Live Kidney Donation Timeframe

@cares4him, Good Morning, and Welcome to Connect.
I have located the following links that will give you information about paired kidney donation at Mayo Clinic. You will see that Mayo operates in 3 states and they are able to work closely with each other to provide exceptionally good results with matching a recipient to the best matched donor kidney.

- Paired donation
Overview
-https://www.mayoclinic.org/departments-centers/paired-donation/overview/ovc-20508454

- Transplant Living Donors
https://connect.mayoclinic.org/blog/transplant/tab/resource-36/#ch-tab-navigation

- Kidney Transplant Program
https://www.mayoclinic.org/departments-centers/kidney-transplant/home/orc-20203197

I received my organ transplant at Mayo in Rochester in 2009. It was a simultaneous liver and kidney transplant ( both organs from same deceased donor) . I am extremely confident that Mayo has the expertise and the ability to guide you through your transplant journey.

It sounds as if your partner is already listed for a kidney else where (?). Please know that you can contact Mayo by using the contact information that is included in the Kidney Transplant Program link.

Where are you and the donor located?

@cares4him,

Here is the correct link for the Paired Donation Overview:
https://www.mayoclinic.org/departments-centers/paired-donation/overview/ovc-20508454

Thank you!!
He is located in AZ..on the Mayo Registry, has a living donor, but just found out blood types don’t match (not that it was expected). Now, the testing is being completed in April and being put on Paired Kidney list. I was curious what others experience was with timeframes. I know the average is 10 months, but I didn’t know if it could be really fast, or is 10 months around what people are seeing. This is significant based on time to dialysis for him.

Thoughts are with you on this journey! You're halfway there with a willing donor!!

My son and I are also doing a paired donation in AZ if they can ever get his case advanced - I have been approved as a donor but don't match him (I'm an A and he's an O, and he's in his late 20s so they were looking for a closer age match). What we were told is this (do NOT take my word for it, just what I've asked/heard by my donor coordinator):

It is difficult (understandably) to predict timeframes but the paired donor blended average wait time is something like 90 days (this is what NKR publishes), but can range from 1-12 months or longer. It all depends on blood type of the recipient (O waits longer because there's so much demand that they suffer from being the most common type in need, but also the type who can give to anyone) and sensitivities of the recipient (difficult matches due to antibodies), etc. For my son (type O, not at all sensitized) we've had estimates from 2 months to up to 6 months to find a paired match. If the recipient is Type A and non-sensitized, I understand that's the fastest cohort to transplant.

Mayo is part of the NKR network for live donation and are a very well respected NKR program, and I believe their multi-center helps them out further (not fully sure) vs. a single region/single center? I was told that they don't just use their centers - my kidney could go anywhere and his kidney could come from anywhere.

My son is now on dialysis too, so really understand and empathize with you in how it increases your sense of urgency and makes waiting much harder - every day you wait means more than it ever did before.

Good luck to you and your family!!

@tess66, @cares4him

here are 2 discussions started by the same member, who also had questions about paired kidney donation.
-Experience with Paired Kidney Exchange?
https://connect.mayoclinic.org/discussion/experience-with-paired-kidney-exchange/
-Kidney Transplant Last Week! My Little Xmas Miracle
https://connect.mayoclinic.org/discussion/kidney-transplant-last-week-my-little-xmas-miracle/

I am a recipient, however I did not have a living donor, however I want to share the following support discussion where member have shared a wide variety of their own experiences with living donation that includes their struggles as well as delays along the way. As Connect members, you can ask questions there, too.

- What is the Living Donor Process Like?
https://connect.mayoclinic.org/discussion/live-kidney-donation-timeframe/

@tess66 Thank you so much for sharing your story and informing! The donor was just told he cannot donate due to early symptoms of kidney disease. This was a sweet young man who was so excited to donate. But, it brought awareness early in the process, and many of us are coming to the table to get tested now.

Good luck with your process!!!

Hi,

My GRF hit 20 late April 2022 and was prepping for a long wait. Got appointments set up mid and late June to get tested to be out in donor list. Got cleared beginning of July. First person went in August to get test and was a match, got new kidney October 27. I feel very blessed,

The key is don’t be afraid to ask anyone to be your partners an angel donor. Best of luck!!!