Mayo Clinic Connect
I have been referred to mayo for a giant liver hemangioma to discuss liver resection surgery. Has anyone had a liver resection? Just curious how the Mayo process goes and the surgery.
Liked by Kanaaz Pereira, Connect Moderator, GailBL, Volunteer Mentor
@sheikham1 – I join Lisa in extending a welcome to you. I am unfamiliar with the condition-liver hemangioma, but I have experienced liver transplant surgery at Mayo Clinic Rochester. I would be happy to share any information from my own experience if that might be helpful to you.
I want to resend you the link that Lisa included in her message.
What can I help you with?
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Thank you rose and i am happy for you . For the success surgery
@sheikham1, I understand your apprehension about having to undergo surgery. Before my surgery, I was able to talk to a dear friend, a nurse, who explained a lot to me in everyday terms. And my surgeon explained to me what she was going to do, and what th recovery would be like. Both of those wonderful people were a great comfort to me. And as a result, there were no surprises for me.
Have you had the opportunity to speak with your surgeon about the procedure?
Liked by Lisa Lucier
@sheikham1, Thank you for the kind words. When is your surgery scheduled? – I am going to copy and paste your "I'm happy for you….." message to you after you have had your surgery!
Hi rose schedule 27sep but still i am waiting to get appointment lettet for the MRI to see the growth of Hemangioma
Not yet we had some talk before with my Dr
@sheikham1, Okay, so what I understand you to be saying is that you have been referred, but not yet talked to the surgeon. Is that right? Well, take a deep breath and be assured that the surgeon will explain and answer your questions. The level of the surgeon's expertise in his area of specialty, will give you great reassurance about the surgery. Example – I love my PCP, but he will admit that a specialist knows so much more than he does.
I expect that you will be getting that letter in the near future.
Will you have to travel far for the MRI, or for the surgery?
No i have seen a Dr since 2015 i use to live in london move here to be with my husband i had the problem diagnosed in london . And i had 2 liver surgery they try to shrink the hemangioma but didn't work still is growing
Liked by Rosemary, Volunteer Mentor
@sheikham1, Of course you must now be double frightened and concerned about the outcome. Anybody would be in your situation!
While I am not familiar with your condition, except what I read in the link that Lisa and I sent to you, I am confident that the surgeon and the staff at Mayo will be looking into every possible best treatment for you. At Mayo, you might see one doctor, but he/she is part of a team of experts and they consult with each other to discover what is best for the patient. You will be treated as an individual, and your needs will be foremost in the plan, whatever it is.
When my liver condition could not be treated at my local facility due to complications, it was my own transplant team that referred me to Mayo.
I expect that the MRI will give them some more information to consider in preparation for your appointment. I hope that they can find a way to stop the growth og the hemangioma.
How do you feel? Do you have any bothersome symptoms to contend with?
Has anyone been to Mayo for removal of a giant hemangioma on their liver?
No thank god no symptoms only when grow my belly look biger too just concern of grow more then might take all my liver thats why my Dr advise to go for the surgery
The hard part is o don't have my family here what around me my hubby and 3 kids youngest 9yrs old
Which Mayo will you be going to? Do you live nearby?
And how about friends from church or any social groups, or parents of children's friends to help you out?
My sisters trying to come they are from saudi arabia you know no body like your own family
Mayo the one in phoenix
Sorry i live in laveen . Phoenix
That will be such a comfort to you to have your sisters with you. I know that they will bring you (and family) a big dose of love:-) Best medicine in the world!
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