← Return to Live Kidney Donation Timeframe

cares4him (@cares4him)

Live Kidney Donation Timeframe

Transplants | Last Active: May 7 7:03am | Replies (7)

Comment receiving replies

Thoughts are with you on this journey! You're halfway there with a willing donor!!

My son and I are also doing a paired donation in AZ if they can ever get his case advanced – I have been approved as a donor but don't match him (I'm an A and he's an O, and he's in his late 20s so they were looking for a closer age match). What we were told is this (do NOT take my word for it, just what I've asked/heard by my donor coordinator):

It is difficult (understandably) to predict timeframes but the paired donor blended average wait time is something like 90 days (this is what NKR publishes), but can range from 1-12 months or longer. It all depends on blood type of the recipient (O waits longer because there's so much demand that they suffer from being the most common type in need, but also the type who can give to anyone) and sensitivities of the recipient (difficult matches due to antibodies), etc. For my son (type O, not at all sensitized) we've had estimates from 2 months to up to 6 months to find a paired match. If the recipient is Type A and non-sensitized, I understand that's the fastest cohort to transplant.

Mayo is part of the NKR network for live donation and are a very well respected NKR program, and I believe their multi-center helps them out further (not fully sure) vs. a single region/single center? I was told that they don't just use their centers – my kidney could go anywhere and his kidney could come from anywhere.

My son is now on dialysis too, so really understand and empathize with you in how it increases your sense of urgency and makes waiting much harder – every day you wait means more than it ever did before.

Good luck to you and your family!!

Jump to this post

Replies to "Thoughts are with you on this journey! You're halfway there with a willing donor!! My son..."

@tess66, @cares4him

here are 2 discussions started by the same member, who also had questions about paired kidney donation.
-Experience with Paired Kidney Exchange?
-Kidney Transplant Last Week! My Little Xmas Miracle
I am a recipient, however I did not have a living donor, however I want to share the following support discussion where member have shared a wide variety of their own experiences with living donation that includes their struggles as well as delays along the way. As Connect members, you can ask questions there, too.

– What is the Living Donor Process Like?

@tess66 Thank you so much for sharing your story and informing! The donor was just told he cannot donate due to early symptoms of kidney disease. This was a sweet young man who was so excited to donate. But, it brought awareness early in the process, and many of us are coming to the table to get tested now.

Good luck with your process!!!