cm so grapefruit size. My doctor here referred me to Mayo since mine keeps growing as he said I need to look into liver resection and Mayo was the closest surgeon for liver hemangiomas. My doctor here isn't sure why mine keeps growing. Since we found it in 2010 I have not been on birth control or been pregnant again and they believe hormones from both of those cause it to grow. I guess I'm special as mine is still growing! I wouldn't say its so much painful but I guess I would describe it as a more pressure type pain on my upper right side where your liver is. I'm barely five feet tall so I think there is no room for a grapefruit size mass in me! I know my reason for visiting Mayo could be so much worse but from my internet searching it looks like liver resection is a pretty high level surgery since its a major organ and a long recovery. So I'm a bit nervous about having another surgery, especially a major one. So any input from someone who has been through this would be great.

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Hi I was suppose to do my liver hemngioma 21ctm .sep2018 but I had to go through more check up now dr decide to in Dec . I tried to look here is any one went through this surgery?

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1 reply
Mentor
Rosemary, Volunteer Mentor | @rosemarya | Dec 2, 2018
In reply to @sheikham1 "Hi I was suppose to do my liver hemngioma 21ctm .sep2018 but I had to go..." + (show)
@sheikham1

Hi I was suppose to do my liver hemngioma 21ctm .sep2018 but I had to go through more check up now dr decide to in Dec . I tried to look here is any one went through this surgery?

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sheikham1 @sheikham1, I just read your post. I hope your surgery will go smoothly and that you will have a quick recovery. Will your sister be able to be with you as you had planned in September?
Rosemary

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islandmomma | @islandmomma | Dec 12, 2018

I had a liver resection Jan 2018 for a 14 x10 cm tumor on right lobe. They were only able to safely remove this one and left the smaller (2-3cm) lessions on left. Mine was a very rare Biliary Cystadenoma, these can turn into adenocarcinoma with time and are slow growing, so safe to say I had mine for a very, very long time.
I had a liter of fluid drained out of it.
I did have another tumor nearby attched to my diaphragm but this was found to be a mesothelial cell tumor (also rare).

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sheikham1 | @sheikham1 | Feb 3, 2020
In reply to @rosemarya "@sheikham1 - I join Lisa in extending a welcome to you. I am unfamiliar with the..." + (show)
@rosemarya

@sheikham1 - I join Lisa in extending a welcome to you. I am unfamiliar with the condition-liver hemangioma, but I have experienced liver transplant surgery at Mayo Clinic Rochester. I would be happy to share any information from my own experience if that might be helpful to you.

I want to resend you the link that Lisa included in her message.
https://www.mayoclinic.org/diseases-conditions/liver-hemangioma/symptoms-causes/syc-20354234

What can I help you with?

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Thank you rose and i am happy for you . For the success surgery

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Cobs | @cobs | Feb 3, 2020

Has anyone been to Mayo for removal of a giant hemangioma on their liver?

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8 replies
Mentor
Rosemary, Volunteer Mentor | @rosemarya | Feb 3, 2020
In reply to @sheikham1 "The hard part is o don't have my family here what around me my hubby and..." + (show)
@sheikham1

The hard part is o don't have my family here what around me my hubby and 3 kids youngest 9yrs old

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That will be such a comfort to you to have your sisters with you. I know that they will bring you (and family) a big dose of love:-) Best medicine in the world!

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sheikham1 | @sheikham1 | Feb 3, 2020
In reply to @cobs "Has anyone been to Mayo for removal of a giant hemangioma on their liver?" + (show)
@cobs

Has anyone been to Mayo for removal of a giant hemangioma on their liver?

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Sorry i live in laveen . Phoenix

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sheikham1 | @sheikham1 | Feb 3, 2020
In reply to @cobs "Has anyone been to Mayo for removal of a giant hemangioma on their liver?" + (show)
@cobs

Has anyone been to Mayo for removal of a giant hemangioma on their liver?

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Mayo the one in phoenix

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1 reply
sheikham1 | @sheikham1 | Feb 3, 2020
In reply to @sheikham1 "The hard part is o don't have my family here what around me my hubby and..." + (show)
@sheikham1

The hard part is o don't have my family here what around me my hubby and 3 kids youngest 9yrs old

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My sisters trying to come they are from saudi arabia you know no body like your own family

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