Leg atrophy on Camzyos

Posted by tojk @tojk, Jan 18 6:26am

I have been taking Camzyos for about a year. 4 months ago my right leg began to atrophy and weaken and is now significantly smaller than the left. I recently saw a physician who suggested it could be nerve degeneration. I am awaiting the results of an MRI. Anyone else experiencing this?

Interested in more discussions like this? Go to the Hypertrophic Cardiomyopathy (HCM) Support Group.

Debra, Volunteer Mentor | @karukgirl | Jan 19 9:40am

Hello @tojk, and welcome to Mayo Clinic Connect. I'm glad you found this online support group and posted your question. If there is another member who shares your same situation, I hope they can respond and share.
While you wait for your MRI results, have you checked on the Camzyos site for patients?
Here is their link:
https://www.camzyos.com/
How is your HCM doing on Camzyos?
When do you see your doctor again?