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Drroberts
@drrobertsmsmft

Posts: 26
Joined: Jul 18, 2017

Linx procedure

Posted by @drrobertsmsmft, Jul 18, 2017

Has anyone had the Linz procedure and what was your experience?

REPLY

Hello @drrobertsmsmft and welcome to Mayo Connect! I’m glad that you found this online patient support group. Is the procedure you are asking about for GERD or reflux problems? If so, I believe it is the LINX procedure. Here is Youtube video from Mayo Clinic regarding it,

. We have had other Members of our community discuss reflux and the different treatments please see the discussions at https://connect.mayoclinic.org/discussion/laryngopharyngeal-reflux-lrp-severity-and-outlook/?pg=2#comment-52068.

We look forward to getting to know you. What type of symptoms have you had and for how long? What other treatments have you tried?

Teresa

@hopeful33250

Hello @drrobertsmsmft and welcome to Mayo Connect! I’m glad that you found this online patient support group. Is the procedure you are asking about for GERD or reflux problems? If so, I believe it is the LINX procedure. Here is Youtube video from Mayo Clinic regarding it,

. We have had other Members of our community discuss reflux and the different treatments please see the discussions at https://connect.mayoclinic.org/discussion/laryngopharyngeal-reflux-lrp-severity-and-outlook/?pg=2#comment-52068.

We look forward to getting to know you. What type of symptoms have you had and for how long? What other treatments have you tried?

Teresa

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I have had GERD and acid reflux for some time but recently was diagnosed with esophagitis and a hiatal hernia after an endoscopy. My doctor told me about the LINX procedure and suggested I do some homework about it when I went to see him for continuing symptoms in spite of taking 150 mg. and of ranitidine at bedtime plus numerous Tums per day. I have refused to take any PPIs and now I will be taking ranitidine 300 mg. twice a day

@drrobertsmsmft, Hi doc, can you tell me what are the harmful side effects of. ppis that everyone is so afraid of? Ive been taking them for about 10 years and without them i would have been miserable indeed. Although, i do have trouble swallowing, and gastroparesis. Plus i used to be able to sing and now i cant. I sound like a frog.
Any info would be appreciated, thanks, Dany

@danybegood1

@drrobertsmsmft, Hi doc, can you tell me what are the harmful side effects of. ppis that everyone is so afraid of? Ive been taking them for about 10 years and without them i would have been miserable indeed. Although, i do have trouble swallowing, and gastroparesis. Plus i used to be able to sing and now i cant. I sound like a frog.
Any info would be appreciated, thanks, Dany

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Not a doctor, just my initials. Lol. Because of lawsuits against the PPIs, I’ve been against taking them. My doctor understands and told me yesterday that dementia, bone breakage, and kidney problems/failure have been linked with them. So far I’ve been able to use ranitidine (Zantac) and Tums and it’s worked well enough. I think we all have to educate ourselves and be an active partner with our doctors. Sometimes our choices stink, but we do have them. Hope you have continued success.

@hopeful33250

Hello @drrobertsmsmft and welcome to Mayo Connect! I’m glad that you found this online patient support group. Is the procedure you are asking about for GERD or reflux problems? If so, I believe it is the LINX procedure. Here is Youtube video from Mayo Clinic regarding it,

. We have had other Members of our community discuss reflux and the different treatments please see the discussions at https://connect.mayoclinic.org/discussion/laryngopharyngeal-reflux-lrp-severity-and-outlook/?pg=2#comment-52068.

We look forward to getting to know you. What type of symptoms have you had and for how long? What other treatments have you tried?

Teresa

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@drrobertsmsmft After doing some research on the LINX procedure, how are you feeling about it now? Teresa

Hi @drrobertsmsmft,

We’re so glad you’ve joined us with your questions on Connect. I’m tagging @carolynlivingjaks and Mentor @kdubois as they may also have more information and insight about the LINX procedure.

I would like to invite @dandl48, @brie87144 @ryman, @lizwhite80 @jafd who all have discussed esophageal issues. While they may not share the same condition as you, they may have some similar experiences with regard to esophageal diagnoses.

Drroberts, may I ask what symptoms led to the diagnosis of esophagitis? Did you have trouble swallowing food?

@kanaazpereira

Hi @drrobertsmsmft,

We’re so glad you’ve joined us with your questions on Connect. I’m tagging @carolynlivingjaks and Mentor @kdubois as they may also have more information and insight about the LINX procedure.

I would like to invite @dandl48, @brie87144 @ryman, @lizwhite80 @jafd who all have discussed esophageal issues. While they may not share the same condition as you, they may have some similar experiences with regard to esophageal diagnoses.

Drroberts, may I ask what symptoms led to the diagnosis of esophagitis? Did you have trouble swallowing food?

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I had an endoscopy/colonoscopy in January and it was diagnosed then. The procedure was my second in three years.

@danybegood1

@drrobertsmsmft, Hi doc, can you tell me what are the harmful side effects of. ppis that everyone is so afraid of? Ive been taking them for about 10 years and without them i would have been miserable indeed. Although, i do have trouble swallowing, and gastroparesis. Plus i used to be able to sing and now i cant. I sound like a frog.
Any info would be appreciated, thanks, Dany

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I am very anxious to hear more about this procedure. But I am glad to know someone else does not take the PPis. I have been telling drs for years I don’t want them because I already have severe osteoporosis. I take Nexium for a few days when things get very bad. I have had GERD and swallowing problems most of my life. I have had many endoscopies and stretching. They finally sent me to a speech therapist which has helped some. Just today my dr told me to quit taking the PPi but because it causes dizziness which I have had for over a year. She told me to use Zantac and Tums. I do want to hear about this Linx procedure. I will read up on it and see what else you have to say.

