Mayo Clinic Connect
I have been referred to mayo for a giant liver hemangioma to discuss liver resection surgery. Has anyone had a liver resection? Just curious how the Mayo process goes and the surgery.
Liked by Kanaaz Pereira, Connect Moderator, GailBL, Volunteer Mentor
Mayo the one in phoenix
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Liked by Rosemary, Volunteer Mentor
Has anyone been to Mayo for removal of a giant hemangioma on their liver?
@sheikham1, I want to drop in to say that I hope you are doing okay with your waiting for surgery. Have your sisters learned if they will be able to come to be with you?
Liked by Teresa, Volunteer Mentor, Kanaaz Pereira, Connect Moderator
We actually found my liver hemangioma when I thought I was having a heart attack. Turns out it was a gall bladder attack so when I was 17 weeks pregnant I had my gall bladder removed. I had my first CT scan on my liver in the Fall of 2010 after my pregnancy was done. At the time my hemangioma was already considered giant and was about 6cm if I remember right. I have had annual CT scans since 2010. My most recent one showed that it was now almost 12cm so grapefruit size. My doctor here referred me to Mayo since mine keeps growing as he said I need to look into liver resection and Mayo was the closest surgeon for liver hemangiomas. My doctor here isn’t sure why mine keeps growing. Since we found it in 2010 I have not been on birth control or been pregnant again and they believe hormones from both of those cause it to grow. I guess I’m special as mine is still growing! I wouldn’t say its so much painful but I guess I would describe it as a more pressure type pain on my upper right side where your liver is. I’m barely five feet tall so I think there is no room for a grapefruit size mass in me! I know my reason for visiting Mayo could be so much worse but from my internet searching it looks like liver resection is a pretty high level surgery since its a major organ and a long recovery. So I’m a bit nervous about having another surgery, especially a major one. So any input from someone who has been through this would be great.
Hi I was suppose to do my liver hemngioma 21ctm .sep2018 but I had to go through more check up now dr decide to in Dec . I tried to look here is any one went through this surgery?
Liked by GailBL, Volunteer Mentor
sheikham1 @sheikham1, I just read your post. I hope your surgery will go smoothly and that you will have a quick recovery. Will your sister be able to be with you as you had planned in September?
I had a liver resection Jan 2018 for a 14 x10 cm tumor on right lobe. They were only able to safely remove this one and left the smaller (2-3cm) lessions on left. Mine was a very rare Biliary Cystadenoma, these can turn into adenocarcinoma with time and are slow growing, so safe to say I had mine for a very, very long time.
I had a liter of fluid drained out of it.
I did have another tumor nearby attched to my diaphragm but this was found to be a mesothelial cell tumor (also rare).
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