Hi @drrobertsmsmft, the LINX procedure is a great alternative to a Nissen Fundoplication. Instead of wrapping the stomach around the base of the esophagus, they use a small device. The LINX company’s home page shows a photo of the device: http://www.linxforlife.com. And if you Google “Mayo Clinic LINX”, you can watch several videos about it.

With that said, I had to have a Nissen Fundoplication because my Mayo doctors said that my hiatal hernia was too large. Many insurances also will not cover it, so be sure to check out whether or not your insurer will cover it if you proceed.

As an aside, I became very ill from taking PPIs for 12 years. Genetically, I don’t properly-metabolize them *plus* these drugs also inhibit the enzyme they themselves need to be metabolized. Though prescribed long-term, the packages state not to take them long-term.

@danybegood1

@drrobertsmsmft, Hi doc, can you tell me what are the harmful side effects of. ppis that everyone is so afraid of? Ive been taking them for about 10 years and without them i would have been miserable indeed. Although, i do have trouble swallowing, and gastroparesis. Plus i used to be able to sing and now i cant. I sound like a frog.
Any info would be appreciated, thanks, Dany

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I was just diagnosed with ulcers and the BARRETTS ESOPHAGUS. was on protonix for ulcers which have healed now on Prilosec for esophagus. I don’t know how long I’m supposed to stay on them but don’t plan to be for a long time. I was feeling better but since changed to Prilosec feel worse again. Don’t know if ulcers are back or it’s the gerd. I have silent reflux so do not get heartburn just terrible pain in upper right side and pit of my stomach. It goes right through to my back. Do you think zantac would help me?

@danybegood1

@drrobertsmsmft, Hi doc, can you tell me what are the harmful side effects of. ppis that everyone is so afraid of? Ive been taking them for about 10 years and without them i would have been miserable indeed. Although, i do have trouble swallowing, and gastroparesis. Plus i used to be able to sing and now i cant. I sound like a frog.
Any info would be appreciated, thanks, Dany

Jump to this post

I have chosen not to take PPIs because of the negative consequences I have read about. I have take omeprezole and Nexium in the past but took myself off them and started taking tums and ranitidine (Zantac) instead. Now, the combination was not working. My doctor just increased my ranitidine prescription and I’ve only been on it for two days so…… I have still had to take Tums, but fewer. I am now looking at the LINX procedure, which you cannot choose with Barrett’s esophagus, I understand.

I would work closely with my doctor and tell him you do not want to take PPIs. Dementia, bone breaks and kidney problems/failure are not acceptable results to me.

@danybegood1

@drrobertsmsmft, Hi doc, can you tell me what are the harmful side effects of. ppis that everyone is so afraid of? Ive been taking them for about 10 years and without them i would have been miserable indeed. Although, i do have trouble swallowing, and gastroparesis. Plus i used to be able to sing and now i cant. I sound like a frog.
Any info would be appreciated, thanks, Dany

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@drrobertsmsmft I had one GI doctor suggest that I switch off between Zantac and Pepcid (neither are PPIs) and to use them on alternate months – that way you don’t develop a tolerance for either of them – just a thought – but it helps me. Teresa

My 21 year old son was born with a problem of his sphincter valve from his stomach and esophagus. At the age of 11 Months he had a Nissen Fundoliplication. Junior year in high school he began vomiting almost on a daily basis. In 2014 he had a redo Nissen Fundoliplication. Which was done incorrectly too high on his esophagus and too tight. After well over 30 pounds of weight loss and numerous problems. We found his surgeon at the Mayo clinic in Jacksonville. Dr. Steven Bowers has a viedo on Youtube regarding the Linxs device. Dr. Bowers undid the too tight wrap and put in the magnetic Linxs. My son was able to eat a hamburger the night of surgery! He has since had more problems including a rare SMA syndrome pain and Dr. Bowers will be performing a bowel reconstruction on my son next month. My son does have a feeding tube now. However, before considering a NF wrap…..I would highly encourage everyone to look for a doctor to preform the augmentation of the Linxs device.

@kanaazpereira

Hi @drrobertsmsmft,

We’re so glad you’ve joined us with your questions on Connect. I’m tagging @carolynlivingjaks and Mentor @kdubois as they may also have more information and insight about the LINX procedure.

I would like to invite @dandl48, @brie87144 @ryman, @lizwhite80 @jafd who all have discussed esophageal issues. While they may not share the same condition as you, they may have some similar experiences with regard to esophageal diagnoses.

Drroberts, may I ask what symptoms led to the diagnosis of esophagitis? Did you have trouble swallowing food?

Jump to this post

I also am not a candidate for the wrap since I had Barrett’s with high grade dysplasia. I am going to Mayo in Rochester in a few weeks for my 6 month visit (first time I went 6 mo.between visits). Have plans to ask my Dr.about the LINX procedure, but I think my hernia is too large. I’ve been on 80 MG of Nexium along with taking a Zantac at bedtime for a couple of years. Dr is watching my calcium levels since these meds can deplete calcium in my body. I do take D3 to help with this.

@danybegood1

@drrobertsmsmft, Hi doc, can you tell me what are the harmful side effects of. ppis that everyone is so afraid of? Ive been taking them for about 10 years and without them i would have been miserable indeed. Although, i do have trouble swallowing, and gastroparesis. Plus i used to be able to sing and now i cant. I sound like a frog.
Any info would be appreciated, thanks, Dany

Jump to this post

Does anyone know why with Barretts esphogus the linx procedure can not be done? I have Barretts, Gerds with esophagitis. The flap from the esphogus to stomach does close, so constant back up. Been on 40 mg of Omemprazole for 5 years. I thought the linx would solve that problem . Hate to think of the side effects of the PPI’S. but my doctor says not taking them would be more harmful.

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